Many of you have been hearing about the work of our All of Us Community Engagement Coordinator, Michele Spatz. Michele has been highlighting the NIH All of Us Research Program in our region. This program is hoping to gather data from 1 million or more participants to help improve health through precision medicine and to be reflective of our diversity. This PNR Rendezvous session will describe the NNLM All of Us Research Program partnership and what it means for libraries. It will then highlight the Journey, the All of Us Mobile Education and Enrollment Center’s four-day visit to Hailey, Idaho, hosted by the Hailey Public Library. LeAnn Gelskey, Hailey Public Library director, will share her experience facilitating the Journey’s visit. Come learn what’s inside and how your library can “get on board” and benefit from the NNLM All of Us Research Program partnership.
The All of Us Journey continues to tour the country. Learn where they have been and future visits.
Session title: The NNLM All of Us Partnership & Inside the Journey
When: Wednesday February 20 at 1:00pm PT, Noon Alaska, 2:00pm MT
The session will be recorded but we encourage you to attend the live session where you can ask questions and dialogue with the presenters.
Many of you are aware of the recent measles outbreak in Washington state and so it is of particular concern for the PNR region. The vast majority of these cases are in Clark county, 43 cases have been reported and 32 are children under the age of 10. Of those cases 37 had not been immunized. According to a recent PLOS article, Seattle, Spokane and Portland are included in the top 15 cities that are considered “hotspots” who have a large number of vaccine non-medical exemptions. Washington, Idaho, and Oregon are states that allow a “philosophical belief” exemption when it comes to vaccines. Whatever the public’s view of immunizations, measles is a very serious health condition and is especially so for those who cannot get vaccinated due to their health as well as pregnant women and babies under the age of 1.
Where to go to provide information to your communities?
The Washington State Department of Health provides information about:
- the numbers and counties affected
- an outbreak toolkit for parents and the public
- template letters for schools to parents as well as their staff
- information in multiple languages
The CDC provides information for parents about the measles vaccine and about measles.
- an overview about measles
- information about risk, prevention and symptoms
- information regarding specific populations
- information in multiple languages
The National Institutes of Health (NIH) has a special edition of their NIH News in Health explaining the important role vaccines have in keeping us healthy.
This information can be provided as links on your website, included in social media, and printed for your patrons and consumers to take with them. Bringing awareness with reliable health information can help reduce the spread of this outbreak and is an important step in keeping your communities safe and healthy.
It is with a sense of bittersweet longing for things to stay as they are that I must inform you that things most decidedly are not staying as they are, at least in my personal occupational journey! Today is my last at the marvellous offices of the network of libraries dealing with medical matters, fortunately not all of them delicate. I shall be transferring my vocational affections to Berkeley, in faraway California, henceforth, and hope to encounter many of you in that delightful place. I expect my work there to be intellectually rigorous, enjoyably and somewhat frighteningly so, and I am wondrously prepared by all of the activities in which I have been involved these two years since. I hope that I may maintain an active and lively correspondence with any of you wishing that felicity, and that you will not hesitate to write to me should I be able to render you any kindness or assistance.
Ever Yours, Your Most Affectionate Companion in Librarianship,
Ann (channeling a certain early 18th century author whose last name rhymes with Boston)
The NNLM Community Engagement Network (NNLM CEN) offers relevant health news as well as information on NNLM funding opportunities, free consumer health online training classes, health programming ideas and downloadable resources to help your library support its patrons’ health information needs. To keep you abreast of all the latest, we’re launching the monthly CEN Newsletter on February 11th, which will deliver all of the recent and important happenings directly to your email inbox. All you need to do is sign up! We do hope you’ll join us!
The NNLM All of Us Community Engagement Network is pleased to announce its three book selections in support of American Heart Month, a February National Health Observance.
Heart: A History by Sandeep Jauhar
Brilliant Affliction by Lene Fogelberg
This Heart of Mine: a Novel by C.C. Hunter
To learn more about each of these titles, download book discussion guides, promotional materials and corresponding heart health information or to apply for a free NNLM Reading Club Book kit, visit the NNLM Reading Club Selection Guide: Heart Health.
