The National Network of Libraries of Medicine is excited to announce the All of Us Research Program official launch on Sunday, May 6, 2018. This national event will be held in seven communities throughout the United States and will be broadcast via this website and on Facebook Live.
The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. The programs goals are to develop a more effective way to treat diseases and to provide individualized healthcare. It considers individual differences in lifestyle, environment and biology. This research program is a key element of the NIH Precision Medicine Initiative.
Additional information about this Program is available through the All of Us Research Program website. Program information is available to download in English and Spanish. NNLM Network Members can learn how they can get involved at a webinar on April 30th at 2pm Eastern Time.
For more information or if you have questions please reach out to the NER All of Us Research Program Coordinator, Catherine Martin – Catherine.Martin@umassmed.edu .
Any guesses on what the 2017 “Word of the Year” was?
It was actually a term, not a word. The term was “Fake news.”
Just 18 months ago this term was not familiar to most of us. However, “fake news” has become a very important topic to all of us. According to a recent article written by The Telegraph (April 7, 2018) “fake news” is considered “one of the greatest threats to democracy, free debate and Western order.”
This blog post is not about current events or politics, however, it is about the importance of knowing how to evaluate the credibility of online information. Our focus here at the NER is health and medical information. NLM offers some useful tools that you can use to evaluate online health information. Although health information is the theme of this article, the information presented can be applied as you evaluate other online information, regardless of the subject.
MedlinePlus offers a valuable tutorial about how to evaluate online health information. . You can click on the link https://medlineplus.gov/evaluatinghealthinformation.htmlor you can use the search box at the MedlinePlus home page https://medlineplus.gov , just type “Evaluating Online Health Information” in the search box.
MedlinePlus Guide to Healthy Web Surfing
MedlinePlus provides a detailed guide to evaluate the credibility of a web site https://medlineplus.gov/healthywebsurfing.html.
The key points from the guide are:
- Consider the source — Use recognized authorities –
Know who is responsible for the content. This information is often on the “about us” page, or it may be under the organization’s mission statement, or part of the annual report.
- Focus on quality–All web sites are not created equal
Does the site have an editorial board? Is the information reviewed before it is posted?
- Be a cyberskeptic–Quackery abounds on the Web
Does the site make health claims that seem too good to be true? Does the information use deliberately obscure, “scientific” sounding language? Does it promise quick, dramatic, miraculous results? Is this the only site making these claims?
- Look for the evidence–Rely on medical research, not opinion
Does the site identify the author? Does it rely on testimonials?
- Check for currency–Look for the latest information
Is the information current? Look for dates on documents.
- Beware of bias–What is the purpose? Who is providing the funding?
Who pays for the site?
- Protect your privacy–Health information should be confidential
Trust It or Trash It Tool
I find that The Trust It or Trash tool (http://www.trustortrash.org/.) is very helpful because I can print out the .pdf file and have beside me as I read and evaluate the credibility of information.
In addition to providing several useful tools to help you become a critical consumer of online health information, here are some additional reasons why you should consider getting your health information from MedlinePlus:
- Does not include any advertising.
- Does not ask for your personal information in order to use the website.
- Provides easy search access, use either the search box or search by health topic.
- Presents information in a variety of formats, such as videos and podcasts.
- Provides information written by experts, updated regularly and is peer reviewed.
On the day that the Massachusetts Cannabis Control Commission began accepting applications for Registered Marijuana Dispensaries, UMass Amherst hosted a symposium entitled Marijuana Legalized: Research, Practice and Policy Considerations. The School of Public Health and Health Sciences invited Darrin Grondel, Director of Washington (State) Traffic Safety Commission, to speak about the impacts of legalized recreational marijuana on driving. Washington State legalized recreational marijuana in 2014. Grondel’s message is that drugged driving is difficult to manage. Standard field sobriety tests are inadequate, and warrants for blood draws are time-consuming. Marijuana products are incredibly diverse, and the physiological consequences of using those products is not clearly understood. Social acceptance of driving-while-high is troubling. Public health advocates need to dispute the idea that stoned drivers are safe drivers.
What does the research say about marijuana and driving? Read the Marijuana Research Reports from the National Institute on Drug Abuse.
Check the National Highway Traffic Safety Administration for press releases on the impact of impaired driving.
To learn more about the Advanced Roadside Impaired Driving Enforcement Program (ARIDE), the Drug Recognition Expert Program and other training programs for police officers, check the Massachusetts Highway Safety Division.
For fantastic resources to share with your community (slide decks, downloadable infographs) take a look at the Governors Highway Safety Association’s guide on Drug-Impaired Driving.
Massachusetts will allow sales of recreational marijuana starting on July 1, 2018. New England will be watching as the Bay State makes the first move in this direction.
Are you interested in improving the consumer health information available on Wikipedia? Do you want to utilize your librarian research skills towards making Wikipedia a better, evidence-based resource? Have you always wanted to participate in an edit-a-thon? Join the National Network of Libraries of Medicine on April 17th as we add citations to existing Wikipedia articles on rare diseases! We’ll be working on those diseases listed by the Genetic and Rare Disease Information Center, using trusted National Library of Medicine resources like Genetics Home Reference, MedlinePlus, and PubMed.
