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Lifestyle Choices and Gender May Affect a Person’s Resilience to Alzheimer’s Genes

“Alzheimers” by Michael Havens is licensed under CC BY 2.0

Alzheimer'sWe all know we should take care of our bodies. Health professionals tell us to eat healthy and to exercise in order to maintain our physical health; and we know we should challenge our minds to maintain our mental health. Leading a healthy life can lower your risk for many illnesses and diseases including heart disease, diabetes, and some cancers. And now, a new study suggests that even if you carry Alzheimer’s genes, if you lead a healthy lifestyle you might be less likely to feel the effects of the disease.

Findings indicate that if you’re a woman you might also have a stronger resilience to the disease even if the genes are present in your DNA. The study found that only 32 percent of women showed signs of memory decline while 47 percent of men did. Research suggested that women can further help maintain their memory by having an active social life, healthy lungs, and moderate exercise.

It’s important to also note that even if you carry Alzheimer’s genes, that is not a guarantee that you will get the disease.

To learn more, please visit “Women May Be More Resilient to Effects of Alzheimer’s Genes,” or alz.org.

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Health Officials Investigating Possible First Local Zika Transmissions

“Stripe on stripe” by coniferconifer is licensed under CC BY 2.0

MosquitoZika Virus has been on the minds of health officials for months, but until recently the main concern to average citizens regarding the virus was simply protecting themselves from transmission while traveling to infected countries, which include much of Central and South America, and many Caribbean islands. Florida health officials are now investigating two cases of Zika in Miami-Dade County and Broward County, which they believe may have been acquired locally, although they have not ruled out sexual transmission. If confirmed, this would be the first case of Zika transmitted by mosquito within the U.S.

In January, the U.S. Centers for Disease Control and Prevention predicted small local outbreaks may occur, specifically in the south of Florida and Texas because mosquitoes in those areas have also carried dengue and chikungunya in the past.

So far, more than 1,400 people have tested positive for Zika in the U.S., with all cases having been related to travel to an infected area.

To read more about local Zika transmissions, please see “Florida Investigating 2 Possible Local Zika Virus Infections.”

To learn more about how to protect yourself from Zika, please visit cdc.gov.

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June 21st – SCR CONNECTions: Regional Medical Library Educational Webinar

Join us at the NN/LM SCR’s monthly webinar, SCR CONNECTions.

Next Webinar: The Greater Midwest Region (GMR) and South Central Region (SCR) of the National Network of Libraries of Medicine (NN/LM) present the first jointly sponsored webinar in the monthly Lake Effects and SCR CONNECTions series.

Title: “Data Research Services: University of Michigan Experience”

Date: Thursday, July 21st, 2016

Time: 2:00pm – 3:00pm CDT

Description: This webinar session is focused on interviewing Jake Carlson and Marisa Conte regarding their involvement in research data services at the University of Michigan. Join us to learn how data services support interactions between scientists and librarians, and how these interactions create new opportunities for health sciences libraries. Topics covered in this webinar include: needs assessments to inform a research data service, the importance of teaching data literacy, data management requirements from funding agencies, and the value of health sciences libraries as partners in data management.

For full bios of Jake Carlson and Marisa Conte, see their profiles online:

This webinar will be available for 1 hour of Medical Library Association (MLA) Continuing Education credit and will be archived for future viewing.

To Join the Meeting

  1. Go to: https://webmeeting.nih.gov/jointwebinar/
  2. At the log in screen, choose “Enter as a Guest” and type in your name.
  3. Once the room is open, the system will provide you with a participant code and a phone number to dial-in to connect to the audio.
  4. Please use *6 to mute or unmute your phone.

Problems? Call us at 817-735-2223.

Test Your Connection

Run the Acrobat Connect Connection Test to ensure your configuration is compatible with the web meeting system. If you have problems completing the test or installing required software, please visit the Adobe Support website or call Adobe Connect Technical Support at 800-945-9120.

Shari Clifton Receives the Michael E. DeBakey Library Services Outreach Award

Shari Clifton

Shari Clifton, Outreach Librarian at the Robert M. Bird Health Sciences Library of the University of Oklahoma Health Sciences Center has been awarded the 2016 Michael E. DeBakey Library Services Outreach Award.

Shari has extensive experience providing outreach programming throughout Oklahoma and was instrumental in developing an outreach program that has helped public libraries increase their ability to locate and search for authoritative health information. In partnership with other OUHSC librarians, Shari developed the Health Information Specialists Program. This program provided training to Metropolitan Library System (MLS) staff which allowed participants to obtain extensive training in consumer health resources and ultimately obtain a Level I Consumer Health Information Specialization through the Medical Library Association.

This prestigious award was established in the early 1990s in honor of Dr. DeBakey, to recognize outstanding service and contributions to rural and underserved communities by a practicing health sciences librarian. The award is presented annually by the Friends of the National Library of Medicine.

Congratulations to Shari for providing exceptional health information programming!

 

Single IRB Policy to Streamline Reviews of Multi-Site Research

Accelerating clinical research studies benefits researchers, research participants, and all who stand to gain from research results. Today, the time it takes to go from a sound research idea to the launch of a new, multi-site clinical research study is too long. A major contributor to the delay is that too many institutional review boards (IRBs) are reviewing the protocol and consent documents for the same study, often with no added benefit in terms of the protections for research participants. To address this bottleneck, NIH has issued a new policy to streamline the review process for NIH-funded, multi-site clinical research studies in the United States. The NIH Policy on the Use of a Single Institutional Review Board (IRB) for Multi-Site Research (pdf) sets the expectation that multi-site studies conducting the same protocol use a single IRB to carry out the ethical review of the proposed research.