Are you attending he ALA Midwinter Meeting in Seattle this week? The NNLM Pacific Northwest Region will be there.
We’ll be in the exhibit hall under National Library of Medicine, booth #605
Stop by and learn more about the National Library of Medicine resources as well as the outreach services of the National Network of Libraries of Medicine. Coordinators from several of our regional offices across the country will be staffing the booth where you can chat with us face-to-face. Bring your questions, view a demo, and pick up a Libraries Transform health literacy poster.
Implicit Bias, Health Disparities and Health Literacy: Intersections in Health Equity
This pre-conference session is already full but for those attending, this is a wonderful opportunity to learn about health equity through experts in the field as well as the work NNLM does regarding health literacy. This session is a through NNLM and ALA Office for Diversity, Literacy and Outreach Services.
Public Libraries as Partners in Healthy Communities
This session is open for anyone to attend. Bobbi Newman from the NNLM Greater Midwest Region and Carolyn Martin from the Pacific Northwest Region, will be co-presenting about how public libraries can get started in providing health outreach in their communities with programming and health information. Saturday, January 26 from 4;30 – 5:30, room 608 at the Washington State Convention Center.
See you soon in Seattle!
A new year and a new blog series. As Consumer Health Coordinator for the NNLM PNR, I help to provide information regarding library services and programming for those who serve the general public. Many of you juggle several job duties as well as a variety of information needs and so may welcome some tips and ideas of how to best serve the consumer health needs of those in your communities. I hope you find these monthly tips helpful and of interest and I welcome any ideas you may have for future posts as well as any comments.
Welcome to the first Consumer Health Minute post.
Over the past year or so, the National Network of Libraries of Medicine (NNLM) has had a partnership with the Public Library Association (PLA) called, Promoting Healthy Communities: A Health Information Initiative. The though initiative is past, the results of this partnership still remain. Take a moment to review these resources and see which would be helpful in your work with consumer health and share these with your colleagues.
- If you are a member of PLA, you can join the Health Interest discussion group where programming ideas can be shared and questions asked informally.
- You don’t have to be a member to receive the Health Initiative email newsletter which provides quick information such as webinars, articles, programming, and news specifically for public library staff
- You also don’t have to be a member to use the website, Healthy Community Tools for Public Libraries. This website compiles quality health information websites, training resources, and health news to assist busy public librarians keep updated on health information.
This Wednesday, the PNR and PSR (so, the whole west coast!) regions of the NNLM are joining forces to offer what promises to be a fantastic webinar, by data guru Margaret Henderson (who literally wrote the—or at least a—book on research data management for librarians). She will talk about how to get data services started at your institution, after taking one of the many online (and in-person) courses on research data management (RDM) available these days.
But, what if your new year’s resolution is to actually TAKE one of the courses? Where do you find the one that will work for you? Or, what if you just want to know more about the RDM scene in general? This post is for you! Here are some ideas for finding the right offering for you…
–Get a sense of the issues in the field by reading generally; articles like “Libraries and the Research Data Management Landscape” from CLIR can set the stage (as can Margaret’s book!)
–Consider what your personal goals are, and assess what kind of course would best meet them… Or maybe you want to be networking? Or learning Python? Courses aren’t the thing for every person or goal!
–Look for LibGuides that collect and describe some of the options out there; here’s a good one from Columbia University
–Look at offerings from professional organizations; here is a fabulous list of resources from ACRL
–Look for news and even list-servs that discuss data (the ones from RDAP and IASSIST are good places to start), which will have posts on the latest courses available; or, perhaps, a webliography?
–Look beyond the US—Europe, Canada, Australia, and others have been doing RDM work for even longer than we have, and there are some sophisticated and accessible offerings! Take a look here and here and here…
–Look at offerings within particular academic disciplines (not just explicitly health-related); check out this one from the American Society for Engineering Education!
And, watch this space! You may be aware that the NNLM has offered an intensive RDM 101 course (spring and fall 2018), and RDM 102 is about to begin. The NLM’s director, Patti Brennan, is data savvy and data focused, so there are sure to be more offerings in the coming years! I’ll leave you with this recent talk she did, the closing plenary for the Coalition for Networked Information, titled “NLM & NIH Partnership in Accelerating Discovery Through Data”. Enjoy!