If you’re new to adding citations, NNLM will be hosting a webinar with Dr. James Heilman, a physician and active WikiProject Medicine editor. Dr. Heilman will give attendees an overview of the importance of Wikipedia, and will demo how to add a citation. NNLM’s webinar with Dr. Heilman is scheduled for 2-3 pm ET on Thursday, March 29th. Participants are encouraged to register for the training even if they can’t attend, as all registered participants will receive a recording of the webinar. Please note: you must create a Wikipedia user account prior to the event to be able to participate.
NNLM staff from across the region will be available Tuesday, April 17th from 9 am ET to 9 pm ET to support you as you add your citations. Follow along with the fun on Twitter–check for hashtag #citeNLM2018!
Dodging snowflakes, I made my way to the Philadelphia Convention Center on the morning of Tuesday, March 20. That day, Bobbi Newman (NNLM GMR), Monique Mason (Akron-Summit County (OH) Public Library) and Carolyn Martin (NNLM PNR), and I would lead 75 public librarians through the basics of health and wellness reference services, and explore ideas for health-related programming and outreach. Stand Up for Health was one of six preconferences scheduled before the opening of the Public Library Association (PLA) 2018 Conference.
We began crafting our preconference in autumn, taking notes from NNLM’s Health and Wellness @ the Library class. As we live in different regions, we met virtually to bounce around ideas and concerns. After the holidays, we started meeting weekly to allocate topics and discuss logistics. We arrived in Philadelphia ready to greet a room full of enthusiastic participants.
The purpose of NNLM’s strategic focus on public libraries is to develop long-term partnerships and collaborations that bring NLM’s information resources to the community.~ https://nnlm.gov/public-libraries
I volunteered to open the session with an introduction to Consumer Health. Confident that I was in among people who support reading aloud, I recited the poem This is Bad Enough by Elspeth Murray and read an excerpt from Suzanne Strempek Shea’s memoir Songs from a Lead-Lined Room. I worked in two pair-and-share activities and one table discussion in my allotted hour. After the coffee break, Monique took the lead. Her segment focused on the health information reference interview. As a currently practicing public librarian, she spoke from experience.
The hottest topic cropped up after lunch. When Monique gave an overview of collection development policies, discussions bubbled up about evidence-based materials vs. popular (but not science-based) titles. Should libraries collect from sources like Dr. Oz, Dr. Mercola, Gwenyth Paltrow and Tom Brady? If libraries are spending public dollars, shouldn’t they respond to public requests for these titles? How do librarians distinguish between these selections and science-based resources?
Ultimately, there was no resolution of this sticky subject.
We shifted gears with Carolyn’s presentation on MedlinePlus and other websites from the National Library of Medicine and the National Institutes of Health. I give presentations on these websites as part of my job, and I appreciated Carolyn’s style. I hadn’t thought to highlight NIH websites independently of their inclusion within MedlinePlus.
As we took our last break, Bobbi asked participants to jot down successes and struggles with offering health-related public library programs. These notes were put up on flipcharts. Bobbi selected themes from the notes, and created short breakout sessions. Themes included: outreach to teens or seniors; programming topics on healthy eating or sexual health; and developing community partnerships or raising awareness of the public library as a source of health information.
Emily Plagman joined us in the late afternoon for an overview of PLA’s Project Outcome. This is a very cool assessment tool, freely available to public libraries.
Bobbi wrapped up the day by outlining the next steps. Participants would submit a take-home assignment on their library’s health collections. At that point, they will fill out the standard NNLM evaluation of the class. I am curious to hear the results.
This post was written by the newest member of our NER Team – Karen Coghlan. Karen is NER’s new Education and Outreach Coordinator.
Have you ever wondered how to present data in a fun, engaging way that tells a story? Or been frustrated when you went on a webpage that you were on before only to find it is moved or no longer available? Then the 10th Annual University of Massachusetts and New England Area Librarian e-Science Symposium is for you. On Thursday, April 5th, 2018, from 8:30AM to 3:30PM we are hosting the e-Science Symposium at the University of Massachusetts Medical School, 55 Lake Avenue North, Worcester, MA 01655. The purpose of this event is to initiate and maintain a regional dialogue on e-Science, identify ways libraries can better support networked research, and ways that libraries can deliver relevant and effective research data management services at their institutions. The theme of this year’s Symposium is Libraries in Data Science: Past and Future. You can also see work from all previous symposia here: http://escholarship.umassmed.edu/esciencesymposium/.
This year’s keynote speaker is Micaela Parker, PhD, the Executive Director of the eScience Institute. The goal of the University of Washington eScience Institute, is to engage researchers across disciplines in developing and applying advanced computational methods and tools and applying it to real-world problems. This will be followed with a panel presentation and breakout sessions where participants can engage in hands on data visualization workshops, learn about issues setting up data repositories, data outreach strategies, and the amazing data recovery efforts to save at risk webpages and data sets before websites are taken down after leadership changes. This is a great opportunity to network, have a relaxing lunch, gain a few new skills and learn about recent developments in e-science librarianship.
