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The newsletter of NNLM Pacific Southwest Region
Updated: 1 hour 14 min ago

NNLM PSR Announces Three Funding Program Updates!

Wed, 2018-11-14 19:55

NNLM PSR has completed three projects related to our funding program. First, please visit our map of funded awards. This new website lets you zoom in on activities in your area and provides a brief overview of funded projects from 2016 to the present. Most entries include links to articles or other press about project achievements, and in the future we hope to include personal success stories from award recipients! Second, we added a funding guide to the NNLM PSR website, designed to answer common questions about the application process and provide a reference for award recipients to understand and comply with NNLM reporting guidelines. If you need forms, have questions about terminology, or want to know which awards are available, you’ll want to bookmark this resource. Our third project, a funding survey that closed in early October, gathered feedback about ideal outreach funding scenarios and barriers to applying for awards. Fifty-three PSR Network members responded to the survey. Although the current grant year’s funding cycle is halfway over, this exercise gave us valuable insight into our awards process that we will use in 2019 and beyond!

Overall, most respondents felt the NNLM PSR awards program is adequate, but it’s clear that we need to refine our marketing/publicity efforts. Nearly 70% of respondents have not applied for funding, and 42% cited a “lack of knowledge about funding opportunities” as the most significant barrier for not applying for an award. Institutional barriers such as a “lack of staff resources” (36%) or “lack of time” (36%) to implement a project were expected, but we were encouraged to see that very few respondents found the application process “difficult or time-consuming.”

Popular Awards

Early in the survey we asked, “What type of funding award would be most helpful to your organization?” The top three answers were Health Literacy (55%), Health Outreach (49%), and Technology Enhancement (43%).

Although we expected more interest in Disaster Preparedness from members in our region, the responses to this question dovetail with NLM’s emphasis on data science and developing partnerships with public libraries. Network members were also asked open-ended questions about ideal funding scenarios. The question that garnered the greatest response was, “If time and personnel were not a consideration, is there a ‘moonshot’ project that you would pursue to expand health information services in your community?” Some of the innovative ideas offered were:

  • “Conduct a joint project with my city’s fire department/EMS on home safety for seniors.”
  • “Host a community-wide, interdisciplinary, multiple hospital event to beta-test best practices and tools of mobile health apps to effectively triage simulated victims of mass casualty incidents… We have many university students interested in giving back to our community, but they are not trained professionals yet. This would allow them to practice and prepare at the general citizenship level while capitalizing on their tech savviness and enthusiasm to support their immediate communities.”
  • “Conduct mini-sessions for the community and student body with medical experts. Would support CA State Pathway/CTE [career technical education] initiative.”

There were also great suggestions to provide better resources for non-English speakers, partner with campus research centers, and help consumers navigate the healthcare system. All of the presented ideas have been recorded, and we hope to implement some of them in targeted award offerings in 2019.

Proposal Assistance

To gauge interest in receiving help with proposal development, we posed a few questions about writing assistance or training. The responses to most questions were overwhelmingly positive. For example, 80% of respondents answered yes to the question, “Would you be interested in grant-writing assistance?”

Some respondents offered suggestions to make the award application process easier:

  • “Provide examples of successful proposals.”
  • “Walk me through a successful grant or two and general information about what NNLM is looking for in a compelling proposal.”
  • “I could still use training on reporting/assessment.”
  • “How should I scope projects for funding opportunities (i.e., how do I decide what type of project might lend itself to funding)?”

We also asked about specific forms of support in the question, “Would any of the following resources make it easier for your organization to apply for funding?”

The vast majority of respondents (90%) noted that award templates would be helpful, and more than half were interested in writing assistance (61%) and/or grant-writing training (51%). Nearly 80% of respondents were interested in a mini-site showing funded projects. As mentioned above, the good news is that we recently posted an interactive map of our recent awards. Check it out!

In conjunction with questions about proposal assistance, we asked which health education topics are of most interest for promotional purposes. For subject matter, the most selected topics were technology-focused (e.g., integrating technology into instruction; producing online videos; designing mobile health apps) or broad-based (e.g., promoting consumer health literacy; partnering with community groups). The highest-rated topic, evidence-based medicine (EBM) (44%), was somewhat of a surprise on a list with 25 options, but that may reflect EBM’s relevance to medical students, clinicians, and policymakers as well as information scientists. MedlinePlus (64%), PubMed (52%), and mobile apps (55%), all longstanding popular NLM resources, topped the list for resources to highlight in a potential project.

Conclusion

Funding is an important part of NNLM’s mission, and we are thankful that more than 50 people took the time to complete the survey. Following are some major takeaways:

  • Diversify our award offerings. In addition to reframing our “bread and butter” funding awards to be more flexible (the limited time window to apply was a common criticism), respondents felt we need to vary our award offerings. More support for interprofessional exchange and professional development was requested, and some people requested awards geared toward specific fields such as nutrition, nursing, or consumer health.
  • Offer grant development assistance. Traditionally, NNLM PSR has not provided assistance with submitting or crafting an award application, but results showed that we may want to reconsider that policy. In 2019, we hope to offer resources for first-time applicants and access to a mentor or coach who can answer questions both pre- and post-award. Recently, we added an Award Interest Form to the NNLM PSR website. We’re happy to review award ideas at any time!
  • Provide alternative leadership models. As with our previous surveys, most respondents were from either academic health sciences libraries or hospital libraries. However, a few respondents were curious how outreach awards would look for organizations where the library is not the lead conducting the project. This scenario, where a research center or community-based organization administers outreach activities, is not common, but we have sponsored awards of this type in the past and welcome applications from any Network member.
  • Increase the frequency of award announcements. Currently, we promote funding on the PSR-News list, the NNLM PSR website, and our social media channels. Several respondents encouraged us to distribute frequent reminders just prior to and during the award application period. We agree that communication is the key to any successful endeavor, and will aim to provide regular announcements about funding opportunities throughout the year.