We are excited to be collaborating with our sister region, Pacific Southwest Region, to combine our monthly webinars this month to provide a wonderful session we believe you will find informative and useful.
Session title: What to do After You Take a Data Course
Presenter: Margaret Henderson, Librarian at San Diego State University. Margaret has presented and written on many library topics over the years, and wrote the book, Data Management: A Practical Guide for Librarians (2016, Rowman & Littlefield).
Summary: There are many online and in-person courses available for librarians to learn about research data management, data analysis, and visualization, but after you have taken a course, how do you go about applying what you have learned? While it is possible to just start offering classes and consultations, your service will have a better chance of becoming relevant if you consider stakeholders and review your institutional environment. This lecture will give you some ideas to get started with data services at your institution.
When: Wednesday, January 16 from 1:00 – 2:00pm PT (please adjust to your time zone)
How to attend: Registration is required but the webinar is free.
The session will be recorded and posted soon after the live session.
We hope you can join us!
Every new year we begin with the resolution to exercise, to diet, to have piece of mind- to be healthier. In books stores and public libraries, exercise and diet books and other media fly off the shelf. Gyms and health studios become crowded with new members. An array of exercise equipment is purchased or brought out from storage. And the kitchen pantry and refrigerator is suddenly cleared of junk food and filled with fresh fruits and vegetables. It’s an annual tradition.
Want some cheaper tools and tips? The National Institutes of Health (NIH) and other government and organizations provide a variety of freely available tools to help you and your communities work towards healthier lifestyles.
MedlinePlus offers several tools:
- The Health and Wellness section of Health Topics provides information about diets and exercise, healthy living, and keeping mentally healthy.
- The Heart-Healthy Recipe of the Week provides information on how to prepare a healthy recipe each week that is limited in salt and fat and yet tasty. Information about time to prep and cook are provided as well as nutritional information.
- A number of videos, quizzes and games can aid in engaging in your health where awareness and education can increase consumer health knowledge.
- Subscribe to MedlinePlus Magazine or provide a link for easy access. This quarterly free magazine provides updates of important NIH research as well as information about health consumers can use.
The National Institutes of Health provides some great tools as well:
- The Body Weight Planner allows users to make personalized calorie and physical activity plans to reach a goal weight within a specific time period and to maintain it afterwards.
- Though Go4Life is focused on older adults, anyone can use the exercises and motivational information to maintain strength, balance and flexibility.
- Information about cleansing diets, relaxation, and body building are available through the National Center for Complementary and Integrative Health.
- Sisters Together: Move More, Eat Better Program Guide encourages women to live healthier lives.
- Seeking alcohol treatment? The Alcohol Treatment Navigator will help you locate evidence-based treatment with no commercial sponsors.
- Subscribe to NIH News in Health or provide a links for easy access to this freely available monthly newsletter.
Other free resources include:
- Choose My Plate offers tip sheets, ways to increase physical activity, recipes and cookbooks and menus, and online tools to aid in leading a healthy lifestyle.
- Want to quit smoking? The Quit Now tab on the BeTobaccoFree.gov website offers tools for those who want to quit.
- The Office on Women’s Health provides information on how to maintain good mental health.
Self-promotion–we all are called upon to do it at some time or another. And my time has arrived! This post is to let you know that if you’re interested in reading about research mandates, from funders, institutions and publishers, there’s a new book chapter that’s just been come out, by me and Virginia Commonwealth University’s Research Data Librarian Nina Exner. The title is “Responding to Change: Reinventing Librarian Identities in the Age of Research Mandates” and it appears in the volume Challenging the “Jacks of All Trades but Masters of None” Librarian Syndrome (Advances in Library Administration and Organization, Volume 39). You can see that it is fascinating reading, at least for my cat Dorothy!
Seriously, we didn’t really know until we started what a big topic this would turn out to be. From the abstract, you’ll see that we: “(1) outline the changing scholarly ecosystem; (2) summarize major terms and concepts to understand the process of producing research outputs; (3) discuss the perspectives of the major players in the research enterprise; (4) present some of the challenges that research mandates and the changing research environment have brought to libraries; and finally (5) review ways in which libraries have successfully addressed them.” Phew!