The symposium is free, but advance registration is required for all presenters and attendees. Register for the 2018 E- Science Symposium at this link: http://www.surveygizmo.com/s3/4241570/10th-Annual-E-Science-Symposium-2018
We hope to see you there!
The NNLM NER is very excited to welcome Sarah Levin-Lederer. She joins the NER with eight years of professional public health experience including health outreach and education, and public health emergency planning.
Sarah received her Masters in Public Health in 2012 from Temple University (Philadelphia, PA) with a focus on health communication and using social media for public health outreach.
Most recently, Sarah was the Community Preparedness Health Information Specialist with the Philadelphia Department of Public Health. For her three years in this position, Sarah worked with refugee and immigrant serving organizations, homeless serving organizations and the Free Library of Philadelphia to connect communities that are often hard to reach with health information and resources.
You can reach Sarah at 508-856-5910 or Sarah.LevinLederer@umassmed.edu
On Wed, March 28, NNLM NER is collaborating with Action for Boston Community Development (ABCD) and Team Maureen for a community-based training on finding quality sexual health information on the internet.
The Maureen E. Russo Nonprofit Organization (Team Maureen) was founded in memory of Maureen E. Russo, who passed away from cervical cancer at the age of 37. Maureen’s family and friends founded Team Maureen for a fundraising event in 2007. That effort lead to the creation of a non-profit organization dedicated to raising awareness of the human papillomavirus (HPV) and its connection to cancer. In 2017, NNLM NER funded Team Maureen to conduct HPV educational events for dental professionals and for high school students on Cape Cod.
ABCD is an anti-poverty and community development organization founded in 1961, just prior to the federal Economic Opportunity Act of 1964. The ABCD Health Services Department manages public health promotion and disease prevention programs, including Title X family planning and related preventive health services. ABCD conducts their work at neighborhood sites throughout Boston, and in Cambridge, Somerville and Everett. In conversation with NNLM NER, ABCD identified the high incidence of chlamydia and other STIs as a local concern.Sexual Health Online!
Through our Focused Outreach Initiative, NNLM NER seeks to provide training and funding support to communities that are medically underserved, facing health care access issues, or economically disadvantaged. We are working with Team Maureen and ABCD to deliver a program to those who work with Boston area youth. Our intended audience includes youth program leaders, school health educators, teen librarians, health care providers, community health workers, parents and grandparents. The goal of the upcoming event is to improve the knowledge and comfort levels of attendees in guiding others toward quality sexual health information. We are offering two sessions: a morning session (10:00am-1:00pm) for those who are able to attend during the workday; and an evening session (5:30-8:00pm) for those who are available in the evenings.
We are still accepting registrations: https://www.eventbrite.com/e/sexual-health-online-tickets-42893634014
Date: Wed, March 28
Time: 10:00am-1:00pm (morning session); 5:30-8:00pm (evening session)
Location: Thelma Burns Building, 575 Warren St., Dorcester, MA 02121 Map
This event is FREE. Lunch/dinner will be provided. Please contact us with any questions.
The following blog post is written by one of our newest network members, Saba Shahid, the Chief Smiling Officer of The Art Cart, a creativity and movement program for people living with Parkinson’s Disease (PD).
As defined by MedlinePlus, PD is a type of movement disorder and occurs when nerve cells in the brain do not produce enough of a brain chemical called dopamine. Dopamine causes rigidity in several parts of the body and causes abnormal movement. Did you know the “inability to smile” also known as facial masking or decreased range of facial expression is a symptom of PD?
The Art Cart has developed a series of Smile Through Art Workshops which focus on combating several symptoms of PD including depression, loss of fine motor control, tremors, Micrographia. Figure 1 depicts how depression is being combated and mood is being enhanced by attending our workshops. Through voluntary surveys, participants living with PD are asked how they were feeling before coming to our workshop and how they are feeling after completing the Smile Through Art Workshop. Mood is shown to enhance positively in all cases.
Figure 1: Parkinson’s Mood Analysis Survey Results
The Art Cart is an organization located in Worcester, Massachusetts and provides programming throughout the state of Massachusetts and Rhode Island. Through grants offered by The American Parkinson Disease Association Massachusetts and Rhode Island Chapter, programming is free of cost to participants living with PD and their care partners.
Let’s Combat Micrographia, is an interactive workbook written by Saba Shahid that focuses on improving small, cramped handwriting that is found in many people living with PD. The Art Cart also offers Let’s Combat Micrographia workshops to help improve handwriting. Join us March 22, 2018 for a workshop information session at UMASS Memorial Hospital located in Worcester, MA.
More information on workshop dates, times, and how to sign up can be found online at www.smilethroughart.com.
On Jan 25, 2018, NNLM NER hosted a webinar on the Business of Healthcare. This webinar is part of an intermittent series aimed at addressing the professional development needs of hospital librarians in the New England Region. Topics are determined by NNLM NER’s Hospital Libraries Advisory Group (HLAG). Example topics include: DOCLINE Update; Advanced PubMed; Business of Healthcare; and How-To Create a Virtual Library. Each webinar is one-hour long.