Many thanks to everyone who took the time to fill out the questionnaire! Your feedback is greatly appreciated and will help shape the RML’s future funding awards. If you have questions about anything presented in this article or would like to discuss funding opportunities, please contact the NNLM PSR office.

Categories: PSR, RML Blogs

University of Arizona Health Sciences Library Hosts NLM’s “Frankenstein” Traveling Exhibit!

Wed, 2018-11-14 19:01

by Annabelle Nuñez, M.A.
Associate Director, University of Arizona Health Sciences Library
University of Arizona
Tucson, Arizona

exhibit banners with two people discussing its content

NLM’s traveling exhibit, Frankenstein: Penetrating the Secrets of Nature on display at the University of Arizona Health Sciences Library

The University of Arizona Health Sciences Library (UAHSL) is hosting the National Library of Medicine’s traveling exhibit, Frankenstein: Penetrating the Secrets of Nature. On display are six, freestanding graphic panels that discuss the intersection of the medical advances of the time, and the exploration of what it means to be human. Mary Shelley, author of Frankenstein; or, The Modern Prometheus, provides the framework for the material discussed on the panels. They include information about her life and the events that inspired her desire to write the novel. A range of literature in history, mythology, philosophy, chemistry, and so much more influenced her writing. Her social network of friends and her lover, Percy Bysshe Shelley, whom she later married, also provided the intellectual stimulus for her work. Frankenstein reflected the interest of some physicians exploring facets of life and death through medically based investigations of the times in a quest to understand “the secrets of nature.”

This exhibition was developed and produced by the National Library of Medicine, National Institutes of Health. It is on display in the library’s lobby until December 1, 2018. You can visit the online exhibit where you will find additional digital content

Categories: PSR, RML Blogs

Resources to Support Wildfires Response & Recovery in Northern and Southern California

Tue, 2018-11-13 19:12

On November 8, 2018, several wildfires erupted in the Butte and Solano counties of northern California and the Los Angeles and Ventura counties of southern California. This batch of wildfires includes the Camp Fire in Butte County which is now the deadliest and most destructive wildfire in California history with 42 civilian casualties and causing extensive damage to the town of Paradise. The Woolsey Fire, which has burned for several days, has destroyed properties and singed hillsides and coastline across 96,000 acres in Los Angeles and Ventura counties. On November 9, Acting Governor Gavin Newsom issued an emergency proclamation for the counties affected by the wildfires. On November 13, President Trump approved a major disaster declaration for California. The Federal Emergency Management Agency (FEMA) announced that federal disaster assistance has been made available to the state of California to supplement state, tribal and local recovery efforts in the areas affected by wildfires beginning on November 8 and continuing.

The National Library of Medicine (NLM) Disaster Information Management Research Center (DIMRC) has compiled resources to assist with response and recovery from the latest California wildfires. Information guides on disaster topics and the Disaster Lit® database provide access to curated, reliable information from vetted Federal, state, and local governments and organizations.

Key National Resources

Key California Resources

Butte County

Los Angeles County

Key Documents

Social Media

We will continue to provide updates to this list as additional news and information about the California wildfires is received.

Categories: PSR, RML Blogs

NLM Traveling Exhibits: Hints to Enhance the Experience from a Veteran Host!

Mon, 2018-10-29 17:07

by Evelyn Kobayashi
Manager, Health Sciences Library
Kaiser Permanente Greater Southern Alameda County – San Leandro Medical Center
San Leandro, CA

The circus no longer comes to town, but NLM’s traveling exhibits do. At San Leandro Medical Center, we hosted For All the People: A Century of Citizen Action in Health Care Reform for six weeks beginning September 24, 2018. The educational program of exhibits, ranging from Renaissance Science, Magic, and Medicine in Harry Potter’s World at UC San Diego in 2012 to Frankenstein: Penetrating the Secrets of Nature at UC Riverside last summer, has recently put out a bid for new reservations in the Pacific Southwest Region. The timing is fortunate for librarians who are interested in hosting an exhibit, and who would not be? The beautiful graphics and the bite-size facts on impressive 7-foot panels, the depth of online resource materials, lesson plans, and document images make the exhibits a treat for all eyes and a valuable attention-getter for libraries.

banners of NLM traveling exhibit on display at a library

For the All the People traveling exhibit on display at Kaiser Permanente San Leandro

As a veteran of three hosting experiences, I can offer a few words of advice. The first words are: Location, location, location! Negotiation may be required to secure a spot which naturally has maximum foot traffic in your facility. After location, timing is most important. Can the exhibit co-locate and coordinate with any other event(s) that will draw viewers? These factors play an essential role in maximizing the potential viewership of every topic. Choosing an exhibit that meshes strongly with the interests of your audience is also important. As an example, we found that Pick Your Poison had a certain allure which was well beyond that of For All the People or A Voyage to Health, but reactions may differ in other communities.

