English Arabic Chinese (Simplified) French Hindi Japanese Korean Persian Portuguese Russian Spanish

Educating African American Nurses About Key Topics in Precision Medicine Using National Library of Medicine Resources

African American nurses are well-positioned to educate themselves and their communities about the importance of African American community engagement in precision medicine research like the National Institute of Health (NIH) All of Us research program. This project involves an educational webinar (via Zoom) that will present to members of the National Black Nurses Association (NBNA) a list of publicly available National Library of Medicine (NLM) resources that the members can use to learn more about an under-recognized and underdiagnosed, yet fatal, genetic condition that disproportionately affect African Americans (transthyretin-related hereditary cardiac amyloidosis). NBNA members working within and outside of academia have expressed that they want to know more 1) about the importance of African American community engagement in precision medicine, 2) how precision medicine research can address health care disparities, and 3) educational library tools they can use to learn more and educate others about genomics and precision medicine. Thus, we strongly believe that our educational program, along with a program evaluation survey that will be reused from our prior All of Us Research Program engagement, is necessary to help empower the African American nursing community who may not know or be aware of the availability of NLM tools, help them learn more about how precision medicine has or can affect healthcare and health outcomes among the African American population, and further evaluate and determine ways to improve our local chapter education and engagement programs.
Identify any specific population(s) this project will serve: 
Medically Underserved Areas/Populations
All of Us
African Americans or Black
Latino or Hispanic
Identify roles of participants this project will serve: 
Community based organization staff
Educator, college & post-grad
Health care provider
Project Lead:
Lauren Edgar
Funding Source: 
Project Funding:
Federal Fiscal Year: 
Funding Amount: 
Funding Period:
May 1, 2020 to Apr 30, 2021
Project Status: