PSR Data Science
Storing, managing, standardizing and publishing the vast amounts of data produced by biomedical research is a critical mission for the National Institutes of Health. In support of this effort, NIH has just released its first Strategic Plan for Data Science that provides a roadmap for modernizing the NIH-funded biomedical data science ecosystem. Over the course of the next year, NIH will begin implementing its strategy, with some elements of the plan already underway. NIH will continue to seek community input during the implementation phase.
Accessible, well-organized, secure, and efficiently operated data resources are critical to modern scientific inquiry. By maximizing the value of data generated through NIH-funded efforts, the pace of biomedical discoveries and medical breakthroughs for better health outcomes can be substantially accelerated. To keep pace with rapid changes in biomedical data science, NIH will work to address the:
- findability, interconnectivity, and interoperability of NIH-funded biomedical data sets and resources
- integration of existing data management tools and development of new ones
- universalizing innovative algorithms and tools created by academic scientists into enterprise-ready resources that meet industry standards of ease of use and efficiency of operation
- growing costs of data management
To advance NIH data science across the extramural and intramural research communities, the agency will hire a Chief Data Strategist. This management function will guide the development and implementation of NIH’s data science activities and provide leadership within the broader biomedical research data ecosystem. Jon R. Lorsch, Ph.D., director of the National Institute of General Medical Sciences, is currently available to comment on this strategic plan.
Learning, Networking, and Sharing: Report on the April 10-11 NNLM Research Data Management Course Capstone Summit
by Andrea Lynch, MLIS
Scholarly Communications Librarian
Lee Graff Medical & Scientific Library
City of Hope
As part of the culmination of the NNLM Biomedical and Health Research Data Management for Librarians spring 2018 course (NNLM RDM course), a two-day Capstone Summit was held April 10-11, 2018, at the NIH campus in Bethesda, Md. Over 40 medical and health sciences librarians attended the impactful event, along with representatives from the National Library of Medicine (NLM) and various team members from the National Network of Libraries of Medicine (NNLM) regional network offices. It was a great opportunity to meet (in-person) fellow cohort participants as well as to get to know our NLM and NNLM colleagues while getting feedback on our Capstone Project plans.Research Data Management Capstone Summit Attendees
The first day began with a meet & greet and a welcome from the NLM and NNLM representatives. We then had an opportunity to meet our mentors as well as fellow mentees supported by our assigned mentor. Then came the part of the event I was most anticipating, a presentation by NLM Director, Dr. Patricia Flatley Brennan. She highlighted the NLM Strategic Plan and addressed a myriad of questions. We then presented our Capstone Projects in small groups and received feedback from our peers and other course mentors. We enjoyed a delicious lunch, then went back to work participating in roundtable discussions on topics such as scalability and tools & technology supporting research data management programs and services. We were then fortunate enough to hear a presentation by a panel of experts at NLM and NIH, including Dr. Dina Demner-Fushman from NLM; Dr. Ben Busby of NCBI; and Lisa Federer of the NIH Library. We ended the day with an activity where we each wrote our best idea pertaining to research data management program success, and then collectively and anonymously rated each idea to come up with the handful of best ideas amongst the group.
The second day began with a group activity, with a goal of sharing our Capstone Project plans and getting high-level feedback. We then performed a group activity collecting aggregated feedback about the RDM course within small groups. Next up, Regina Raboin, Associate Director of the Lamar Soutter Library and Editor-in-Chief of the Journal of eScience Librarianship (JeSLIB), presented an overview and recent changes pertaining to the journal. She encouraged the course participants to submit manuscripts detailing their Capstone Projects once completed. The final presentation was by Kevin Read and Alisa Surkis of NYU with case study highlights from the academic medical libraries who participated in a NNLM Middle Atlantic Region Pilot Project on research data management. The concluding remarks from Amanda Wilson from NLM’s National Network Coordinating Office, as well as Ann Glusker & Ann Madhavan from NNLM Pacific Northwest Region did a great job of synthesizing the event’s outcomes and inspiring us to forge ahead on our Capstone Projects!
The Capstone Projects are due at the end of August. So, be on the lookout for those updates from NNLM and/or the respective course cohort participants. If you are going to the Medical Library Association annual meeting this month, please attend Sheila Green’s Lighting Talk detailing her experience participating in the NNLM RDM course, which is scheduled on the afternoon of May 22, 2018 (Sheila is a speaker during the Lighting Talk #5 session from 3:00 to 4:25 p.m.). Also, visit NNLM’s RD3 website for interesting research data management developments and RDM-related news, updates, and initiatives. The NNLM Research Data Management Working Group is very active and will update the site regularly. Lastly, keep your eyes peeled for the JeSLIB special issue on research data management and for a database of Capstone project reports on the NNLM RD3 site.
The National Network of Libraries of Medicine (NNLM) is excited to announce the official launch of the NIH All of Us Research Program on Sunday, May 6, 2018! This national event will be held in seven local communities throughout the United States and will be broadcast via this website and on Facebook Live.