Although our webinars are designed to meet the needs of New England, we attract participants nationwide. To open the Business of Healthcare webinar, we explored the biggest financial stressors for hospitals. The most talked about stressor is inadequate compensation from Medicaid. As Andy Hickner points out in his recent Op-Ed piece in Medical Library Association (MLA) News, uncompensated care is devastating for hospital budgets. To reduce costs, hospital administrators consolidate and/or eliminate services. In New England, we know that hospital libraries are closing at a rapid rate.
Note: you may need to log into your MLA account to read the Op-Ed.
New England hospital librarians participated in a breakout session at the most recent meeting of the North Atlantic Health Sciences Libraries. Experienced librarians shared how they stay relevant to their organizations. Maureen Dunn and Gayle Tudisco facilitated the discussion, and reported out on the results during the Business of Healthcare webinar.
In these data-driven times, we were eager to hear from Alicia Lillich, Technology Coordinator for the MidContinental Region (MCR). NNLM MCR is designing a project to measure the cost impact of the librarian on patient care. Alicia closed out the webinar by sharing her news about this a three-year project.
Please check out the YouTube recording of the webinar for details (see below).Going Virtual
Our next learning opportunity for NER hospital librarians is an in-person event at the University of Massachusetts Medical School. We still have some empty slots. For more information, go to the class listing: https://nnlm.gov/class/going-virtual-2018/8157
The following is the second in a series of blog posts written by NER funded grant recipients. Through these posts you can read about how NLM resources are promoting health in our New England communities.
This week’s blog post was written by Meaghan McCarthy, the Eureka! Program Manager from the Girls Inc. organization located in Worcester, Massachusetts. Meaghan writes about the healthy living after-school program implemented through a NNLM Community Engagement grant.
Girls Inc. of Worcester offers Healthy Living programming (July 2017 – March 2018) for 90 high school girls enrolled in Girls Inc. Eureka! (Girls Inc.’s capstone STEM – science, technology, engineering, and math – program) and 150 girls registered in Girls Inc.’s after school program. Girls Inc.’s multi-tiered Healthy Living Project aligns with NNLM’s mission to broaden access to and awareness of health information resources, with an emphasis of using those resources provided by NLM. The project will complement and enhance Girls Inc. Eureka! and Girls Inc. after school programs.
Girls Inc. Eureka! participants completing summer Externships at Girls Inc. (July 2017) utilized their training in PubMed, Medline Plus, and other NLM resources to create age-appropriate Healthy Living Curricula for girls in grades K-9. The curricula developed last summer is now being implemented during Girls Inc. after school programming from September 2017 through March of 2018. The curricula enhances the Girls Inc. National guidelines for physical fitness and nutrition.
Healthy Living activities include:
- Measuring Sugar
- Obesity in America
- Healthy Eating Throughout the Holidays
- Staying Motivated Means Staying Active
- Dental Hygiene
In March 2018, three Cohorts of Girls Inc. Eureka! participants (90 girls grades 8-10) will visit the UMass Medical School, Lamar Soutter Library, for tours, research and Internet Safety training.
Girls Inc. Eureka! program flyer. Eureka! 5-year STEM and Leadership program which includes programming partnered with NNLM.
Guest post by Alan Lampson, Lead, Frymoyer Community Health Resource Center, University of Vermont Medical Center
On June 21, NNLM NER kicked off a 4-part Community of Interest (COI) class on Community Health Engagement with an introductory session. We discussed what a COI is – a community of people who share a common interest or passion. We then defined what the purpose of this COI is – to provide a group learning experience in community assessment, outcomes-based planning, and data collection. The program was led by Margot Malachowski, Education and Outreach Coordinator for the National Network of Libraries of Medicine, New England Region.
Session One: Community Health Engagement
- Review COI definition
- Share your project ideas
- Describe community health engagement process, including “do you need IRB approval?”
- Q & A.
At this initial meeting there were presentations on three different types of projects. The first presentation was from Gayle Finkelstein of the University of Vermont Medical Center and the Northern New England Poison Control Center. Gayle talked about a population-based project, her poison prevention work with immigrants and new Americans. The second presentation was by Susan Halpin from NNLM and highlighted a problem-based project, the opioid abused epidemic. This project was called the Learning Curve and was an NNLM funded project. The third presentation was an idea for a technology-based project on Patient Generated Data by Margot. This was followed by a presentation on the guidelines for IRB approval of projects.
Session Two: Community Assessment
- Taking Inventory
- Example: Outreach to Boston-area Youth
- Evidence-Based Outreach
- What are your concerns?
In this webinar, Margot presented information on the whys and whats of community assessments. Margot discussed the process of taking inventory in outreach planning.
Margot then demonstrated each of the steps using a project for Outreach to Boston-area Youth. We reviewed sources for community assessment data, including government data sets, organizations such as the Pew Research Center as well as hospital community needs assessments (CHNAs).
Session Three: Outcomes-based Planning
- Checking in
- Innovation-Decision Process
- Logic Models
- Reality Check
- Process Evaluation
- Q & A
Session 3 began with a discussion on the Innovation-Decision Process.