After the basics are set, the next stage is to recruit a team and develop a full plan for the run-up to opening day and afterwards. The team should be volunteers (possibly from other departments or student interns) who will study the exhibit’s content and be willing to engage with visitors to answer questions, enriching the experience for both sides. Other parts of the plan may include internal and external publicity, community contacts, and small details such as a distinctive name badge for team members. Added interest can be achieved by venturing into showmanship: a carnival wheel with small prizes is a low-tech but sure-fire attraction for children. Raffles also stimulate interest and can be repeated as often as the supply of prizes allows; t-shirts and book bags make reliable incentives. Serendipity and recycling can also work to an exhibit’s advantage. In the current case at San Leandro, we inherited a large number of helium balloons from another event and have used them, gently swaying in the air conditioning breeze, to draw attention to the entire display. The hospital gift shop has obligingly refilled balloons as they flattened, and in many such instances we have found that help is gladly given if we only ask.

An unpredictable but extremely interesting element in hosting is that we never know who will stop for a visit and conversation. Visitors’ life experiences can be intimately connected to the history displayed on the panels – and they share their stories. Typical comments in our log book include “Thank you for having this exhibit. I appreciate the history that was presented.” and “Brings back memories!”

A glance at the NLM website’s map titled Exhibitions: Where We’ve Been and Where We’re Going shows that western states have had fewer exhibit events than other regions. With ingenuity and teamwork, now could be the time for Westerners to welcome more of NLM’s excellent traveling exhibits. Try one!

Categories: PSR, RML Blogs

Typhoon Yutu Resources to Support Northern Mariana Islands

Thu, 2018-10-25 19:36

On October 24, 2018, Super Typhoon Yutu tore through the U.S. Commonwealth of the Northern Mariana Islands, leaving behind collapsed buildings, downed trees and power lines. The Category 5 storm, with winds around 180 mph, was the strongest on record to ever hit U.S. soil and tied for the most powerful storm on earth in 2018, according to the National Oceanic and Atmospheric Administration. According to NPR, the islands of Saipan, Tinian and Rota remain under typhoon warnings from the National Weather Service. Guam and other islands in the region have been placed under tropical storm warnings. On October 23, President Donald J. Trump declared that an emergency existed in the Commonwealth of the Northern Mariana Islands and ordered Federal assistance to supplement Commonwealth and local response efforts due to the emergency conditions resulting from Typhoon Yutu, beginning on October 24 and continuing as necessary. Subsequently, Health and Human Services (HHS) Secretary Alex Azar declared a public health emergency in the Commonwealth of the Northern Marianas Islands (CNMI) on October 25.

With assistance from NLM’s Disaster Information Management Research Center (DIMRC), we have compiled information resources for the Northern Mariana Islands, including information guides with curated, reliable information from vetted federal, state, and local governments and organizations.

DIMRC Resources

Guidance documents, fact sheets, toolkits and more:

  • NLM Disaster Lit Search: Resources on Power Outages includes links to the most recent guidance documents, factsheets, reports to assist in preparing for and responding to power outages and blackouts.
  • HHS ASPR TRACIE Topic Collection: Utility Failures (e.g. blackouts, potable water) includes links to lessons learned from recent disasters, case studies, and toolkits designed to help healthcare planners prepare to respond to, continue functioning during, and recover from post-disaster utility failures.
  • HHS emPOWER Map 3.0 gives every public health official, emergency manager, hospital, first responder, electric company, and community member the power to discover the electricity-dependent Medicare population in their state, territory, county, and ZIP Code.

MedlinePlus

National Network of Libraries of Medicine (NNLM) Resources

Federal Agency Resources

 Agencies and Organizations

Social Media – Twitter

We will continue to provide updates to this list as additional news and information about Hurricane Yutu is received.

Categories: PSR, RML Blogs

October is Health Literacy Month!

Thu, 2018-10-18 16:28

Celebrated annually in October, Health Literacy Month is a time for organizations and individuals to promote the importance of understandable health information. This annual, worldwide, awareness-raising event has been going on since 1999. The theme for Health Literacy Month is Be a Health Literacy Hero. It’s about taking action and finding ways to improve health communication. Health Literacy Heroes are individuals, teams, or organizations who not only identify health literacy problems but also act to solve them. Health literacy refers to how well a person can get the health information and services that they need, and how well they understand them. It is also about using them to make good health decisions. More than 90 million adults in the United States have low health literacy. It affects their ability to make health decisions, and can harm their health. They may have trouble managing chronic diseases, and leading a healthy lifestyle. They may go to the hospital more often, and have poorer health overall. Find out how your library can celebrate Health Literacy Month!

