NNLM PSR Mini-Award Highlights for “Harry Potter’s World: Renaissance Science, Magic & Medicine” Traveling Exhibition
by Alison Clement, MLIS, AHIP
Community Health Librarian
Marshall Community Health Library
Cameron Park, CA
I never thought I would see the day when my library staff and I would be greeting patrons wearing witch’s hats, but this year it actually happened! The Marshall Community Health Library in Cameron Park, CA, was magically transformed during the month of July when we hosted the NLM traveling exhibition, Harry Potter’s World: Renaissance Science, Magic & Medicine. Our library was an appreciative recipient of a NNLM PSR 2017 Mini-Award to fund activities related to and supporting the NLM History of Medicine exhibition.
The Marshall Community Health Library, part of Marshall Medical Center, is a consumer health library that has been serving the public and the healthcare community since 1997. Hosting the exhibition was the perfect way to celebrate the 20th anniversary of our library’s opening, as well as 20 years of Harry Potter. The exhibition was simple and quick to put together with the aid of the instructions, both printed with illustrations, and online, including video.
We wanted to use the exhibition and celebration as an opportunity to reach out to those in our community who were not yet aware of our health information resources. We made use of the NLM exhibition’s templates for flyers and trading cards. The medical center’s Marketing Department assisted with publicity, including local papers and social media. The hospital’s catering section crafted a Harry Potter-decorated 20th anniversary cake for our celebration’s visitors on the opening day of the exhibition. We had 20th anniversary bookmarks available with our library’s contact information for visitors to take for future reference. Throughout the library, book and DVD resources were on display on tables to add an interactive element to the exhibition–for example, reproductions of old herbal manuscripts, and books on the history of medicine.Attendees at the Harry Potter’s World NLM Traveling Exhibit
Our library shares a catalog with the El Dorado County public libraries, and we fully utilized this partnership to publicize and decorate the event. One of the local public libraries lent us some wonderful costumes and décor to liven up our special activity days. Thanks to this great loan, we had Hogwarts banners suspended from the ceiling, owls (fake ones!) perched on the bookshelves, a life-size figure of Professor Snape, an Azkaban “Wanted” photo booth, Gryffindor capes for our speakers to wear, and an assortment of witch hats for our library staff. Our hearts go out to El Dorado Hills Library for the use of these decorations!
The first two days of the exhibition were very exciting, with demonstrations and speakers. We hosted the local wildlife rescue organization, which brought three of their live owl “ambassadors” and gave a talk about owls. An emeritus professor of philosophy presented a talk on sacred geometry and alchemical wisdom. Outside our library’s front door, we had a “Potions Class” taught by an expert in the history of pharmacy, who demonstrated some “olde” remedies, including small explosions and dry ice effects that the children loved. A naturopathic practitioner/herbalist spoke to the visitors about herbology and medieval herbal medicine, and a display of 30 medicinal herbs–all labeled–fresh from the librarian’s herb garden helped to illustrate and educate.
Library volunteers were on hand to help visitors with some interactive activities. Children could have a Hogwarts acceptance letter made with their name on it. Young and old alike enjoyed reaching into a real Hogwarts Sorting Hat to see “Which House Chooses You!” with a few giveaways for the lucky few who pulled out a special magical ticket. In addition to the exhibition-related activities, we featured a special MedlinePlus & PubMed display, with brochures and staff on hand to demonstrate the use of these databases. 75% of the visitors to the exhibition and events were first-time library visitors, so our goal of reaching newcomers was satisfyingly met, with both young and older visitors, and some medical center staff. We hope that the exhibition and 20th anniversary celebration opened the door for many to a magical world of information!
New NNLM PSR Library Director Profile: Keir Reavie, City of Hope, Lee Graff Medical & Scientific Library
by Keir Reavie, MLIS, Director, Library Services
Lee Graff Medical and Scientific Library
City of Hope
I’m happy to be back in California, in the Pacific Southwest Region (PSR), and working in a health sciences environment as Director, Library Services, Lee Graff Medical and Scientific Library, City of Hope. I’ve been in Southern California for four months and it was great seeing colleagues at the first Joint Meeting I’ve attended since 2011, when I was living in Northern California and a member of the Northern California and Nevada Medical Library Group (NCNMLG). I had been living in New York City since early 2011, where I worked as the Associate Director of the Dana Library, Rutgers University, Newark, NJ, and on the John Torrey Papers digitization project at the Mertz Library of the New York Botanical Garden. Those of you interested in the history of science or botany in America, or the history of nineteenth-century America, should check out the John Torrey Papers. To get more intimate with Torrey’s correspondence, you can also help transcribe the papers, so historians and other researchers can more easily search and retrieve information from the documents.
