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Patient-Centered Outcomes Research Institute (PCORI) Seeks Input

The Patient-Centered Outcomes Research Institute (PCORI) has just released for public comment a first draft of its National Priorities for Research and Research Agenda, which will be used to guide funding announcements for comparative clinical effectiveness research, that will give patients and those who care for them the ability to make better-informed health decisions. The public comment period will remain open until 11:59 p.m. EST on March 15, 2012. PCORI encourages individuals to provide comments through its website, but will also accept input by mail. Responses received through the website will be displayed for public viewing. Feedback will be used to revise the priorities and agenda before a final version of each is adopted by PCORI’s Board of Governors.

The draft National Priorities for Research identifies five areas where comparative effectiveness research is needed to support decision-making; including assessment of options for prevention, diagnosis, and treatment; improving health care systems; communication and dissemination research; addressing disparities; and accelerating patient-centered outcomes research and methodological research. These areas encompass the patient-centered research that PCORI intends to fund and are inclusive of all diseases and health conditions. PCORI’s draft Research Agenda outlines more specific areas of research for each of the five priorities. PCORI will conduct additional forums to obtain and incorporate more public feedback on the draft national priorities for research and research agenda. These outreach efforts will include focus groups; involving patients, caregivers and clinicians, as well as a National Patient and Stakeholder Dialogue on February 27, 2012, at the National Press Club in Washington, D.C. The forum will be webcast and individuals will be able to participate remotely through a teleconference, with prior registration. PCORI will issue its first funding announcements in May, 2012.

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