Recipients of the 34th Guam Legislatures resolution as Guam’s Health Literacy Advocates

Recipients of the 34th Guam Legislatures resolution as Guam’s Health Literacy Advocates: (from left to right) Cherie Taisacan (USNH), Luis Martinez (USNH), Sen. Dennis Rodriguez, Dr. Phillip Tutnauer (GRMC), Renee Veksler (GMHA), Johnny Sablan (Department of Chamorro Affairs, Guam Public Libraries), Melliza Young (GRMC), Erica Taijeron (GRMC), Janice Baldonado (GRMC), and Kathleen Ho (GRMC)

Health literacy advocates conduct awareness campaigns through promoting use of culturally-sensitive and reader-centered health information materials, as well as by encouraging healthcare professionals to use plain language and effective communication skills when they discuss medical care with patients and their families. In the Pacific Southwest Region, Guam Regional Medical City (GRMC) joined with the island’s other hospitals and the Nieves M. Flores Public Library to host a special presentation celebrating Health Literacy Month on October 17 at the Nieves M. Flores Public Library.

GRMC Patient Education Team showing their legislative resolution certificate

GRMC Patient Education Team showing their legislative resolution certificate from the 34th Guam Legislature, honoring them as one of the island’s health literacy advocates: (from left to right) Erica Taijeron (patient educator), Janice Baldonado (patient educator), Kathleen Ho (Chief Nursing Officer), Melliza Young (Patient Education Manager) (not in photo: Kalyne Roberto, Patient Education Coordinator)

Senator Dennis Rodriguez presented a legislative resolution declaring October as Health Literacy Month and honoring the island’s health literacy advocates like GRMC, Guam Memorial Hospital, US Naval Hospital, and Nieves M. Flores Public Library. There was also a special guest reader from GRMC who read the story Tricky Treat to children at the public library. Tricky Treat is a children’s book on diabetes education created by the Native American Diabetes Project.

Your very own NNLM PSR celebrated Health Literacy Month at the 16th Annual Visión y Compromiso Conference. Yamila El-Khayat, Nora Franco, and Kelli Ham were pleased to exhibit and discuss how resources such as MedlinePlus, Healthfinder.gov, and the National Alliance on Mental Illness (NAMI) may be used to increase health literacy in the areas Visión y Compromiso serves – Washington, Oregon, Colorado, Nevada, Arizona, one region in Mexico, and 12 regions in California. Each month, 4,000 Visión y Compromiso Promotores provide 120,000 Californians with health information! Promotores are “liaisons between their communities and health and social service providers.” Learn more about Promotores. And because Promotores share and understand the nuances, lived experiences, and values that make up these cultures, they create a natural bridge between them and the health-care system. Culture affects our perceptions, definitions, and interactions with society, which is an integral piece of health literacy. Supporting the expertise and skills of groups such as Promotores highlights one way libraries can help create more health-literate societies.

Nora Franco and Yamila El-Khayat at an exhibit booth with a promotora

Nora Franco and Yamila El-Khayat introducing MedlinePlus en español to a promotora at the Visión y Compromiso conference in Ontario, CA

Another fun event was the 8th Annual Día de Los Libros and Fall into Literacy Festival held in Wilmington, California, on October 13. Surprisingly, the event was nearly rained out – highly unusual for Southern California! Luckily, the skies cleared, and Nora and Kelli shared information with many members of the community about easy-to-understand health resources in English, Spanish, and other languages. Children were delighted to receive bilingual coloring booklets about healthy activities, and visitors appreciated learning about MedlinePlus and other resources that were available en español.

How is your library celebrating Health Literacy Month?

Categories: PSR, RML Blogs

New Joint NSF/NLM Funding Announcement: Generalizable Data Science Methods for Biomedical Research

Thu, 2018-10-11 15:33

Significant advances in technology, coupled with decreasing costs associated with data collection and storage, have resulted in unprecedented access to vast amounts of health- and disease-related data. The National Library of Medicine and the Division of Mathematical Sciences in the Directorate for Mathematical and Physical Sciences (DMS) at the National Science Foundation (NSF) recognize the need to support research to develop innovative and transformative mathematical and statistical approaches to address important data-driven biomedical and health challenges. The goal of this interagency program is the development of generalizable frameworks combining first principles, science-driven models of structural, spatial and temporal behaviors with innovative analytic, mathematical, computational, and statistical approaches that can portray a fuller, more nuanced picture of a person’s health or the underlying processes.

Specific information concerning application submission and review process is through the National Science Foundation via solicitation NSF-19-500. Applicants may opt to submit proposals via Grants.gov or via the NSF FastLane system. For applications that are being considered for potential funding by NLM, the PDs/PIs will be required to submit their applications in an NIH-approved format. Anyone invited to submit to NIH will receive further information on submission procedures. Applicants will not be allowed to increase the proposed total budget or change the scientific content of the application in the submission to the NIH. The results of the first level scientific review will be presented to NLM Board of Regents for the second level of review. NLM will make final funding determinations and issue Notices of Awards to successful applicants. NLM and DMS anticipate making 8 to 10 awards, totaling up to $4 million, in fiscal year 2019. It is expected that each award will be between $200,000 to $300,000 (total costs) per year with durations of up to three years. The application submission window deadline is in early January, 2019.