I received my MLIS from the University of Western Ontario and took my first position as a health sciences librarian in the Medical Library at the University of Manitoba. I then worked at the Shiffman Medical Library, Wayne State University, Detroit. While at Wayne State I was active in the Greater Midwest Region of the NNLM, as a member of the Advisory Board and chair of the Education Committee. I moved to California in 2000, to take a position in the Library and Center for Knowledge Management, University of California, San Francisco (UCSF). At UCSF I worked closely with the School of Medicine to integrate information literacy into the evidence-based medicine curriculum, and later managed the library’s education and information services. In 2006 I went on to work at the University of California, Davis (UCD), where I managed the health sciences libraries and the biological, agricultural, and environmental sciences departments of the UCD Libraries. As a member of NCNMLG, I served as president in 2007/2008, and member of the planning committees for Joint Meetings in 2008 and 2011. I worked closely with the NNLM PSR, and was always happy to assist at NLM exhibits at health sciences conferences in the San Francisco Bay Area, to help promote NLM resources.
It’s an exciting time to be working at the City of Hope. It is a non-profit organization that is growing rapidly, and was recently re-accredited as one of 49 NCI-Designated Comprehensive Cancer Centers in the nation. It will be a challenge to develop and maintain the library’s central role as a place of learning for faculty, students, physicians, nurses, and other health care professionals as the organization grows. The Beckman Research Institute of City of Hope is a leader in research to understand how biology affects diseases like cancer, HIV/AIDS, and diabetes. City of Hope has recently acquired a precision medicine research group, the Translation Genomics Research Institute, located in Phoenix, AZ. Translational science is a high priority for the organization. The Graduate School is applying to start a new Master’s program in translational science. In addition, City of Hope has extensive education programs, including the renowned nursing research and clinical investigation training programs. City of Hope has also developed a comprehensive strategy to cure type I diabetes.
To support the growing enterprise, the Library plans to add additional staff and rethink the use of library space, to create collaborative environments for researchers, pharmacists, nurses, and clinicians; support translational science; and help expand educational programs in the City of Hope. The Library recently started reporting to the Chief Informatics Officer, so we will also be closely linked to City of Hope’s informatics strategy, particularly the centralization of informatics and bioinformatics educational programs. Again, I’m glad to rejoin the NNLM PSR and look forward to working closely with professional librarians throughout the region, and hopefully take some time to explore Los Angeles and Southern California!
Request for Information: Submit Research Questions to Inform Development of the NIH All of Us Research Program!
The National Institutes of Health has issued a Request for Information (RFI) to solicit public input to inform future updates to the All of Us Research Program that would be of most benefit to participants, researchers, and the broader community. The information provided will help identify key research priorities and requirements (such as data types and methods) for future versions of the All of Us protocol. All responses must be submitted online by February 23 through the program’s IdeaScale website. The RFI solicits “use cases,” or input on health problems or research questions of interest that All of Us could potentially help address.
The All of Us Research Program will make all responses available on the website as a searchable reference and as a principal database of use cases and requirements for informing future plans for All of Us. An advantage of using Ideascale is that it provides the opportunity to see what others have added as research ideas. Over 250 have already been submitted! Another feature is the ability to vote on your favorite ideas or comment on submissions. Commenting is a great way to start a dialogue with other submitters. All responses will be considered at the All of Us Research Priorities Workshop, scheduled for March 21–23 in Bethesda, MD.
The mission of the All of Us Research Program is to advance the science of precision medicine and ensure everyone shares in its benefits. The overall objective of the program is to build an observational research resource that will provide the information needed to address a wide range of scientific questions, facilitating the exploration of biological, clinical, social, and environmental determinants of health and disease. It will be one of the larges, most diverse datasets of its kind for health research. The program will collect and curate health-related data and biospecimens from one million or more individuals who reflect the diversity in the United States and will sign up to share their information over time. These data and biospecimens will be made broadly available for research uses. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the factors that influence health and disease. Their findings may lead to more individualized health care approaches in the future.
