In an effort to make information about clinical trials widely available to the public, the U.S. Department of Health and Human Services has just issued a final rule that specifies requirements for registering certain clinical trials and submitting summary results information to ClinicalTrials.gov. The new rule expands the legal requirements for submitting registration and results information for clinical trials involving U.S. Food and Drug Administration-regulated drug, biological and device products. At the same time, the National Institutes of Health has issued a complementary policy for registering and submitting summary results information to ClinicalTrials.gov for all NIH-funded trials, including those not subject to the final rule. A narrative summary and a summary table of the changes resulting from these new initiatives have been published by NIH. (more…)
Archive for the ‘Consumer Health’ Category
The National Library of Medicine’s Exhibition Program partners with hundreds of libraries and cultural institutions across the country and around the world in an effort to provide meaningful historical and health related content to audiences in communities near you! For example, in October 2015, the National Library of Medicine made available a new traveling banner exhibition, Confronting Violence: Improving Women’s Lives. The exhibition tells the story of a vanguard of nurse activists who worked to change the way the medical profession responded to patients who had been battered. Three copies of the traveling banner exhibition are traveling around the country through 2019. (more…)
by Yamila El-Khayat, M.A.
Outreach Services Librarian
University of Arizona Health Sciences Library
The University of Arizona Health Sciences Library has had the opportunity to reach a number of audiences and do a number of activities with the support of our cooperative outreach agreement from the NN/LM PSR. Our main goal is to improve health literacy and expand access to reliable health information for all by providing open public sessions, consultations, and collaborations with community groups interested in increasing the health and well-being of Arizona residents. (more…)
Express Outreach Award Highlights: Building an Environmental Health Information Program, A Collaboration Between Charles R. Drew University (CDU) Pipeline and the CDU Health Sciences Library
by Joshua Shulman, MSIS, Emerging Technology Librarian; Zebib Yemane, B.S., Library Aide; and Darlene Parker-Kelly, MSLS, Director
Charles R. Drew University of Medicine and Science
Health Sciences Library
Los Angeles, CA
The Charles R. Drew University Health Sciences Library received NN/LM PSR Express Outreach Award funding in 2015-16 to conduct a project promoting the value and awareness of National Library of Medicine health information resources focusing on environmental health. The University has a robust Pipeline program and the project was implemented in collaboration with community partners. The foremost objective was to introduce selected National Library of Medicine resources to students (K-12 and college), teachers (K-12 and college), parents and community members. A planning committee was established, composed of staff persons from the CDU Pipeline program, faculty from the Masters of Public Health program, a CDU researcher, librarians/library staff and the Library Director. Several events were planned which included contacting external members of the community, including the Principal at Compton Early College Program, the coordinator of the King/Drew Magnet High School College Bound Program, and Congresswomen Janice Hahn’s office. While the initial program was designed primarily for K-12 students and Pipeline students, the external partners recommended additional outreach activities to introduce and promote the use of National Library of Medicine resources at external events. (more…)
Express Outreach Award Highlights: Finding Reliable Health Information Online: Trusted Sources & MedlinePlus
by Mira Geffner, Librarian
Bay Area Cancer Connections
Medical Information Services
Palo Alto, CA
Bay Area Cancer Connections offers information and support to people touched by breast and ovarian cancer. Our comprehensive lending library, educational brochures, and medical information specialist service are integral to the organization’s work – helping patients and loved ones to find accurate medical information that can guide their care.
Through the project Finding Reliable Health Information Online, funded by the NN/LM PSR Express Outreach Awards program, we sought to increase health information literacy and awareness of MedlinePlus among members of the breast and ovarian cancer communities, minority healthcare trainees, and members of minority communities. We did this through a series of health information literacy training sessions and outreach exhibits. Working collaboratively with partner organizations, we delivered an educational presentation at a public library and at a community non-profit agency that provides vocational training for healthcare workers. We also offered this session as an in-service training for Bay Area Cancer Connections Helpline volunteers, and for our clients and members of the public. Through lecture, exercises, and discussion, participants learned how to critically evaluate health information and to use MedlinePlus as their go-to site for discovering quality health information. Health information literacy and MedlinePlus awareness also became a component of our regular outreach calendar.