Of course, by nature of this quickly moving environment, some of what we offer has shifted in the year since we wrote it, but we hope there are still many helpful suggestions! There are two figures in particular that lay out some ideas for librarian involvement in the research enterprise.
Also, if you are OK with not having the publisher’s beautified version, the final manuscript version is available in open access form through the University of Washington’s ResearchWorks Archive.
While not light holiday reading, it may fit the bill if you make a new year’s resolution about enhancing your current awareness activities! Either way, we welcome feedback– please feel free to contact me at email@example.com with any comments, suggestions, etc.
Happy New Year!
Tania, Cathy, Ann, Carolyn, Maddie, Malakai, Michele
Every year around this time, I think about my health. Yes, it’s the holidays and everything is festive and bright, but it’s also the season when I typically schedule my annual health visits. And, to be honest, the news from these visits hasn’t always been something to celebrate. I’ve learned that health – and conversely ill-health – are deeply personal attributes, uniquely different for each and every one of us. I’ve found, too, that my family health history can influence everything from the health screenings my doctor orders to the diseases or conditions I’m susceptible to, as well as the preventive health measures recommended to me.
Where I live can also influence my health. I’m happy to say I’ve moved in the past year from a home next to a cherry orchard that, while beautiful, was sprayed each spring with toxic chemicals, (as evidenced by the farm hands’ haz-mat suits). I fear I may have yet to feel the full health effects of that annual exposure.
Lifestyle is the other part of my health triad – determined by the choices I’ve made and continue to make daily. Did hiking the entire Appalachian Trail in my 20’s do a number on my knees which vexes me more each day as I grow older? Does my periodic “healthful eating plan,” which I use to manage my yo-yo-ing weight, support or conversely hinder my overall health? I could go into a lot more detail about my past choices, or the ones I make today, from riding my stationary bike each morning to savoring a glass of good red wine on the weekend, but let that suffice.
When all is said and done, my family health history – my DNA, environment and daily lifestyle choices all contribute to my health or ill-health. For each of us, the combination of these attributes uniquely influences our health and well-being. And science is paying attention.
The National Institutes of Health’s All of Us Research Project, officially launched last May, is a longitudinal study to safely and securely gather one million or more participants’ data on their biology, environment and lifestyle. With personal identities removed, the All of Us Research Project will make this “de-identified” data available to ethical researchers, with the goal of advancing scientific discoveries to improve medical diagnosis, treatment and preventive care for all of us. It’s an ambitious project, but it gives me hope for a better future – one with healthcare that is as unique as each one of us.
For more information on the All of Us Research Program, please visit: Joinallofus.og
For information on how we can support your library’s participation in All of Us, visit the NNLM’s Community Engagement Network web page.
The NN/LM PNR is pleased to invite applications for a new funding opportunity to support health science library partnership projects. Applications will be reviewed on a first come, first serve basis until January 11, 2019. Check this out if you want funding support to partner on research and data projects or events within a performance period ending September 30, 2019.
Also, funding from Year 3 of our grant is still available to support assessment and planning; or mini-outreach awards. Applications will be considered anytime until March 1, 2019, and your award can be approved for a no-cost extension until September 30, 2019.
We request that you please inform us in advance if you intend to apply for any of these opportunities, at least 3 weeks before you submit. Please submit your statement of intent to apply to firstname.lastname@example.org.
Are you planning your holiday menus for when your friends and families are gathering during the holiday season? It can be fun to plan what foods and beverages to serve until Cousin Bill states he is no longer eating gluten, your best friend is lactose intolerant, your boss is vegan, Grandma is diabetic, and your nephew announces he is bringing his roommate who has specific religious dietary restrictions. Suddenly menu planning becomes a challenge that seem insurmountable.