The program is currently in beta testing, with a national launch anticipated in spring 2018. Once enrollment opens nationally, volunteers over the age of 18 who live in the United States will be able to join All of Us, either directly through the website or through participating health care provider organizations. All of Us aims to be open to all interested individuals, to reflect the rich diversity of America and to serve as a catalyst for innovative research programs and policies.
This is a unique opportunity to share your research ideas with the All of Us Research Program! Feel free to send any questions about this process to AoURPW@nih.gov.
The National Library of Medicine has announced the new traveling banner exhibition, Graphic Medicine: Ill-Conceived and Well Drawn!, made available free of charge to cultural institutions across the country beginning January 30. An online adaptation of the exhibit will be available worldwide, also on January 30. The online adaptation of Graphic Medicine includes an Education component featuring a K-12 lesson plan and a university module. The traveling exhibition of Graphic Medicine: Ill-Conceived and Well Drawn! will be visiting 50 sites across the country over the next four years. Visit the Traveling Exhibition Services website to see the tour itinerary and find this exhibition near you.
Graphic Medicine: Ill-Conceived and Well Drawn! explores the meaning of an emerging genre of medical literature that combines the art of comics and personal illness narrative. This approach can reveal the emotional power of these illness narratives and the clinical data they often involve. As a way of understanding illness and health care, these stories can be essential to effective treatment, healing, and understanding. Artist, educator, and New York Times bestselling author Ellen Forney guest curated the exhibition, which acknowledges and celebrates the NLM’s newly-acquired collection of graphic medicine publications.
Public Program on March 1
Complementing Graphic Medicine: Ill-Conceived and Well Drawn!, NLM Director Patricia Flatley Brennan, RN, PhD will host a Conversation about Graphic Medicine, a special public program which will address the place of graphic medicine within medical literature and the landscape of personal health communication in the 21st century. Dr. Brennan will be in conversation with the project’s guest curator, Ms. Forney; Dr. Michael Green, a physician, bioethicist, and professor in the Departments of Humanities and Internal Medicine at Penn State University where he cares for patients, teaches medical students and residents, and conducts research in bioethics, and has co-authored articles and publications about Graphic Medicine; and MK Czerwiec, a nurse, Artist-in-Residence at Northwestern Feinberg School of Medicine who uses comics to reflect on the complexities of illness and caregiving, a senior fellow at the George Washington School of Nursing Center for Health Policy and Media Engagement, co-manager of GraphicMedicine.org and author of Taking Turns: Stories from HIV/AIDS Care Unit 371. This public program will be held on Thursday, March 1, from 11:00am to 12:30pm in the NLM’s Lister Hill Center Auditorium. It will be available to the world via NIH VideoCasting.
The National Library of Medicine has announced the list of participants in the National Network of Libraries of Medicine (NNLM)-created program, Biomedical and Health Research Data Management for Librarians. The program began January 8, introducing librarians to data issues and policies, with the goal of implementing or enhancing data services at their institution. The course topics include an overview of data management, choosing appropriate metadata descriptors or taxonomies for a dataset, addressing privacy and security issues with data, and creating data management plans.
The program offers an 8-week online class, mentoring by a data librarian, and completion of a capstone project at the end of the course. The experience culminates in a summit at the NIH campus in Bethesda, MD, on April 10-11. NLM Director Patricia Flatley Brennan, RN, PhD, said, “We need data-sophisticated librarians who can assist the research process, the enterprise, in developing the resources and data services around them. The Biomedical and Health Research Data Management for Librarians program will offer the kind of training that will develop librarians’ skills and develop practical and actionable data services at their own institutions.”
Program participants from NNLM PSR include Lynn Kysh, University of Southern California; Andrea Lynch, City of Hope; and Linda Murphy, University of California, Irvine. The program was developed and is led by Jessi Van Der Volgen (Assistant Director of NNLM Training Organization) and Shirley Zhao (Data Science Librarian of the Spencer S. Eccles Health Sciences Library, University of Utah), and is supported by co-teachers, reviewers, and mentors from libraries across the country: Marisa Conte, Anna Dabrowski, Christopher Eaker, Lisa Federer, Jen Ferguson, Jessica Gallinger, Patricia Gogniat, Tina Griffin, Margaret Henderson, Amy Koshoffer, Wladimir Labeikovsky, Tobin Magle, Sara Mannheimer, Hannah Norton, Peter Oxley, Zac Painter, Kevin Read, Franklin Sayre, Yasmeen Shorish, Vicky Steeves, Alisa Surkis, Jamie Wittenberg, and Mary Zide.