Stage One: Knowledge – Community becomes aware of it
Stage Two: Persuasion – Community actively seeks information about it
Stage Three: Decision – Community decides to experiment with it
Stage Four: Implementation – Community uses it
Stage Five: Confirmation – Community becomes committed users
(Outreach Evaluation Resource Center, Planning and Evaluating Health Information Outreach Projects, Booklets One-Two-Three. Available for download at: https://nnlm.gov/neo/professional-development/guides)
We also explored logic models, a method to plan projects by identifying desired outcomes (short, medium and long term) what activities would lead to these outcomes and then what inputs or resources would be needed to carry out those activities. Logic models have the benefit of making it more likely that desired outcomes are measurable.
Session Four: Preparing Your Pitch with Data
- What’s in a Proposal?
- Examples of Eye-Catching Data
- Infographics Tools (Eugenia)
- Q & A
This session reviewed the components of a proposal and the presentation of data in both the proposal phase and the results phase. During this session Sharon Hawkes, Director of the Nahant (MA) Public Library, shared her needs assessment of her community. Eugenia Liu from the University of New Hampshire gave a demonstration on using Piktochart to present information. Piktochart is a free web based application that allows users to create infographics.
Session 4 is available to watch by going to this link.
If you would like to view earlier sessions or have any other questions please contact Margot Malachowski at Margot.Malachowski@umassmed.edu
This webinar series was a great opportunity to learn about the process of developing a community health project and hear ideas from other participants. Thank you to Margot Malachowski for presenting this series. For those of us who work in consumer health it is always important to look outside our organizations, assess the needs of the community, and plan projects to meet those needs.
For those who are ready to take their idea to the next phase Margot will be teaching “Grants and Proposal Writing”, February 15th at 2:00 PM. Registration link.
NER is happy to welcome our newest staff member, Karen Coghlan. Karen is a recent graduate from the University of Alabama Library Science School. Karen also holds a MS In Biology from Tufts University and JD from Villanova. Karen has worked as a STEM/Technology high school and middle school teacher and as a long-term substitute teacher for biology. Karen will be overseeing NER’s research data management program and representing NER on the RDM Working Group. Her email address is firstname.lastname@example.org and her direct line is 508-856-2223.
We look forward to soon sharing more about Karen and the great work she will contribute to the region.
The following is the first in a series of blog posts written by NER funded grant recipients. Through these posts we hope to share with you how NLM resources are helping those in need in New England.
This week’s blog post was written by Elyce Waksman, the Couples Teamwork Program Manager from the YWCA of Central Massachusetts . Elyce writes about The Couples Teamwork program developed in Worcester, Massachusetts that brings couples together to share information and resources as they navigate the physical, emotional, and financial aspects of a family coping with a chronic illness.
Facing a lifelong diagnosis with a partner or loved one can be daunting, but it doesn’t have to control you. With teamwork and a set of strategies for tackling life’s complex issues, you and your loved one can manage the illness and live strong, happy, and healthy lives together. That’s what YWCA Central Massachusetts Couples Teamwork Program participants learned in October and November of 2017. A group of couples facing various chronic illnesses came together every weekend to learn from experts, share their experiences with each other, build friendships, and set goals for a strong future. This program is open to all adults with a chronic illness and their caregiver (such as a partner, parent, sibling, or child.
On October 1, 2017, the group came together for the first time at Summit ElderCare® on Grafton Street in Worcester and set goals for themselves with the guidance of clinical psychologist Elizabeth T. Austin, Psy.D., who specializes in chronic disease management. Throughout the seven weeks, participants learned how to access accurate and reliable medical information online through resources from the National Network of Libraries of Medicine (NNLM). Austin led participants through a workshop on emotional balance, resilience, and healthy communication. Dietitian Jennifer Fournier helped participants experience mindful eating, taught them about the nutrition contents of common foods, and even provided some delicious (and nutritious!) recipes. With professionals Elizabeth Myska, P.C., and Patricia Altomare, Esq., participants had the opportunity to ask questions about their legal and financial concerns like healthcare, retirement, and estate planning. Personal trainer Stephanie Puentes worked with each couple to make individualized fitness plans that would suit each person’s needs. The program ended with a Wellness Resource Fair, connecting participants directly with local resources. Our participants raved about the wide range of information presented each week, as well as the benefits of sharing and learning from each other in this FREE program.
So how did this unique and comprehensive program come to be?
In 2015, a group of women in the YWCA community found that they had similar experiences and struggles in their caregiving relationships. This group of women and their spouses discovered the mutual benefits from sharing knowledge, asking questions, and just venting. But they had a lot of questions and concerns that they could not figure out on their own. Together they envisioned what has now become the Couples Teamwork Program, a seven-week series for individuals with chronic illnesses and their loved ones to learn from experts on the subjects that matter most to them, gain access to local and online resources, and support each other. In partnership with Fallon Health Summit ElderCare® and with funding from the National Network of Libraries of Medicine New England Region (NNLM NER), we have had the wonderful opportunity not only to make these women’s vision a reality, but to provide this program free of charge for members of the Greater Worcester community.
