Access to Electronic Health Information: Design and Implementation of Web-based Video Library
The complete name of the project is Design and Implementation of Wed-based Video Library of Neuromuscular Channelopathies. This project targets the Specific Interests of: Primary Care Physicians who have a limited knowledge of, or access to information specific to the diagnosis and care of individuals suffering from Periodic Paralysis and Non-dystrophic Myotonias, and members of the Clinical Research Community focusing on work associated with the Periodic Paralyses and Non-dystrophic Myotonias. In addition, it serves the members of the public including patients and family members or other caretakers or interested parties. General Objectives: The promotion of improved information access mechanisms for the rare disease community. To encourage and model innovative information systems for special medical needs. To identify and make accessible the products and services of NLM and the NN/LM to the still underserved community of rare disease. To improve access to health information for both health professionals and health consumers without adequate access to library and information services.