SEAside Webinar: Superpatients Patients Who Extended Science When All Other Options Were Gone
There is a frontier at the edge of knowledge. At that frontier we are constantly building outward. In the past, a lifetime ago, only scientists and academics could extend it, because doing so requires access to knowledge and access to tools. Today, both knowledge and tools are available to many, in ways that simply weren’t possible before the age of “e.” Predictably, when that became possible, activated and motivated people with sickness in the family started adding to what’s known at the frontier.
In his forthcoming book Superpatients, Dave deBronkart, cancer survivor and co-founder of the Society for Participatory Medicine, tells stories of patients who have (literally) extended science when all other options were gone. What do these "superpatients" need and want to achieve their goals in health and treatment? Additionally, what does it mean for the future of medical librarians?