The NNLM Research Data Management Working Group will also participate in the summit and continue to serve as a resource for health sciences librarians and information professionals interested in improving their data management skills. The program complements the ongoing efforts of the NNLM RD3: Resources for Data-Driven Discovery which serves as a resource in fostering learning and collaboration in data science to support sharing, curating, and annotating biomedical data. A complete list of program participants is available on the NLM web site.
In November 2017, NNLM PSR conducted a communication assessment to help direct the RML’s communication plan to effectively meet Network members’ needs and expectations, and assist the RML to understand where improvements might be made. The questionnaire was promoted on the PSR-News announcement list and the various MLA chapter listservs in the region. Eighty-two Network members completed the survey with information and valuable feedback.
Overall, results were encouraging and suggested that our work does make a difference for health sciences librarians and information centers in the region, as illustrated by the roughly 94% of respondents who agreed that the RML is effective in improving awareness of or access to biomedical information resources, and nearly the same percentage agreeing that the RML is effective in improving awareness of NLM and NNLM services (training, funding, news, etc.). Following are additional highlights and themes from the questionnaire results.
Which libraries responded?
The majority of respondents were either academic health sciences libraries or hospital libraries.
NNLM PSR Communication Tools
The RML provides information and announcements through multiple channels, including the Latitudes Newsletter, which provides in-depth feature articles of professional interest; the bimonthly Midday at the Oasis Webinar, with a variety of featured speakers highlighting topics such as aging, predatory publishers, drug information services, and community health maps; the NewsBits Blog, which provides brief announcements, upcoming event information, and technology tips; and the PSR-News announcement list, which keeps Network members apprised of breaking developments from the National Library of Medicine, funding opportunities, and other notices. To help you keep up with the content of the Latitudes and NewsBits blogs, titles of postings are announced on a monthly basis in PSR-News.
In addition to these traditional communication channels, we use YouTube, Facebook and Twitter social media tools as other avenues to reach Network members with relevant information and announcements. In addition to unique content, listings from Latitudes and NewsBits are promoted on Facebook and Twitter. Facebook can also be used to post pictures of new library facilities, share success stories at institutions, and discuss professional issues and questions with colleagues from throughout the region and beyond.
In the questionnaire, Network members were asked:
- Which communication channel(s) were used to receive information from PSR;
- To rate the quality of the content PSR sends; and
- To rate the volume of information provided in each PSR communication channel.
Respondents were required to choose at least three communication channels. Results showed that all communication channels are used, particularly Latitudes (76%), Midday at the Oasis (70%), PSR-News (66%), and the PSR web site (52%).
To rate the quality of information, a matrix or rating scale was used with 1 being the most positive (Excellent), 2 (Good), 3 (Poor), and 4 (Don’t Know/Don’t Use). Latitudes and PSR Webinars received the best weighted average for quality of content at 1.68 and 1.70 respectively, followed by PSR-News listserv (1.89) and the website (1.90). Of the respondents who used these four communication tools, 80-88% agreed that the quality of information provided was “Good” or “Excellent.”
To rate the volume of information, the following rating scale was used: 1 being Too Much, 2 (Just Right), 3 (Not Enough) and 4 (Don’t Know/Don’t Use). Latitudes received the best rating with 83% of the respondents indicating the volume was “just right.” This was followed by PSR Webinars (79%), PSR web site (70%), and PSR-News listserv (68%). These results were echoed in the comments section where many respondents indicated that the webinars, newsletters, and listserv announcements were very valuable means of communication. Respondents were also less inclined to access NNLM and NLM information on social media as reflected in both questions; over 85% of the respondents indicated that they “Don’t Know/Don’t Use” Facebook (86%), Twitter (88%) or YouTube (94%). While many of the respondents did not have difficulty accessing or viewing social media sites or instructional videos, over one-quarter of respondents indicated firewall or other restrictions for social media sites and streaming videos.
The most highly rated suggestions for additional social media programs for the RML to adopt were LinkedIn, Skype and Instagram. Other responses included Slack and Google+. Several respondents commented e-mail is the preferred means for professional communication and that we should not use any other means since we cover enough already.
NNLM PSR Award Funding
Network members were also asked if they applied for NNLM PSR award funding in the last five years and if there were any barriers that prevented them from doing so.