Francis S. Collins, M.D., Ph.D.
Director, National Institutes of Health

This information was originally posted on the NIH website: https://www.nih.gov/about-nih/who-we-are/nih-director/statements/single-irb-policy-streamline-reviews-multi-site-research

Science Education Resources from the NIH

The 27 Institutes and Centers of the NIH fund the development of extensive science education materials for use in K-12 classrooms. Teacher and student manuals are available for many of the resources.

Examples of resources that may be integrated into the curriculum include:

The Brain: Our Sense of Self

 

The Brain: Our Sense of Self
(Grades 7-8)

A Curriculum Supplement from the National Institute
of Neurological Disorders and Stroke.

This resource describes the brain functions, regional differences,
impact of spinal damage, and how the nervous system processes
information.

Activities:
1. A Difference of Mind
2. Regional Differences
3. Inside Information
4. Outside Influence
5. Our Sense of Self

 

 

Open Wide and Trek Inside!

 

Open Wide and Trek Inside!
(Grades 1-2)

A Curriculum Supplement from the National Institute of Dental and Craniofacial Research.

This resource goes beyond the traditional “brushing and flossing” curriculum and
focuses on the science of the oral environment,
and major scientific concepts relating to oral health.

Activities:
1. What Do Mouths Do?
2. Open Wide! What’s Inside?
3. Let’s Investigate Tooth Decay
4. What Lives Inside Your Mouth?
5. What Keeps Your Mouth Healthy?
6. What Have You Learned About the Mouth?

 

View more resources on the NIH website at https://www.nih.gov/research-training/science-education, or visit each NIH Institute or Center’s website at https://www.nih.gov/institutes-nih/list-nih-institutes-centers-offices.

 

Speaking to Diverse Communities Through HealthReach

HealthReach LogoThe National Library of Medicine continues to provide access to health information to underserved communities through HealthReach. HealthReach is a national partnership that offers access to patient education materials in multiple languages, as well as helpful information for providers who offer services to individuals for whom English is not their native language. On the patient materials tab, users are able to search by topic, language, format, and authors. Providers are able to search by countries, populations, and authors. Materials for both audiences include audio, videos, and documents.

Resources include:

  • Health education materials in various languages and formats (brochures, fact sheets, videos)
  • Provider tools (including best practices, cultural information, and effective use of interpreters)
  • Special collections on Emergency and Disaster, Women’s Health, and Mental Health

HealthReach provides free access to high quality, culturally relevant health information. Visit https://healthreach.nlm.nih.gov/ for more information.

A portion of this entry was adapted from https://healthreach.nlm.nih.gov/

Oncology Data Sharing Resource CancerLinQ™ Nearing 1 Million Records

ASCO CancerLinQOne million unique patient records from approximately 50 oncology practices are expected to be part of the CancerLinQ network by this summer. It is a benchmark indicating the broad and growing acceptance within the oncology community for an initiative that is compiling a robust database of real-world information that will be searchable, usable, and specifically designed to improve patient care. By late 2016 or early 2017, enough anonymous and aggregated data will be entered into CancerLinQ to allow searches of the entire system. Physicians will be able to compare a patient’s data against national quality standards and the experiences and outcomes of patients across the country.

Dr. Allen Lichter explained the advantages of utilizing the CancerLinQ system to physicians attending the American Society of Clinical Oncology this week in Chicago. “If, for example, you are seeing a patient that for you and your practice is an unusual presentation or in an unusual setting, you will have the ability to query the database and rapidly see 50 or 100 similar cases to gain insight about what has been done by others and what happened when certain techniques or treatments were employed,” Dr. Lichter said.

Physicians attending the ASCO meeting will have the opportunity to view a demonstration of the database which now contains real world data.

Learn more about this big data initiative at: http://cancerlinq.org/

Story reprinted from ASCO Daily News 6.5.16:  http://am.asco.org/cancerlinq-gaining-participants-enthusiasm, author: Kathy Holliman, MEd

Focus on NLM Resources

Focus on NLM Resources bi-monthly webinars are hosted by the NN/LM Mid-Atlantic Region. Sessions feature NLM resources and offer 1 MLA CE credit for online attendance.

Sessions begin at noon Eastern Time and registration is required. The full schedule is available at: http://nnlm.gov/mar/training/focus_schedule

HealthReach / June 9, 2016 noon – 1pm ET Register

Presenter: Laura Bartlett / Outreach and Special Populations Branch, National Library of Medicine

Description: HealthReach is a resource of quality multilingual, multicultural public health information for those working with, or providing care to, individuals with limited English proficiency. In Spring 2016, the site was redesigned.

Resources include:

  • Health education materials in various languages and formats (brochures, fact sheets, videos)
  • Provider tools (including best practices, cultural information, and effective use of interpreters)
  • Special collections on Emergency and Disaster, Women’s Health, and Mental Health

Genetics Home Reference / August 4, 2016 noon – 1pm ET Register

Presenter: Stephanie Morrison, MPH / National Library of Medicine

Description: Genetics Home Reference is the National Library of Medicine (NLM) website for consumer information about genetic conditions and the genes or chromosomes associated with those conditions. A recent redesign of the website introduced a completely new look and feel, improved navigation, and hundreds of educational images. This presentation will cover the development and use of this NLM resource, with a focus on the recent changes.

 

Many NIH Initiatives Featured at MLA 2016 in Toronto

bioCADDIEKevin B. Read shared updates on the bioCADDIE project sponsored by an NIH Big Data to Knowledge (BD2K) grant. This award is allowing a research team at UC San Diego to develop the first data discovery index that will index data stored at disparate locales. The repository is intended to ultimately serve as the ‘PubMed of data.’

Visit the bioCADDIE website for more information about the project and to view research team presentations. The upcoming bioCADDIE Workshop: Data Indexing for Data Providers will be held on June 23, 2016 in La Jolla, California.