Collaborative efforts that bring together researchers from the biomedical/health and the mathematical/statistical sciences communities are a requirement for this program and must be convincingly demonstrated in the proposal. While the research may be motivated by a specific application or dataset, the development of methods that are generalizable and broadly applicable is preferred and encouraged. Proposals should clearly discuss how the intended new collaborations will address a biomedical challenge and describe the use of publicly-available biomedical datasets to validate the proposed models and methodology. Applicants are expected to list specific datasets that will be used in the proposed research and demonstrate that they have access to these datasets. The Data Management Plan should describe plans to make the data available to researchers if these data are not in the public domain. Some of the important application areas currently supported by the National Library of Medicine include the following:

  • Finding biomarkers that support effective treatment through the integration of genetic and Electronic Health Records (EHR) data;
  • Understanding epigenetic effects on human health;
  • Extracting and analyzing information from EHR data;
  • Understanding the interactions of genotype and phenotype in humans by linking human sensor data with genomic data using dbGaP;
  • Protecting confidentiality of personal health information; and
  • Mining of heterogeneous data sets (e.g. clinical and environmental).

Inquiries should be directed to Jane Ye, PhD at the National Library of Medicine, (301) 594-4882.

Categories: PSR, RML Blogs

Clem McDonald, MD, Named as First NLM Chief Health Data Standards Officer

Wed, 2018-10-03 19:41
Dr. Clem McDonald

Clem McDonald, MD

NLM Director Patricia Flatley Brennan, RN, PhD, has announced the appointment of Clem McDonald, MD, to the newly created position of Chief Health Data Standards Officer for the National Library of Medicine. His appointment will be effective November 1, 2018. The new position demonstrates NLM’s strong and enduring commitment to health data standards. The Chief Health Data Standards Officer’s responsibilities will involve integrating standards efforts across the Library, including the Fast Healthcare Interoperability Resources (FHIR) interoperability standard, Common Data Elements, and the vocabularies specific to clinical care (e.g., RxNORM, LOINC, SNOMED). The chief will also develop partnerships with industry, academia, and other federal agencies to advance the use of health data standards in clinical practice, public health, and observational data, including sensors.

For the last 12 years, Dr. McDonald served as Director of the Lister Hill National Center for Biomedical Communications (LHNCBC) and Scientific Director of its intramural research program. His research focuses on clinical informatics; tools based on HL7’s FHIR to facilitate the use of electronic health records and research bases; the analysis of large clinical databases; the promotion, development, enhancement, and adoption of clinical messaging and vocabulary standards; and text de-identification. Prior to coming to NLM, Dr. McDonald served as the Regenstrief Professor of Medical Informatics at the Indiana University School of Medicine and the Director of the Regenstrief Institute for Health Care, a privately endowed research institute working to integrate research discovery, technological advances, and systems improvement into the practice of medicine. Dr. McDonald developed the Regenstrief Medical Record, one of the first electronic health record systems, and introduced the use of randomized trials to study health information systems. With NLM support, he and his colleagues developed the first Health Information Exchange, now loaded with 6 billion results from hospitals across Indiana. He also initiated the Logical Observation Identifier Names and Codes (LOINC) database observations for laboratory tests, clinical measurements, and clinical reports, and he was one of the founders of the Health Level 7 (HL7) message standards, used in hospitals today.

Effective November 1, Milton Corn, MD, Deputy Director of NLM for Research and Education, will also assume the responsibilities of Acting Scientific Director, LHNCBC. Olivier Bodenreider, MD, PhD, Chief of the Cognitive Science Branch at LHNCBC and a Principal Investigator in NLM’s Intramural Research Program, has been selected to become Acting Director, LHNCBC. Jerry Sheehan, NLM Deputy Director, will provide executive oversight and guidance.

Categories: PSR, RML Blogs

NLM Funds Study to Forecast Long-Term Costs of Data

Wed, 2018-10-03 19:39

The National Library of Medicine has teamed up with the National Academies of Sciences, Engineering, and Medicine (NASEM) to conduct a study on forecasting the long-term costs for preserving, archiving, and promoting access to biomedical data. The study is being conducted as part of the NLM’s efforts to develop a sustainable data ecosystem, as outlined in both the NLM Strategic Plan and the NIH Strategic Plan for Data Science. Such an ecosystem is possible because the products and processes of research are now digital by default, and increasingly sophisticated and powerful computation can now be brought to data, rendering meaning that had previously been hidden. Across the biomedical sciences, decisions must be made about where in this ecosystem to invest limited resources to maximize the value of the data for scientific progress; strategies are needed to address question such as: What is the future value of research data? For how long must a dataset be preserved before it should be reviewed for long-term archiving? And what are the resources necessary to support long-term data storage?

For this study, NASEM will appoint an ad hoc committee to develop a framework for forecasting these costs and estimating potential benefits to research. The committee will examine and evaluate:

  • Economic factors to be considered when examining the life-cycle cost for data sets (e.g., data acquisition, preservation, and dissemination);
  • Cost consequences for various practices in accessioning and de-accessioning data sets;
  • Economic factors to be considered in designating data sets as high value;
  • Assumptions built in to the data collection and/or modeling processes;
  • Anticipated technological disruptors and future developments in data science in a 5- to 10-year horizon; and
  • Critical factors for successful adoption of data forecasting approaches by research and program management staff.