In numeric terms, we planned six outreach exhibits and completed more than 20, reaching more individuals than we had hoped. We also completed the four educational events we had proposed. The most rewarding outcomes we saw were in the organizational relationships we developed and deepened over the course of the project. Internally, this project helped to strengthen bonds between the Bay Area Cancer Connections library and our Marketing and Volunteer Resources departments, as we collaborated on outreach work. We also formed a new external partnership with the Mountain View Public Library, our organization’s first public library partnership and one on which we hope to build.
Getting to know the staff and resources at our RML was invaluable as well, and we are confident that the relationships we have developed in the course of this project will be helpful as we plan our health information literacy and outreach work for the future. Funding from this project allowed two staff members to attend a PubMed for Trainers class, which has boosted our research skills.
Although we designed this project with an understanding that MedlinePlus and health information literacy instruction are important, it was striking to see the extent of the need. Most training session participants were unfamiliar with MedlinePlus prior to the session; those who had used the site had used only a small subset of its features and were grateful to learn more. The project staff noted that it would have been beneficial to vary the pace of our educational sessions more to suit the information literacy level of our audiences. And organizationally, we believe we could have done more to promote off-site events in-house, and better clarified mutual expectations with our project partners. Our award period has ended, but our outreach and MedlinePlus promotion continue, and we are looking forward to building on this project in the future!
The National Library of Medicine (NLM) announced the new NLM Learning Resources Database, making it easy to find educational resources for NLM products and services. These materials include videos, tutorials, and handouts on products such as PubMed, ClinicalTrials.gov, Unified Medical Language System, and many more. Now you can find resources using one interface rather than searching different areas of the NLM Web site. An API is also available to auto-populate NLM learning resources on your Web site.
The database currently holds all of the resources previously listed on the former Distance Education Resources Web page. There is a permanent redirect from this page to the NLM Learning Resources Database. Additional resources are being added on an ongoing basis. (more…)
The Medical Library Association’s educational webcast, The Consumer Health Library: A Site for Service, Education, and Hope, held on April 26, 2016, was a success! (more…)
EnviRN-Evidence: New Free Online Learning Resource for Nurses Interested in Environmental Health Evidence
by Claire Sharifi, Reference Librarian
Gleeson Library | Geschke Learning Center
University of San Francisco
San Francisco, CA
With support from the NN/LM PSR Express Outreach Awards program, an interdisciplinary team from the University of San Francisco has created EnviRN-Evidence, a new freely accessible online learning program which introduces nurses, nursing students, nursing faculty, and any other interested parties to important environmental health topics. This resource also includes instruction on how to use the National Library of Medicine’s TOXNET databases to find authoritative environmental health evidence and patient education resources. (more…)
In January of 2015 NIH Director Francis Collins, MD, formed a working group of the Advisory Committee to the NIH Director (ACD) for the purpose of reviewing the programs of the NLM and making recommendations for a vision for the library that would ensure its continued role as an international leader in biomedical and health information. In carrying out its charge, the working group issued a Request for Information (RFI) soliciting public input regarding NLM. The RFI was active from February 13 to March 13, 2015, with 650 respondents providing feedback. At NLM’s September 17, 2015, Board of Regents meeting, Dr. Barbara Rapp, Chief, Office of Planning and Analysis, summarized the responses to the NIH RFI. She found that comments were submitted from across the broad range of NLM users, including medical librarians; researchers in biomedicine, biomedical informatics and computational biology; clinical, public health, and emergency response practitioners; historians; health information technology developers; journal publishers; and educators. (more…)