Another session of the Couples Teamwork Program is beginning March 3, and will continue through April 14, 2018, on Saturday mornings 10AM-12PM at either the YWCA, or at Summit Eldercare, both are located in Worcester. To register or for more information, please contact Elyse Waksman at email@example.com.
The following is a link to the promotional flyer for the next session of the Couples Teamwork program, please share this flyer with anyone who may be interested in learning more.
Hello New England,
In light of the buzz around the launch of NLM’s new exhibit, Graphic Medicine: Ill-Conceived & Well-Drawn, it seems like a good time to revisit our own Graphic Medicine Initiative here in the NER! Note that the traveling portion of the exhibit will make its way to our region this year, first from July 16th to August 25th in White River Junction, VT and second from September 10th to October 20th in Worcester, MA.
Our work in this exciting area began in late Fall 2016 by bringing me on as the Graphic Medicine Specialist and with outreach to other libraries doing work with comics and medicine, which continues to this day. This outreach led to the hosting of our Introduction to Graphic Medicine webinar, which provides a much needed introduction to the field and why it matters to use as librarians. More than 100 people from around the US attended live and it has been viewed more than 300 times as a recording since.
The webinar also served as a launch point for our highly successful Graphic Medicine Book Club Kit program. These kits are designed as a full-program – just add facilitator – that can be used in any environment, from public library to medical school classroom. Each kit includes six copies of a graphic novel on a particular medical topic, such as Sobriety: A Graphic Novel by Daniel Maurer, a discussion guide with adaptable questions, an explainer-comic on just what graphic novels are, and a selection of relevant health information from MedlinePlus. As of this posting, nearly 40 kits have been requested since launching the program in March 2017. You can request yours at the link above!
Other parts of the initiative have included visiting Philadelphia to talk about the role graphic medicine can play in activism, organizing the Comics and Medicine Panel at MICE 2017, and hosting a listserv to facilitate keeping up-to-date on the field. In addition, we are currently partnering with local independent cartoonist Cathy Leamy to develop comics-based informational materials on precision medicine – keep a lookout for more on this, and other developments, soon!
I also want to take the time here to announce my departure from my role with the NNLM NER, with my final day being Friday, February 9th. Moving forward, the graphic medicine initiative will be headed by our Associate Director, Martha Meacham. Don’t hesitate to contact her – or any of the NER Staff!
I have been incredibly luck to work with the wonderful NER team and all of you throughout the region in building this innovative initiative. I’ll be joining the Harvard Medical School, Countway Library as a Collection Outreach Librarian. I’ll be working with the community at Harvard Medical to evaluate, promote, and shape the future of the library’s collections – which will, of course, include innovative directions like graphic medicine.
All the best!
This is the second in series of posts on patients, families and librarians in the diagnostic process.
In October 2017, I attended the Patients as Partners in the Diagnostic Process preconference for the Diagnostic Error in Medicine 10th International Conference in Newton, MA. To open the discussion, we watched this video from MedStar Health:
Larry Pennings, Associate Director of the Jefferson Center, facilitated the subsequent discussion about involving patients in the diagnostic process. Pennings stated that this “comes down to relationships.”
From 2014-2017, the Society to Improve Diagnosis in Medicine teamed up with the Jefferson Center and the Maxwell School of Citizenship and Public Affairs in a research project funded by the Agency for Healthcare Research and Quality (AHRQ). This project sought to determine how patient input could reduce diagnostic error.
Through a series of focus groups, these patient recommendations were identified:
- Present symptoms clearly and completely. Be truthful and be prepared to discuss symptoms.
- Assert yourself in the relationship. Notify provider if condition doesn’t improve. Seek a second opinion.
- Coordinate your care. Enlist a patient advocate, if needed. Seek out responsive healthcare.
- Ensure accurate records and tests. Maintain and update records. Correct errors.
- Manage your care. Follow through and follow up on treatments, testing and additional appointments.
Healthcare providers were asked to respond, reflecting on patients’ ability and willingness to adhere to these recommendations. They identified many challenges, including lack of trust, mental health issues, inaccurate medical histories, and difficulties with communication.
Participants in a Consumer Feedback group responded that patients have limited choices due to insurance and ability to pay for care. A fragmented system inhibits communication and the complexity of the healthcare system makes it difficult for patients to manage their own care. Healthcare culture focuses on efficiency, so that patients have limited time to interact with doctors.
Read more in the final report, Clearing the Error: Using Public Deliberation to Define Patient Roles as Partners in the Diagnostic Process.Supporting Patient and Family Engagement
A librarian’s role in supporting patient and family engagement is manifold. Librarians manage information resources and provide instruction in the use of those resources. Librarians build relationships with and between stakeholders in reducing diagnostic error. Librarians who work with patients and families will witness the struggles of those who lack medical information, or who misunderstand information given to them. Librarians who work in health sciences will understand the need for health literacy resources for clinicians, researchers and students.
AHRQ offers an excellent page of resources on Patient and Family Engagement. The resources are segmented by user population: Hospital Staff, Patients and Families, Medical Office Staff, Long-Term Care Facility Staff, and Ambulatory Surgery Center Staff.