The committee will provide a consensus report and two case studies illustrating the framework’s application to different biomedical contexts relevant to NLM’s data resources. Relevant life-cycle costs will be delineated, as will any assumptions underlying the models. To the extent practicable, NASEM will identify strategies to communicate results and gain acceptance of the applicability of these models. As highlighted in a recent blog post, NASEM will host a two-day public workshop in late June 2019 to generate ideas and approaches for the committee to consider. Further details on the workshop and public participation will be made available in the coming months.

NLM is supporting NASEM’s efforts to solicit names of committee members, as well as topics for the committee to consider. Suggestions should be sent to Michelle Schwalbe, Director of NASEM’s Board on Mathematical Sciences and Analytics, or Elizabeth Kittrie, NLM Senior Planning and Evaluation Officer.

Categories: PSR, RML Blogs

Network Members in the Spotlight!

Fri, 2018-09-28 13:50

We would like to recognize the following network members by highlighting their accomplishments, promotions, awards, new positions, and departures. We welcome your submissions for possible future announcements!

Jerry Kauppila is the new NNLM PSR Program and Outreach Assistant for the NNLM All of Us program effective August 15.

Nora Franco is the new NNLM PSR Consumer Health Librarian, beginning August 1.

M. Wynn Tranfield is the new Physical and Basic Sciences Librarian at UCLA, effective August 8.

Jennifer Fiterre is the new medical librarian at Marshall Community Health Library in Cameron Park, CA.

Chris Shaffer, University Librarian and Assistant Vice Chancellor for academic information management at the University of California, San Francisco, began a three-year term as the Association of Academic Health Sciences Libraries (AAHSL) senior representative to the Association of American Medical Colleges (AAMC) Council of Faculty and Academic Societies (CFAS) on July 1.

Terry Henner, Associate Professor at the University of Nevada, Reno, School of Medicine Savitt Medical Library, is the author of the article “A Community and Medical Library Collaboration to Address Senior Caregivers Barriers to Health Services Access,” published in the April-June 2018 issue of the Journal of Consumer Health on the Internet.

Jeff Loo is the new Clinical Librarian at the University of California, San Diego Library.

Andrea Lynch, Scholarly Communications Librarian at the Lee Graff Medical & Scientific Library at the City of Hope, is featured in a video chat as part of her participation in the NNLM Biomedical and Health Research Data Management (RDM) for Librarians spring 2018 course, followed by a two-day Capstone Summit held at the NIH campus.

Evelyn Kobayashi, Library Manager of the Kaiser Permanente Medical Center Health Sciences Library in San Leandro, CA, was featured in a post on NLM’s Circulating Now blog about hosting the Pick Your Poison: Intoxicating Pleasures and Medical Prescriptions NLM traveling exhibit in September 2018.

Kathleen Carlson, former Education Librarian at the University of Arizona College of Medicine, Phoenix, is the author of the article “One Librarian’s Participation in the 19th International Conference on Grey Literature (GL19),” published in the Journal of Hospital Librarianship, volume 18(3), 2018.

Carrie Grinstead, Medical Librarian at Providence Saint Joseph Medical Center Health Sciences Library, is the lead author of the article “ProjectShare: Partnering With Nursing Professionals to Track Local Research,” published in the Journal of Hospital Librarianship, volume 18(3), 2018.

Kelli Hines, Scholarly Communications Librarian, Western University of Health Sciences Harriet & Philip Pumerantz Library, co-authored the article, “Accuracy and Usability of Medication Identifiers for Solid Oral Medications,” published online in the Journal of the American College of Clinical Pharmacy in July, 2018.

Categories: PSR, RML Blogs

Celebra y Prepárate for Hispanic Heritage Month!

Wed, 2018-09-26 19:53

September 15 marks the kickoff of Latino/a (Latinx), also known as Hispanic Heritage Month! Fun fact: the month of observing and honoring Latinx History started as Hispanic Heritage Week in 1968 and expanded to a full 30 days in 1988. In addition to celebrating our history, nurturing and rejoicing in our health is equally as important! We know filling our plates with healthy food choices and exercising are among the many ways to improve our health – but have you added preparing for disasters and emergencies to this list? When disasters or emergencies occur we may suffer from psychological or physical trauma, but organizing ourselves ahead of time may aid or prevent them if we do experience these events. September is also National Preparedness Month, and me siento muy excited (Selena fans will appreciate the joke), to share both Spanish and English resources available to help people create their personal plans.

The 2018 themes are found on Listo.Gov and listed below, along with coinciding resources and topics. Visit the links for more information and feel free to send me your thoughts and suggestions!

Planee Para Un Emergencia Foto

La imagen muestra a una mujer embarazada con una burbuja de pensamientos que contiene imágenes que representan elementos de los preparativos que se enumeran a continuación. Logotipo de Habilidades para Salvar Vidas en forma de salvavidas. Logotipo Listo con una marca de verificación.

Week 1: Make and Practice Your Plan

Week 2: Learn Life Saving Skills

  • Practice fire drills & escape plans.
  • Install natural gas & smoke detectors.
  • Gather supplies in case of power outages.

Week 3: Check Your Coverage

Week 4: Save For an Emergency

Do you feel ready if a disaster or emergency occurs? What resources or tools have you used to help you prepare? As this video demonstrates, you can’t add a disaster to your calendar ahead of time, but you can add your plan. So the next time you celebrate Latinx Heritage Month, take a moment to refresh your plan and ready yourself!