Over 60% of respondents indicated that did not apply for funding. Some of the respondents pointed out their programs aren’t suited to dedicating time to public-facing projects or didn’t apply to their library’s needs or capabilities. Others explained that the application process is complicated and expressed needing a mentor or someone with experience or knowledge to make the application process less challenging.
NLM Educational and Print Materials
Additionally, we asked Network members if they have ordered NLM educational and print materials from the RML within the past year.
Over 70% of survey respondents did not order NLM educational and print materials from the RML within the past year. Those who did order used the resources for classes, health fairs, workshops and health clinics. They found the resources invaluable and expressed their love of our service. Those who did not order wished more items were available and suggested that reminders be sent from time to time.
At the end of the questionnaire, we asked Network members to provide additional comments regarding NNLM or NLM programs or services. Network members in the NNLM PSR are overwhelmingly positive about the programs and services available to them. The majority of respondents were very thankful and expressed satisfaction with the overall RML program, particularly the importance of keeping Network members apprised of webinars and other events, resource updates, etc. We extend our thanks and appreciation to everyone who participated in the communication questionnaire! Your feedback is highly appreciated and will help direct the RML’s communication plan to effectively meet your future needs and expectations.
We would like to provide you with an annual update of membership changes in the Pacific Southwest Region. Since our last update in December 2016, we have welcomed 15 new members to the network. Several membership changes are also noted in this article.
California University of Science and Medicine
San Bernardino, HI
Joined December 19, 2017
Hawaii Department of Health
Oahu Community Mental Health Centers
Joined November 22, 2017
Arcadia Public Library
Joined November 14, 2017
Guam Regional Medical City
Joined November 6, 2017
Stanislaus County Library
Joined October 5, 2017
Mount St. Mary’s University
Los Angeles, CA
Joined September 6, 2017
Pima County Health Department
Joined August 21, 2017
Mayo Clinic Learning Resource Center
Johnson Research Building
Joined April 19, 2017
Mayo Clinic Patient Library & Research Center
Joined April 19, 2017
Mayo Clinic Patient & Health Education Library
Joined April 19, 2017
NEC-Zero Project, College of Nursing, University of Arizona
Joined February 16, 2017
San Diego Miramar College Library
San Diego, CA
Joined February 7, 2017
Polytechnic High School Library
Long Beach, CA
Joined January 27, 2017
Flagstaff City – Coconino County Public Library
Claudine Taillac, Librarian, Volunteer Services & Training
Joined January 24, 2017
Hawaii State Department of Health
Joined January 9, 2017
Also, the following libraries no longer participate in DOCLINE. Please update your routing tables. While removing these libraries, check your routing tables for libraries labeled “Closed” or “Not a DOCLINE Library.” (Do not remove libraries that are listed as “Inactive” since they are most likely on vacation.)
No Longer Participating in DOCLINE
Western Nevada College
Carson City, NV
Northern Inyo Hospital
Verde Valley Medical Center
University Medical Center
Health Sciences Library
Las Vegas, NV
University of Southern California
Los Angeles, CA
West Hills Hospital and Medical Center
West Hills, CA
On December 18, 2017, the National Library of Medicine (NLM) released a new set of updates to ClinicalTrials.gov as part of its ongoing effort to enhance the usability of the database. For a review of this project, visit ClinicalTrials.gov: First in a Series of Changes to Improve Usability for Stakeholders. Most of the features provided in the current release were previously available for public testing on the beta site starting in November 2017 (see New ClinicalTrials.gov Beta Version Available for Public Testing). Following are highlights of key features in the latest release. These changes were informed by user research with end-users representing various stakeholder groups and the NLM partnership with 18F, a federal government digital services consultancy. Information about future changes to ClinicalTrials.gov will be provided on a new What’s New page.
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world operated by NLM. The database contains information on over 261,000 clinical studies and expanded access (or “compassionate use”) to investigational new drugs. Summary results entries for over 29,000 of these studies are also posted in a tabular format on ClinicalTrials.gov. Information listed on ClinicalTrials.gov is provided and updated by the study sponsor or investigator, and listing does not mean it has been evaluated by the U.S. Federal Government.Updated ClinicalTrials.gov homepage
Updated Search on Homepage
The updated homepage includes a new way for users to limit their searches to studies that are currently recruiting or will be recruiting participants. Additionally, users can now search for studies located within a specified distance from a city. Together, these new features will help users find information about potential studies in which to participate.
