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Ethical Considerations of Data: A Curriculum for Health Sciences Librarians

As librarians and researchers alike grapple with new technologies and methodologies for collecting, analyzing, and disseminating data, they must also grapple with corresponding ethical issues. In order to assist librarians with these concerns, we proposed to create educational materials to aid in the recognition, analysis, and solution of ethical issues, including but not limited to ethical data visualization, ethics related to data sharing, and ethical issues for machine learning methodologies. The curriculum will focus on some of the issues that health sciences librarians face, particularly regarding human subjects and patient data, but it will be generalizable to the larger library community. The curriculum will not aim to be prescriptive, instead it will give participants the tools to approach their unique data ethics problems. Through this grant, we aim to build and pilot a curriculum of synchronous courses consisting of three one-hour classes. Following the pilot, we will evaluate the materials with the assistance of participants to further refine the curriculum to meet participant needs. We hope to help build resources and foster community with people who are interested in data, ethics, and biomedical research.

Identify any specific population(s) this project will serve: 
Adults
International
Medically Underserved Areas/Populations
Rural
Suburban
Urban
African Americans or Black
Alaska Natives
American Indian
Asian
Latino or Hispanic
Native Hawaiians
Pacific Islanders
Identify roles of participants this project will serve: 
Library or information professional
Project Lead:
Nicole Contaxis
Funding Source: 
MAR
Project Funding:
Federal Fiscal Year: 
2020
Funding Amount: 
$36351
Funding Period:
Jan 14, 2021 to Apr 30, 2021
Project Status:
In Progress