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Archive for the ‘Health Literacy/Consumer Health’ Category

Rare Disease Day is February 28

Wednesday, February 22nd, 2017

Rare Disease Day PosterMore than 6,500 rare diseases exists at this time and less than 5 percent have a treatment. In the United States a rare disease is one that affects less than 200,000 people. However, roughly 25 to 30 million Americans are affected by a rare disease. Many of these diseases:

  • May involve chronic illness, disability, and often premature death
  • Often have no treatment or not very effective treatment
  • Are frequently not diagnosed correctly
  • Are often very complex
  • Are often caused by changes in genes

The theme for this year’s Rare Disease Day is “Research” with the slogan, “With research, possibilities are limitless”.  Research is key to find treatments and possible cures as well as improving the care of those with a rare disease. The philosophy of NIH’s National Center for Advancing Translational Science (NCATS) is to work closely with families, caregivers, advocates and patients in order to make greater advancements in rare disease research. February 28 is a time to recognize the advancements being made, bring awareness, share personal stories, and encourage dialogue among researchers, advocates, families and others.

Learn more about Rare Disease Day and how you and your organization can get involved at http://www.rarediseaseday.org/

Learn more about rare diseases through a number of websites:

Next PNR Rendezvous is February 15 (this session is cancelled)

Thursday, February 9th, 2017

We apologize, but this webinar session is cancelled due to unforeseen circumstances for speaker.

When: Wednesday February 15, 1:00pm PT, Noon Alaska Time, 2:00pm Mountain Time

Session Title: “Library, Family, Primary Care and Community Collaboration for Young Children”

Learn how to join the webinar at  https://nnlm.gov/classes/pnr-rendezvous

Join us for the next PNR Rendezvous webinar session where Kate Orville who is the Co-director of the Washington State Medical Home Partnerships Project for Children and Youth with Special Health Care Needs (MHPP) housed at the University of Washington’s Center on Human Development and Disability.

Learn how primary health care providers and clinics are changing to become “patient-centered medical homes” and the opportunities this opens up for  libraries, public health, early learning and other community partners to become part of the bigger “medical home neighborhood.” Libraries support children’s healthy development through typical story-time offerings but also by collaborating with local initiatives to promote developmental milestones awareness, health and developmental screenings, and connecting parents with reliable health information and linkages with community services.  Using examples from Washington State and nationally, the presenter will share resources and strategies available to libraries anywhere to improve the health and well-being of young children and families in your community.  Resources you can access will include, the CDC’s Learn the Signs,  Act Early; Birth to Five: Watch Me Thrive; and Reach Out and Read and its 5,500 medical clinics encouraging early literacy. Find out where to refer families locally with a variety of concerns.  Bring your questions and experience to share!

American Heart Month and Black History Month

Wednesday, February 8th, 2017

Currently the Seattle Art Museum is hosting the exhibition, Jacob Lawrence: The Migration Series. This celebrated exhibit, which brings all 60 of Lawrence’s paintings from this series together, is collectively owned by both The Phillips Collection and the Museum of Modern Art in New York City. It marks Lawrence’s 100th birthday who also held a tenured professor position at the University of Washington in 1971 and retired in 1986.

Lawrence’s iconic collection, utilizes both images and words to chronicle the exodus from the rural South to the industrialized North between the first and second World Wars. Many African Americans had little or nothing and continually faced violent racism and deplorable conditions as well as lacking the privileges and opportunities of Southern whites. However, the North did not always offer the promises given but for many, despite the hardships, found a better life. Lawrence himself, was one of those who migrated with his parents during World War I.