The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. Program goals are to develop a more effective way to treat disease by considering individual differences in lifestyle, environment and biology. This initiative comes from the key element from the Precision Medicine Initiative.
Additional information about this Program is available through the Precision Medicine – All of Us Research Program website. Program information is available for download in English and Spanish. NNLM Network Members can learn about involvement opportunities at a one-hour webinar on April 30th at 11:00am PDT.
Eric Dishman, director of the All of Us Research Program at the National Institutes of Health, will deliver the 2018 Joseph Leiter National Library of Medicine/Medical Library Association Lecture on Wednesday, May 9, at 10:30 AM PDT, in the Lister Hill Auditorium on the NIH Campus. The lecture is open to the public. It will be broadcast live on the Web (and later archived) at: https://videocast.nih.gov/Summary.asp?Live=27103&bhcp=1. The featured presentation will be Precision Communications for Precision Health: Challenges and Strategies for Reaching All of Us. Among other topics, he will discuss these challenges and strategies:
- Meeting communities where they are (understanding their needs, concerns around research, meeting their literacy levels, etc.);
- Widening the definition of precision health and conveying the fact that All of Us is more than a genomics program;
- Ethics and logistics of targeting with marketing analytics; and
- Balancing the promise, with the hype and vision, with the need for patience.
As director of All of Us, Dishman leads the agency’s efforts to build a national research program of one million or more US participants to advance precision medicine. Previously, he was an Intel fellow and vice president of the Health and Life Sciences Group at Intel Corporation, where he was responsible for driving global strategy, research and development, product and platform development, and policy initiatives for health and life science solutions. His organization focused on growth opportunities for Intel in health information technology, genomics and personalized medicine, consumer wellness, and care coordination technologies.
Dishman is widely recognized as a global leader in health care innovation with specific expertise in home and community-based technologies and services for chronic disease management and independent living. Trained as a social scientist, he is known for pioneering innovation techniques that incorporate anthropology, ethnography, and other social science methods into the development of new technologies. He also brings a unique personal perspective, as a cancer patient for 23 years and finally cured thanks to precision medicine, to drive a person-centric view of health care transformation.
“Eric Dishman is the perfect speaker at the perfect time,” noted NLM Director Patricia Flatley Brennan, RN, PhD. “His message about the power of people to advance scientific discovery is a strong one. Also, as was announced last year, NIH’s All of Us Research Program and NLM are teaming up to raise awareness about this landmark effort to advance precision medicine. As our colleagues at the Medical Library Association know so well,” she continued, “libraries serve as vital community hubs. NLM’s collaboration with All of Us presents a perfect opportunity to help the public understand how health research impacts all of us. By pairing our National Network of Libraries of Medicine members with public libraries to reach local communities, we hope to contribute to medical breakthroughs that may lead to more tailored disease prevention and treatment solutions for generations to come.”
The Joseph Leiter NLM/MLA Lecture was established in 1983 to stimulate intellectual liaison between the MLA and the NLM. Leiter was a major contributor in cancer research at the National Cancer Institute and a leader at NLM as a champion of medical librarians and an informatics pioneer. He served as NLM Associate Director for Library Operations from 1965 to 1983.
Request for Information: Submit Comments on the NIH Draft Strategic Plan for Data Science by April 2!
In order to capitalize on the opportunities presented by advances in data science, the National Institutes of Health (NIH) is developing a Strategic Plan for Data Science. This plan describes NIH’s overarching goals, strategic objectives, and implementation tactics for promoting the modernization of the NIH-funded biomedical data science ecosystem. As part of the planning process, NIH has published a Request for Information (RFI) to seek input from stakeholders, including members of the scientific community, academic institutions, the private sector, health professionals, professional societies, advocacy groups, patient communities, as well as other interested members of the public.
The NIH seeks comments on any of the following topics:
- The appropriateness of the goals of the plan and of the strategies and implementation tactics proposed to achieve them;
- Opportunities for NIH to partner in achieving these goals;
- Additional concepts that should be included in the plan;
- Performance measures and milestones that could be used to gauge the success of elements of the plan and inform course corrections;
- Any other topic the respondent feels is relevant for NIH to consider in developing this strategic plan.
Responses to this RFI must be submitted electronically by April 2, 2018.
The National Library of Medicine 2017-2027 Strategic Plan, A Platform for Biomedical Discovery and Data-Powered Health is now accessible online. The web site also offers readers the opportunity to submit any thoughts and/or reactions about the plan, if desired. NLM’s future is being built on three pillars:
- NLM as a platform for data-driven discovery and health
- Reaching new users in new ways
- Workforce excellence from citizens to scientists
Highlights of some initial NLM implementation activities include the following:
- A strong, robust platform for delivering NLM’s literature and data resources
- Energizing the NLM research agenda to meet a data-rich future
- Alignment of NLM outreach efforts
- Stabilizing NLM audiovisual support services
- Improved deposit, curation, and discovery services
Check out the plan and submit your feedback!