MedlinePlus provides Health Topics pages on Health Literacy and Patient Safety. These MedlinePlus pages are geared toward the consumer, and offer a great opportunity to view a variety of online tools from AHRQ, Joint Commission, FDA, CDC and NIH.
SAVE THE DATE and CALL FOR PROPOSALS
The e-Science Symposium Planning Committee invites you to submit a proposal for participation at the 10th Annual University of Massachusetts and New England Area Librarian eScience Symposium, to be held on Thursday, April 5, 2018 at the University of Massachusetts Medical School in Worcester, MA.
This year’s symposium theme “Libraries in Data Science: Past and Future” celebrates the 10th anniversary of the e-Science symposium by looking at how far things have come, and focusing on the future of libraries in data science.
We are interested in receiving proposals for presentations, interactive workshops and posters that highlight librarians involved in the four areas listed below. Proposals can focus on the evolution of these topics, current projects, future directions, etc.
Proposals should be tied to one of these four categories:
- Data Repositories
- Data Visualization
- Data Outreach
- Data Rescue
Breakout Sessions: 60-minute presentation or interactive workshop. Selected presenters will receive an honorarium and all travel expenses paid for by the NN/LM NER. All sessions will be video recorded and featured on the e-Science Symposium website. Because there are a limited number of breakout sessions, all presentation and interactive workshop proposals will be considered for a poster presentation.
The deadline for submitting a Breakout Session abstract is Friday, February 2, 2018.
Proposal decisions will be made by Friday, February 16, 2018.
Poster Session: Awards to the Most Informative Poster in Communicating e-Science Librarianship, Poster for Best Example of e-Science in Action, and Best Poster Overall.
The deadline for submitting a Poster Session abstract is Friday, February 2, 2018.
Proposal decisions will be made by Friday, February 16, 2018.
Abstracts must follow the Medical Library Association guidelines for creating a structured abstract, as outlined at http://www.mlanet.org/page/structured-abstract.
Submission Process: Click on Submit Proposal in the left navigation pane to submit your proposal. The submitting/corresponding author will need to log in or create a free eScholarship@UMMS account. Follow the entry instructions for each field.
Before you begin the online submission process, please be sure you have the following items ready:
- The submission’s title
- Names, affiliations, and email addresses of all authors
- The abstract
- A list of keywords
Electronic presentation materials (PowerPoints, PDFs, etc.) will be required to be submitted by Thursday, March 22, 2018 to be posted on the e-Science Symposium website and stored permanently with a Creative Commons License in the eScholarship@UMMS open access repository following the symposium.
Registration will open soon and we look forward to seeing you there.
“Kripalu” means compassion and “yoga” means union. The sense of being connected and valued felt like a warm vest given to me as a welcome gift when I checked in.
Four of my best friends and I planned our R & R day at Kripalu back in November. We wanted an opportunity to spend time with each other, get some exercise, as well as some relaxation. With the rush of holidays, and the business of everyday life, the time for weekend get-together arrived quickly. I had barely given any thought to what I should expect when I arrived at the Kripalu Center for Yoga and Health this past Saturday morning at 7AM.
Kripalu, sits up on a hill and overlooks Stockbridge Bowl, in the Norman Rockwell-like town of Stockbridge Massachusetts, located in the Berkshires or western Massachusetts. James Taylor, is a local hero and resident of Lenox, the town next door, who wrote and sings of the beauty of the Berkshires in his song Sweet Baby James, “ Now the first of December was covered with snow. And so was the turnpike from Stockbridge to Boston Though the Berkshires seemed dream-like on account of that frosting. With ten miles behind me and ten thousand more to go.” Stockbridge did seem dreamlike, as a fresh coat of snow had recently fallen just a few days before we arrived.
Through participating in workshops, yoga classes, a guided snow shoe hike, eating nutritious food and attending the evening musical concert, I began to realize that my day at Kripalu, was much more than a lovely day, it was an immersion into a lifestyle that combines postures, meditation, wholesome eating, study, learning and healing arts. Each of these activities is also facet of yoga. The benefits to the yoga lifestyle were easy to recognize in those who taught the workshops and classes. These teachers all possessed common qualities, innate skillfulness, equanimity, clarity and joy.
Kripalu Center for Yoga and Health is a large, sprawling building. A former Jesuit seminary, it has many dorm-like rooms you can stay in for overnight visits. The building also has a cafeteria that is big enough to seat hundreds (I ate 3 meals of the most beautiful, colorful and delicious tasting food), meeting rooms, exercise rooms, sauna along with lots of outside space with winding hiking trails to explore.
As a nonprofit educational organization Kripalu’s mission is to empower people and communities through the wisdom that is the transformative result of the regular practice of yoga. As I took a quick break from the scheduled activities, I picked up the Kripalu 2016-2017 Magazine where I read several articles about a relatively new program (just 3 years old) called the Kripalu Approach to Extraordinary Living. Through this program, Kripalu is creating world change that begins on the mat with individuals, who then bring their wisdom and newfound skills to their families and organizations. Five days of experiential learning is taught through a curriculum of yoga-based tools that are user-friendly and practical. One example of the kinds of practical programs offered is called “Riding the Wave of Parenting” and Staying Calm When Your Child Cannot” offered to teen mothers and families from financially disadvantaged neighborhoods. Using the concepts and language taught in the program parents are making positive changes in the way they communicate with their children. Mindfulness, conscious breathing and self-awareness practices are creating authentic and lasting change in the lives of people who would not otherwise be exposed to these practices.