Updated Modify Search on Results Page
After a query is submitted, the Search Results page displays the number of studies found in ClinicalTrials.gov, the user-entered query terms and filters, and related terms that are automatically searched. The Modify Search link allows users to refine the current search directly on the Search Results page. Note that the Modify Search fields are initially hidden to ensure that the list of study records found is visible on the screen. The Start Over link returns users to the homepage to conduct a new search. To refine a search, use Filters to add or remove limits and Modify Search to display and update the search fields and terms used in the current query.
In-Context Glossary Display
The new glossary feature allows users to look up definitions of terms used on ClinicalTrials.gov while continuing to view the page on which a term appears (i.e., in context). Terms linked to glossary entries are identified by an information icon (“i” in a blue circle) throughout the ClinicalTrials.gov site. Clicking on a term opens a glossary panel from the right side of the screen to display the description for that term. The search box at the top of the glossary panel allows users to find entries for other terms. Note that clicking the “x” next to the glossary search box clears the box and reveals a full list of glossary entries. This glossary feature will help users understand words and phrases frequently used on ClinicalTrials.gov. (Sponsors and investigators should refer to the ClinicalTrials.gov Data Element Definitions documents for help with the data items required during registration and results submission.)
Results Submitted Tab
Information submitted by a study sponsor or investigator undergoes a quality control (QC) review process before being displayed on ClinicalTrials.gov. NLM staff members review all submissions for apparent errors, deficiencies, or inconsistencies. If “major issues” are identified by ClinicalTrials.gov during QC review, the submission is returned to the study sponsor or investigator with comments. Submitted information is publicly displayed (i.e., posted) after all major issues have been corrected or addressed.
The new Results Submitted tab displays a table that helps users track the QC review status for submitted results information that are not yet posted on ClinicalTrials.gov. After a study sponsor or investigator initially submits results information, the No Results Posted tab on a study record is updated to Results Submitted.
Clicking on this tab displays a table of dates. Each submission of results information prior to first posting is shown in a table row that is identified by sequential numbers in the Submission Cycle column. The date on which results information is submitted to ClinicalTrials.gov within each cycle is listed in the second column. If at least one major issue is identified during QC review in a submission cycle, the date on which NLM returns results information to a study sponsor or investigator with QC review comments is listed in the third column. After all identified major issues have been corrected or addressed by a study sponsor or investigator and submitted, the results information will be posted as part of the study record on ClinicalTrials.gov and the tab label will be changed to “Results Posted.”
Key Record Dates
A listing of key dates for record-related milestones is accessible by clicking the Key Record Dates link at the bottom of a study record. The Key Record Dates page allows users to identify when registration and, if applicable, results information was first submitted to ClinicalTrials.gov by the sponsor or investigator and first posted on ClinicalTrials.gov, as well as the date of the first submission that met QC criteria. It also lists when the last update was submitted and posted, and the date of submission for the last update that met QC criteria.
Note that when the QC review process for submitted information requires only a single submission cycle (i.e., no major issues are identified after initial submission), the dates displayed for “submitted that met QC criteria” and “submitted” will be the same. In contrast, when the QC review process takes two or more submission cycles, the date displayed for “submitted that met QC criteria” will be later than the date for “submitted.” For descriptions of each key record date, see Glossary of Common Site Terms.
Updated Study Record Layout
The design and layout of the study record page was updated to make the most relevant information more prominent. “Go to” links allow users to access the major sections of a record more easily.
Comments, questions, and suggestions are welcome! To contact NLM, click on “Customer Support” in the footer of the ClinicalTrials.gov web site, which will take you to the NLM Customer Support page. Then click on Contact NLM at the top of the NLM Customer Support page.
by Yamila El-Khayat
Outreach Services Librarian
Health Sciences Library
University of Arizona
The NIH All of Us Research Program traveling exhibit came to the University of Arizona’s Banner Health Hospital Campus on December 7, 2017. It provided an excellent opportunity to visit and learn more about the All of Us Program. At the entry, there was an introductory video that clearly and simply introduced the All of Us project. The video focused on two individuals of differing ethnicities and lifestyles, but with the same diagnosis. It focused on the importance of molding medicine to each individual because of their differences. It was a very creative way of simply defining the concept of precision medicine.
