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Outreach 172 - For the Public Good: Connecting Research and Community

The program is to build awareness about the importance of how participating in clinical research studies can bring about better therapies for diseases. We will briefly outline the research process, and then describe how participatory research is changing how research is done – doing research with, rather than to, research subjects. We will briefly discuss how data science and the National Institutes of Health’s All of Us precision medicine research program are examples of newer approaches to include rural, underrepresented, or ignored populations in the community in clinical research studies. A recent program sponsored by Augusta University about Henrietta Lacks was well received and attended so there is local interest in medical research topics. A larger amount of time will be spent demonstrating how to find disease and drug information in MedlinePlus, and then to a lesser extent, how ClinicalTrials.gov can locate studies and how PubMed Health seeks to inform about the effectiveness of therapies. This program will be coordinated with Federally Qualified Health Centers and public libraries located in urban, suburban, and rural settings as either a standalone program or part of other public outreach events. Participation in the annual Greater Augusta Healthcare Network meeting and symposium will bring the precision research message of All of Us to FQHCs, hospitals, and public health leaders in the Augusta region. Equipment will be needed to present the program and also for participating FQHCs and libraries to showcase the National Library of Medicine databases to the public.
Identify any specific population(s) this project will serve: 
Medically Underserved Areas/Populations
Rural
African Americans or Black
Identify roles of participants this project will serve: 
General public
Project Lead:
Peter C Shipman
Funding Source: 
SEA
Project Funding:
Federal Fiscal Year: 
2018
Funding Amount: 
$10382
Funding Period:
May 1, 2018 to Apr 30, 2019
Project Status:
Completed