Jacob Lawrence: The Migration Series

Jacob Lawrence: The Migration Series

This powerful exhibit reminds us of the many human migrations in this country as well as across the globe. Some migrate because of natural disasters, violence, poverty, and many have migrated by force. Migrations have been occurring for as long as humans have existed and many of us today are migrants or immigrants ourselves. The social, economic, and historical effects of this recent migration of African Americans to the North is complex and still yet to be fully understood. (more…)

Women’s Health and Health for All

Monday, January 23rd, 2017

womens_marchWhat an amazing day January 21, 2017 was with a Women’s March in every state in the country and to even have other countries join in solidarity with their own marches! Having a day to remember women and men as well as those who are disenfranchised, under-represented and under-served and to recognize the importance of the voices of many is one of the reasons that made this march significant. The health inequities and health disparities experienced by many in this country call us to constantly work toward what is right. The National Library of Medicine resources are authoritative and freely available. MedlinePlus is available in English and Spanish as well as some information in other languages. It also includes information that is easy-to-read. You’ll find information about women’s health, LGBT health, rural health, various disabilities,  as well as how to prepare and cope with disasters and other safety tips. Health Reach is the resource for health information in other languages for patients and healthcare consumers as well as cultural information for health care providers.

Also, it’s not too late to enroll in or change Marketplace health insurance plans for 2017. Now is the time to enroll if you haven’t already as January 31 is the deadline! Go to Healthcare.gov and sign up!

Help narrow the gap in health disparities by providing access to health information through your libraries, community organizations and health practice. Contact the NN/LM PNR for more information.

2017 Comics and Medicine Conference

Tuesday, January 10th, 2017

comics-medicine

The 2017 Comics & Medicine Conference, to be held in Seattle June 15-17, is accepting proposals, due January 30. The conference is free to attend and will take place at the Seattle Public Library in downtown Seattle.

The conference theme is Access Points. Participants are invited to consider accessibility as a crucial aspect linking comics and health. Comics — a medium broadly characterized as “accessible” because of its ability to reach diverse audiences and to provide a platform for marginalized voices — can make visible and reflect upon the urgent subject of health access. Comics can explore the issue of accessibility in past and current practices of health care and can point to imaginative solutions for extending and expanding health care.

Submissions focusing on health, medicine, and comics in any form (e.g. graphic novels and memoir, comic strips, manga, web comics) are welcomed, including those that focus on the following topics:

  • Comics depictions of disability
  • Visual depictions of systemic and structural inequities in health care and social determinants of health
  • Use of comics to provide health education for or about under-served communities
  • Comics representations of physical or geographical spaces related to the delivery of medical care
  • Collaborative comics projects that create access points between patients, healthcare providers, community organizations, and/or institutional stakeholders
  • Use of comics to access new understandings of bodily/mental states
  • Therapeutic uses of comics and cartooning
  • Use of comics to encourage conversations about accessible spaces/events
  • Innovative uses of comics to access diverse health experiences
  • Use of comics to visualize ideological and/or political boundaries and access to medical therapies
  • Comics and environmental health
  • Ethical implications of creating comics for patients, physicians, or institutions
  • Trends in, histories of, or the use of comics in health care and public health

Lightning talks, presentations, panel discussion and working groups and workshops are the presentation formats. See more information at their website.

 

National Influenza Vaccination Week

Thursday, December 1st, 2016

What is the best way to reduce the risk of the flu? That’s right, getting the flu vaccine is the easiest and best way to prevent the flu and its complications. According to the Centers for Disease Control and Prevention (CDC) everyone 6 months and older should receive an annual flu shot. Some people are at greater risk of flu related complications than others. This includes children younger than age 5 and adults 65 and older. Those who have certain medical conditions such as heart disease, liver disease, and blood disorders. Go to the CDC to see the full list of ages and health issues of those who are at increased risks.

Of course there are those who should not receive the flu shot or may be eligible to receive an alternative protection option. These include children younger than 6 months and those who are severely allergic to ingredients in the vaccine. A physician should be consulted for those who have had Guillain-Barre Syndrome, may be allergic to eggs and other ingredients in the vaccine, and those who are feeling ill. The CDC has complete information regarding those who should not receive the flu shot or consider not having it. (more…)