Next in the exhibit was an area to answer a couple of questions on a tablet computer. Then your picture was taken and you received a color identification from the spectrum of options. The picture was then shown framed in the identity color. No definitions were supplied regarding the colors, but I ended up being red, which according to the person giving us the tour was rare, and her first experience seeing that color. It was a further illustration of the differences in each of us. Finally, we were shown other activities and noises and had to identify what we thought they were and then shown what they really were. This was a way to learn about differing perceptions, again emphasizing the importance of uniqueness in individuals. All in all, the exhibit was an informative and entertaining way to learn more about the All of Us Research Program.All of Us Traveling Exhibit
California Governor Jerry Brown has declared a state of emergency in Ventura County due to the Thomas Fire, in San Diego County due to the Lilac Fire, and in Los Angeles County due to the Creek and Rye Fires.
The National Library of Medicine (NLM) Disaster Information Management Research Center (DIMRC) has compiled resources to assist with response and and recovery from the latest California wildfires. Information guides on disaster topics and the Disaster Lit® database provide access to curated, reliable information from vetted Federal, state, and local governments and organizations.
Key National Resources
- NLM Fires and Wildfires Information Guide
- Content syndication—embed the content of this page on your own website, to get automatic updates and new resources
- NLM Coping with Disasters, Violence and Traumatic Events
- 2017 California Wildfires (Department of Health and Human Services, Office of the Assistant Secretary for Preparedness and Response)
- Disaster Distress Helpline (Substance Abuse and Mental Health Services Administration)
- Call 1-800-985-5990 toll-free, 24/7
- Text TalkWithUs to 66746 to connect with a trained crisis counselor
Key California Resources
- California Office of Emergency Services Wildfires Resource & Information
- City of Los Angeles Creek Fire Emergency Updates and Information
- California Statewide Fire Map
- City of Los Angeles December 2017 Fires
- WIFIRE Firemap Research Project (including recent smoke concentrations, air quality)
- Air Quality: AirNow from the Environmental Protection Agency (Search by Zip Code or State)
- Search NLM Disaster Lit database
MeSH is the National Library of Medicine (NLM) controlled vocabulary thesaurus that is updated annually. NLM uses the MeSH thesaurus to index articles from thousands of biomedical journals for the MEDLINE/PubMed database and for the cataloging of books, documents, and audiovisuals acquired by the library.
Overview of Vocabulary Development and Changes for 2018 MeSH:
- 474 Descriptors added
- 106 Descriptor terms replaced with more up-to-date terminology
- 7 Descriptors deleted
- 1 Qualifier (Subheading) deleted
Totals by Type of Terminology:
- 28,939 MeSH Descriptors
- 79 Qualifiers
- 116,909 Total Descriptor Terms
- 244,154 Supplementary Concept Records
Changes of Note for 2018:
The following changes are detailed in MEDLINE Data Changes—2018.
- The MeSH qualifier (subheading) /contraindications was deleted.
- Three new Publication Types are available for 2018; Adaptive Clinical Trial, Equivalence Trial, and Expression of Concern. Three new related MeSH headings were added; Adaptive Clinical Trials as Topic, Equivalence Trial as Topic, and Proof of Concept.
- Expanded and updated terminology areas include Isotopes and Radioisotopes, Smoking, Sugars, Viruses and new Supplementary Concept Record (SCR) class for Organisms.
NIH’s All of Us Research Program Partners with NNLM to Reach Target Communities Through Local Public Libraries
The NIH All of Us Research Program and the National Library of Medicine (NLM) have teamed up to raise awareness about the program, a landmark effort to advance precision medicine. Through this collaboration, the National Network of Libraries of Medicine (NNLM) has received a $4.5 million award to support community engagement efforts by public libraries across the United States and to improve participant access. According to Eric Dishman, director of the All of Us Research Program: “We want to reach participants where they are. For many people in the country, including those with limited internet access, one of those places is the local library. We’re excited to work with the National Library of Medicine to make more people aware of All of Us and the opportunity to take part.”
The partnership is a three-year pilot program, running through April, 2020. Program objectives include:
- To increase the capacity of public library staff to improve health literacy.
- To equip public libraries with information about the All of Us Research Program to share with their local communities.
- To assess the potential impact of libraries on participant enrollment and retention.
- To highlight public libraries as a technology resource that participants can use to engage with the program, particularly those in underserved communities affected by the digital divide.