Providing a fun festive gathering includes being a hospitable one as well. Letting your guests know they are welcome and that you are considerate of their dietary needs not only creates a place of hospitality but one of safety. While some of these diets are voluntary and may be a lifestyle choice, others may be for cultural or religious reasons and even a matter of life or death. Here are some suggestions to help you accommodate your guests:
- Educate yourself and about dietary restrictions and ask your guests for information and suggestions
- List the ingredients of each dish and save the labels of purchased items so your guests can refer to them to know if an item is safe to eat
- Stick to simple basic recipes such as roasting a vegetable with only minimal salt and pepper, the more ingredients a recipe includes the fewer can enjoy it
- Keep extra flavorings and ingredients on the side such as candied pecans for sweet potatoes in a separate condiment bowl
- Wash your hands, cooking utensils and surfaces frequently while preparing food so as to not cross contaminate
- Consider a meal where guests ‘build their own’ meal such as a taco bar where options are available
Tips for in the kitchen are from FARE (Food Allergy Research & Education)
For information about a variety of diets and dietary restrictions, visit the MedlinePlus food and nutrition page
Guess what one of the most popular gifts purchased was during the 2017 holiday season? Direct-to-consumer genetic tests. Yes, apparently a lot of spitting happened around that time or at least required it for discovering something about one’s health and ancestry. These kits have been featured on celebrity shows, the news, and one particular brand was even on Oprah’s list of Favorite Things. Most likely it will continue to be a popular item this holiday season particularly with discounted prices and appealing (and rather aggressive) advertising directed at those wanting to know more about themselves. Many of these kits are even bought for numerous family members without even being requested.
But, should the public purchase these kits without a second thought? The Centers for Disease Control (CDC) think not. In fact, they and other agencies, associations, and organizations have attempted to caution those who are wanting to spit their genetic information into a tube. The “Think Before You Spit” campaign began in 2011 and has been regularly reprised by the CDC over the years. Limitations of these sorts of tests were a concern when they first appeared on the market and continue to be even now. The validity and quality of these tests, whether for ancestry or health, need to be understood by users. No standard exists for these types of tests. Genetic testing is very complex and new discoveries and advances are continually occurring.
So, think before you spit. It can be easy to be caught up in the excitement to learn about your background but the reality is you are giving up very unique information about yourself once you send in that tube of spit as well as others such as your children if you have them do a test as well, which by the way, raises issues of pediatric consent and other ethical issues. Educate yourself and those who you know are considering using this type of test because you are giving away very unique information about yourself.
Where can you find information about direct to consumer genetic testing?
- The National Library of Medicine’s (NLM) consumer health resource, Genetics Home Reference, has expanded its Direct-to-Consumer Genetic Testing content to provide more in-depth coverage of this popular topic.
- The Federal Trade Commission provides facts about about this type of testing.
- The Council for Responsible Genetics published a consumer guide, “Ancestry DNA Testing and Privacy: A Consumer Guide” in 2017 which explores this in greater depth.
Then ask yourself:
- What do you hope to learn from the results of the test?
- Are you prepared to learn something totally unexpected?
- How will this affect your family?
- Are you okay with having your genetic information available to others?
Also, ask your doctor or healthcare provider whether this type of test would provide useful information for your health
If you decide that you still want to take the test consider these questions, provided by Genetics Home Reference, when choosing a company.
This is all information you can provide not just for yourself but for you library patrons and others in the communities you serve whether in social media postings, in a newsletter or on your website. Provide your community with access to authoritative resources so they can make the decision about whether or not to use a direct-to-consumer genetic test as informed health consumers.
Our next PNR Rendezvous webinar is:
The Essentials of Marketing Your Interlibrary Loan Service
Marketing a new library service is expected. Marketing a service that no one is using is expected. But what about interlibrary loan, which is an existing service that, statistically, patrons are already using? Should a library waste money, resources, and staff time to market interlibrary loan? Yes! Marketing interlibrary loan can teach patrons how to use the service more effectively and can introduce new users to the service. But currently, there is very little literature on the subject. Marketing other library services is written about frequently but ILL, not so much. It becomes hard to know how to approach marketing ILL when there is not a lot of precedent for it. So how do you begin your own interlibrary loan marketing campaign? In this presentation you will learn what marketing really is, about libraries that have successfully marketed interlibrary loan, and lessons learned from those marketing endeavors.