Here are some of the other populations who are benefitting from the Kripalu Approach curriculum:
- Children overcoming abuse, neglect, addiction and trauma through Berkshire Farm center and Services for Youth, across New York State
- People with developmental and physical disabilities through Nonotuck Resources across Massachusetts.
- Homeless LBGTQ youth in New York City through the Hetrick Martin Institute
- Teen parents living in poverty, through Sunrise Family Resource Center, Bennington, Vermont
- Participants in community health programs, including an opioid overdose prevention program through North Berkshire Community Coalition, North Adams, Massachusetts
Kripalu’s research team has been collecting data on the success of their Approach program. In 2016 preliminary results in the areas of perceived stress, resilience, mindfulness and psychological empowerment were presented during poster sessions at the International Congress of Integrative Medicine and Health in Las Vegas, Nevada and at the Symposium on Yoga research, held at Kripalu.
“Our research shows that participants are acquiring yoga skills appropriately, that they are continuing to actively apply them on a regular basis, and that application has made changes in their day to day lives over the long term.” Sat Bir S. Khalsa, PhD, Kripalu’s Research Director and assistant professor of medicine at Harvard Medical School at Brighm and Women’s Hospital.
Did you know that NLM offers many resources where you can learn more about Integrative and Complementary Medicine? The following are some of those links.
- https://medlineplus.gov/complementaryandintegrativemedicine.html some of the topics covered in this link are
- Ayurvedic Medicine (National Center for Complementary and Integrative Health)
- Biofeedback (Mayo Foundation for Medical Education and Research)
- Frequently Asked Questions about Music Therapy (American Music Therapy Association)
- Homeopathy: An Introduction (National Center for Complementary and Integrative Health)
- How Can Spirituality Affect Your Family’s Health? (Nemours Foundation)
- Hypnosis (Mayo Foundation for Medical Education and Research)
- Magnets for Pain Relief (National Center for Complementary and Integrative Health)
- Massage Therapy: What You Knead to Know (National Institutes of Health)
- Meditation (National Center for Complementary and Integrative Health)
- MedlinePlus: Herbs and Supplements Also in Spanish
- Music for Your Health (American Association of Clinical Endocrinologists)
- Naturopathy (National Center for Complementary and Integrative Health)
- Osteopathic Manipulative Treatment (American Osteopathic Association)
- Pet Therapy: Man’s Best Friend as Healer (Mayo Foundation for Medical Education and Research)
- Reiki: An Introduction (National Center for Complementary and Integrative Health)Also in Spanish
- Relaxation Techniques for Health (National Center for Complementary and Integrative Health)
- Tai Chi and Qi Gong (National Center for Complementary and Integrative Health)
- Tai Chi and Your Health: A Modern Take on an Ancient Practice (National Institutes of Health)
- Time to Talk: 5 Things You Should Know about Yoga (National Center for Complementary and Integrative Health)
- Time to Talk: 6 Things To Know About Massage Therapy for Health Purposes (National Center for Complementary and Integrative Health)
- Traditional Chinese Medicine: An Introduction (National Center for Complementary and Integrative Health)
- What Is Hot Yoga (Bikram)? (Mayo Foundation for Medical Education and Research)
Yoga for Health (National Center for Complementary and Integrative Health)
The National Institutes of Health (NIH) All of Us Research Program and the National Library of Medicine (NLM) have teamed up to kickstart a three-year pilot project that will support this unique and promising NIH initiative.
This collaboration will maximize the power of All of Us Research Program’s community engagement and by informing and engaging participants through NLM’s National Network of Libraries of Medicine (NNLM).
The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. By taking into account individual differences in lifestyle, environment, and biology, researchers will uncover paths toward delivering precision medicine.
The partnership aims to help public libraries and community organizations in supporting the health information needs of their users, to support community engagement in managing personal health information and to operate the All of Us Training Center, the home for training and resources about and related to the program for customers, health professionals, librarians and researchers.
NNLM will coordinate efforts across all of the Regional Medical Libraries to develop effective, innovative, and replicable approaches to meet the health information needs of communities. The Regional Medical Libraries will engage in partnerships with public libraries and community organizations to provide access to quality health information for library users of all ages and guide community members to trusted health information so that they can make educated decisions about their health and that of their loved ones. NNLM will begin the community engagement program with a phased approached, beginning with Durham, NC, Memphis, TN, Sacramento, CA, Portland, OR, Houston, TX, New Orleans, LA, and Albuquerque, NM.
After full launch of the All of Us Research Program in 2018, community engagement initiatives will expand. NNLM members can get involved by facilitating collaborations between members, public libraries and other community organizations to support programming, act as a resource to library staff, and participate in community activities, such as health fairs and other activities.
Find more information about the NNLM All of Us National Program at and about opportunities for partnerships with your Regional Medical Library at https://nnlm.gov/ner
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