- To establish an online platform for education and training about All of Us and precision medicine, with resources for members of the public, health professionals, librarians and researchers.
- To help identify best practices in messaging and outreach that lead to increased public interest and engagement in the program.
The All of Us Research Program aims to build one of the largest, most diverse datasets of its kind for health research, with one million or more volunteers nationwide who will sign up to share their information over time. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the biological, behavioral and environmental factors that influence health and disease. Their findings may lead to more individualized health care approaches in the future.
Amanda J. Wilson, head of NLM’s National Network Coordinating Office (NNCO), and Dara Richardson-Heron, M.D., chief engagement officer of the All of Us Research Program, will lead the new partnership. Each NNLM region’s funding includes one FTE for an All of Us Point of Contact. Kelli Ham, formerly NNLM PSR Consumer Health Librarian, will fill the role in the Pacific Southwest Region. Her new title will be Community Engagement Librarian. Over the course of the pilot program, Kelli will focus her outreach efforts on various designated target geographic areas in the region, beginning with Sacramento, CA.
The All of Us Research Program is currently in beta testing. To learn more, sign up to receive updates. Precision Medicine Initiative, All of Us, the All of Us logo, and “The Future of Health Begins with You” are service marks of the U.S. Department of Health and Human Services.
Report on the Systematic Review Workshop: The Nuts and Bolts for Librarians at the University of Pittsburgh
by Sue Espe, BBA, MLIS, AHIP
Health Science Librarian
Merril W. Brown Health Sciences Library
Banner Health – University Medical Center
It is with much gratitude to the National Network Libraries of Medicine Pacific Southwest Region for providing Professional Development Award funds for me to attend the Systematic Review Workshop: The Nuts and Bolts for Librarians, on November 13 – 15, 2017, at the University of Pittsburgh. As librarians receive increasing requests to perform systematic reviews, demand for this very popular semiannual workshop has grown and seats to attend it quickly fill. This year marks the 10th year that the workshop has been taught, which attests to its strong content. About a dozen librarians with varying levels of knowledge attended this session.
Instructors Charlie Wessel, Mary Lou Klem, Barbara Folb, Andrea Ketchum and Rose Turner are experts in this area and have thoughtfully created the workshop to generously share what they have learned through the years. They each reviewed standards, recommended key resources to search, outlined the steps to be performed and emphasized the importance of being a co-investigator. Initially, the fundamentals of study design and relationship of systematic reviews were highlighted. An emphasis was made on the importance of being a co-investigator as a member of the systematic review committee, being involved from the start, not simply as a side collaborator who only performs the search. Being a co-investigator, rather than a collaborator, allows for a much deeper understanding of the project and its objectives as well as providing influential guidance. The importance of thorough reference interview sessions with the principal investigator and committee was elaborated upon through illustrative examples. At the end of the interview process, librarians should have an extensive knowledge of the project scope, including an understanding of the protocol, defining terminology, and an exhaustive list of search terms.
Learning how to harvest terms, applying them in an orderly array and incorporating them into a search strategy was taught. Having easily interoperable and transferable searches between databases is necessary. Being methodical is beneficial for follow-up, reproducibility and writing the methodology. Explanations were provided for key databases that are essential to search, along with appropriate grey literature sources. The impact and handling of bias, duplication, and documentation was discussed. Throughout the workshop, hands-on group exercises enabled attendees to collaborate with each other to determine search terms and create search strings in a logical manner. With clearly written instructions and templates to follow, the groups were able to achieve performance of what was taught. Links to essential related websites, agencies, studies and guidelines about systematic reviews were included in course materials. Useful forms, checklists, templates and charts were also included.
With minimal knowledge about systematic reviews and no expertise in the performance of systematic reviews, but a great deal of proficiency in medical librarianship, this workshop allowed me to build upon my strengths and grasp all aspects of the process. Attending the workshop strengthened my confidence as well as provided me assurance that I would be following established and legitimate methods when working with researchers, physicians and nurses to fulfill systematic reviews. Overall, this workshop was one of the most informative and practical courses that I have attended. I highly recommend this workshop and encourage anyone who has an interest in learning about the systematic review process, standards, and practice tips, to make arrangements to attend. The instructors have expert knowledge, insightful practice stories and sage guidance to share. There is a standing list of prospective attendees and seats fill quickly, so it is important to make inquires early and start planning now to attend the next workshop in April, 2018!