It’s best to attend the live session but it will be recorded. Bring your questions and ideas.
Presenter: Adebola Fabiku, Head of Interlibrary Loan and Document Delivery Services at the University of Washington
When: Wednesday, December 5 at 1:00pm PT, Noon Alaska, 2:00pm MT
How to join the webinar: Registration is encouraged but not required.
Go to current PNR Rendezvous session
Enter your name and email address.
Enter the session password: pacific
Click “Join Now”.
Follow the instructions that appear on your screen.
If you are interested to hear more, join us as we host Wikidata expert and librarian Katie Mika, from the University of Colorado Boulder! In this hour-long webinar, she will “introduce the WikiCite initiative (to build a database of open citations to support free and computational access to bibliographic metadata) and will identify simple, high impact ways for librarians to get involved. As experts in the intersection of bibliographic metadata, information discovery, and interdisciplinary research, librarians are a tremendous resource for this community.”
To register for the session (which will be recorded, and a link sent out to registrants), visit https://nnlm.gov/class/wikidata . You might also want to check out the link on that page to the NNLM’s Research Data Management Webinar Series, with several recorded sessions already available.
Please send any questions to Ann Glusker, email: glusker (AT) uw.edu. We look forward to learning along with you on Dec. 7!
P.S. If you want some fascinating extra reading before the webinar, check out this article by Katie Mika, “Wikidata and BHL” [Biodiversity Heritage Library]
Has your library, institution, or organization considered hosting a National Library of Medicine (NLM) exhibit but were unsure as to what was involved? Perhaps you noticed the lengthy wait list for several of the exhibits? The next PNR Rendezvous webinar session is hosting staff from the NLM Exhibition Program who will be providing some information about an opportunity to host an exhibit.
In addition, until December 15, 2018, NNLM PNR network members are invited to sign up to host an NLM exhibit, for a 6-week booking period of your first or second choice from January 2019 through April 2021. Learn more about this opportunity on a previous Dragonfly post and attend this upcoming PNR Rendezvous webinar session..
PNR Rendezvous session: New Horizons for NLM Traveling Exhibitions
About the webinar: The National Library of Medicine (NLM) traveling exhibitions are designed to engage diverse audiences about a variety of topics in the history of medicine, enhancing awareness of and appreciation for the collection and health information resources of the National Library of Medicine. The NLM Exhibition Program will soon introduce a new engagement initiative for customers hosting one of its traveling exhibitions. The new engagement initiative will help strengthen the connections host venues make to NLM collections and health information resources as part of their hosting of an NLM traveling exhibition. This PNR Rendezvous webinar will serve as an introduction to this new initiative. You are encouraged to attend the live session but it will be recorded.
When: November 14, 1:00pm PT, Noon Alaska, 2:00pm MT
How to join the webinar: Registration is encouraged but not required.
Go to current PNR Rendezvous session
Enter your name and email address.
Enter the session password: pacific
Click “Join Now”.
Follow the instructions that appear on your screen
In case you haven’t heard, the NNLM’s second Wikipedia Edit-a-Thon, focusing on Women’s Health, is happening tomorrow! We really hope you will join us, as an editor, learner, observer, cheerleader, or whatever role fits for you. (If you want to edit, be sure to sign up for a Wikipedia account if you don’t have one, and if you want to tweet, the hashtag is #citenlm2018 )
As an extra inducement, during the shift hosted by the NNLM-PNR, 3-5 PM Pacific Time, we will feature Wikipedian Monika Sengul-Jones. We’re all lucky to have her as a knowledgeable, energetic, generous, and exciting presence during this time!
So, this is our Wikipedia project page, which has most of the information you’ll need, including the WebEx information (since this is an all-online event):
And, you’ll see a GoogleDoc link there, which will connect you to a wide range of Women’s Health resources you can check in with, as well as a great grid that has options for which Wikipedia pages might need more work than others.
Finally, if you want more training in advance, check out the recordings here (due to technical glitches the third one isn’t up yet!):
There was also a great training last spring:
Hopefully all this will get you started– we’re so excited some of you will be participating! And, keep the questions coming! (Email me, Ann Glusker, at glusker (AT) uw.edu)