Nora standing next to the Discovery of Gold mural outside the Hispanic Reading Room in the Library of Congress

Categories: PSR, RML Blogs

Call for Volunteers: NNLM Wikipedia Edit-a-thon on November 7 Focusing on Women’s Health!

Wed, 2018-09-26 16:15

Participate in the NNLM Fall Wikipedia Edit-a-thon on Wednesday, November 7, and make it more successful than the April event, which focused on rare diseases! To achieve this goal, join the Wikipedia Help Team and NNLM staff across the nation and volunteer for a one-hour shift between 7:00 AM to 5:00 PM PST to add citations to, and improve existing Wikipedia articles on women’s health, using trusted NLM and NIH resources. Utilize your research skills to make Wikipedia a better, more evidence-based resource for people looking for information on women’s health! In order to participate, you must create a Wikipedia user account prior to the event.

Sign up to provide virtual support to participants by contacting RML staff listed in the Schedule Table. Our own Nora Franco, PSR Consumer Health Librarian, will participate from 1:00-2:00 PM PST. Also, plan to attend and register for the three-part NNLM Wikipedia Fall 2018 Edit-a-thon training on October 3, 17, and 31, 11:00-11:30am PDT. If you are unable to attend all sessions, registrants will receive a recording of the entire training. Session 1 on 10/3 will provide an introductory overview on the importance of Wikipedia for librarians, and will give information about the Edit-a-thon. In Session 2 on 10/17, learn how to be prepared by creating a Wikipedia account, editing articles on medical topics, and getting ready for the event day. The final session on 10/31 will provide a highlight of women’s health resources from the NLM, including how to identify and evaluate pertinent information resources for possible use in the Edit-a-thon.

On November 7, you can follow along with all the fun on Twitter, with hashtag #citeNLM2018!

illustration of a woman looking at a computer screen with hashtag citeNLM2018

Categories: PSR, RML Blogs

Feedback Requested: Respond to the NNLM PSR Funding Award Survey by October 5!

Thu, 2018-09-20 18:43

We invite your participation in NNLM PSR’s Funding Awards survey! Please submit responses by Friday, October 5.

This questionnaire is designed to assist us with a better understanding of interest in NNLM funding awards and to ascertain if there are unmet needs among Network members. Feedback will also be used to simplify the application process. The survey should take less than 10 minutes to complete. It includes a few open-ended questions about ideal funding scenarios. Responses will be used to shape future award offerings and the allocation of NNLM PSR resources.

We appreciate your participation and look forward to the results!

Categories: PSR, RML Blogs

New NNLM PSR All of Us Project & Outreach Assistant: Jerry Kauppila!

Tue, 2018-08-28 13:20

Hi, my name is Jerry Kauppila.

Jerry Kauppila in front of Eagle River Store, with camera around neck, eating ice cream cone.

Ice Cream and Photography!

I am excited to join the All of Us team at the NNLM PSR as the Project and Outreach Assistant, and look forward to working on this research and outreach program.

Born and raised a “Yooper” on the southern shore of Lake Superior in Michigan’s Upper Peninsula, I headed south and west chasing the sun and a variety of job opportunities. I fell in love with Southern California and all it has to offer with great trails for hiking/running, miles of beaches, amazing food, and diverse culture. I saw the boom and bust of the internet startup age, was blessed with the opportunity to teach computers to elementary students, and filled my memoirs with tales from flower shops across the country–who knew the stories could be so crazy?! More recently I have found a passion for street photography, and expanding my knowledge for creating content for social media and marketing.

If you are interested in finding out more about me, follow my Instagram account or send me an email.

Categories: PSR, RML Blogs

Hurricane Lane Resources to Support Hawaiian Islands

Thu, 2018-08-23 19:33

On August 21, 2018, Hawaii Governor David Ige signed an emergency proclamation in advance of the arrival of Hurricane Lane. The emergency proclamation allows the state to be proactive by pre-positioning state assets to support county emergency responders.  On August 22, the President approved Governor Ige’s request for presidential disaster declaration to provide appropriate assistance for emergency measures to save lives and protect property and public health and safety, or to lessen or avert the threat of a catastrophe in the designated areas.

With assistance from NLM’s Disaster Information Management Research Center (DIMRC), we have compiled many hurricane resources including information guides with curated, reliable information from vetted federal, state, and local governments and organizations.

Key National Resources

Key Hawaii Resources

Emergency Alerts

Social Media

Twitter

Facebook

YouTube

Categories: PSR, RML Blogs

Comics’ Medicinal Value Featured in NLM Traveling Exhibit Hosted by San Diego Public Library

Mon, 2018-08-20 15:55

by Laura S. Kyle
Assistant, Arts and Culture Exhibitions
San Diego Public Library

The medical world is opening to comic books. No, your surgeon isn’t learning scalpel technique from Superman, but professional caregivers and their patients increasingly turn to graphic literature when communicating about sickness and death.

Man dressed as Han Solo looking at one the Graphic Mediicine displays

A costumed Hans Solo learns about the emergence of medical graphic literature from an NLM exhibit at the San Diego Public Library.

It makes sense: Although they carry authority, words are distant and weak just when the human experience is most complex and deeply nuanced. Add pictures, however, and interpretation comes into play. What’s ineffable begins to be understandable. Think of an emoji. That’s the message behind a traveling exhibit from the History of Medicine Division of the National Library of Medicine. “Text and images work together to create meaning neither conveys alone,” states a banner in the exhibit, titled Graphic Medicine: Ill-Conceived & Well-Drawn.

The exhibit’s six banners explain the elements of graphic literature and why the genre is so effective for medical communication. From a patient’s perspective, graphic literature’s friendly and familiar approach can counterbalance the cold, hard facts of medicine. For caregivers, it can open insight to a patient’s experience and provide feedback on quality of care. What’s more, well-designed graphics can convey a wealth of technical information at a memorable glance.

Each banner has examples from medical graphic texts such as Cancer Vixen: A True Story, by Marisa Acocella Marchetto; Tangles: A Story About Alzheimer’s, My Mother, and Me, by Sarah Leavitt; and Taking Turns: Stories from HIV/AIDS Care Unit 371, by MK Czerwiec. The exhibit’s curator, Ellen Forney, herself creates such literature about her own experiences as a patient.

Until recently, the exhibit was at an especially opportune venue: San Diego’s Central Library during July 2018, just a few blocks from Comic-Con, the granddaddy of popular culture events. San Diego’s Comic-Con is such a big deal that events spill over into the Central Library. As a result, thousands of attendees were exposed to Graphic Medicine and the emerging concept of graphic medical literature. The exhibit generated an unusual amount of interest and heavy viewing traffic while in San Diego. The NLM has received numerous requests from organizations hoping to borrow the already wait-listed exhibit. Send your organization’s application today!

And that thing about Superman teaching surgeons? It’s not so far-fetched. Penn State University, for example, has a Graphic Medicine press. Among its offerings are “comics used in medical training and education, as well as monographic studies and edited collections from scholars, practitioners and medical educators.”

Categories: PSR, RML Blogs

New NNLM PSR Consumer Health Librarian: Nora Franco!

Fri, 2018-08-10 19:31

Hola! My name is Nora Franco, and I would like to say hello as the new Consumer Health Librarian for the NNLM PSR at UCLA! My passion for medical librarianship began as an LIS student at the University of North Texas, where I was first exposed to the array of librarian specializations, including health sciences librarianship. While in the Health Informatics program, I was able to complete an internship at the Disaster Information Management Research Center (DIMRC), part of the Specialized Information Services (SIS) division at NLM. Joining the PSR team makes me feel things have come full circle!

Nora Franco

Nora Franco

I come to the West Coast after living on no coast, AKA the Midwest, working as an embedded Clinical Medical Librarian for the University of Missouri-Kansas City (UMKC) Health Sciences Library. For anyone unfamiliar with the history of Clinical Medical Librarians, the program began nationally at UMKC through a National Library of Medicine grant. While in Kansas City, I worked closely with the School of Medicine, Nursing, and Pharmacy constituents. One of my favorite instructional sessions that I developed was a Consumer Health Information Resources course for the Drug Information Center. Not only was I able to expose pharmacy residents to quality health information resources, including NLM products, but I was able to learn about provider-patient communication, and how medical librarians can facilitate the development of them. Other activities while at UMKC and Kansas City include:

I am very fortunate and excited to work closely alongside other PSR staff members, particularly Kelli Ham, former PSR Consumer Health Librarian. While Kelli takes on her new position with the All of Us Research Program, I will assist her in many of her outreach efforts. Feel free to reach out to me with questions or to get to know me better by sending an email message, or giving me a call at 310-794-6572. I look forward to meeting and learning from the variety of PSR Network members!

Categories: PSR, RML Blogs

NNLM PSR Sponsors MLA Education Webinar

Wed, 2018-08-01 11:44

NNLM PSR sponsored seven sites for the MLA webinar, Aligning the Three Pillars of Effective Instruction: Outcomes, Teaching, and Assessment for Health Sciences Librarians. Feedback was positive and several hosts reported that the session was effective for both new and experienced teachers. One host commented, “The webinar was great! It was exactly what I was looking for to build the skills of our team.” Another noted that the webinar was “very practical and transferable to other librarians who teach in various areas, such as data science or scholarly communication.”

We have a limited number of surplus access codes for the webinar. Please complete this brief survey if you are interested in viewing the recording. Once your request has been approved, you will be emailed a code that will provide access to resources, an evaluation, and a certificate to claim 1.5 MLA CE contact hours.

The following sites hosted the live webcast:

Arizona

Central Arizona Biomedical Libraries
Host: Adrienne Brodie

California

University of California, San Francisco
Host: Min-Lin Fang

Kaiser Permanente
Host: Ana Macias

Mount Saint Mary’s University
Host: Danielle Salomon

Western University of Health Sciences
Host: Kelli Hines

Hawaii

Hawaii State Hospital
Host: Lisa Anne Matsumoto

Nevada

University of Nevada, Reno
Host: Mary Schultz

Thanks to everyone who made it possible for members from our region to attend! In November 2018, NNLM PSR will sponsor another MLA webinar: Using Stories to Support Academic Instruction and Health Education. Be on the lookout for an announcement from the PSR-News email list.

Categories: PSR, RML Blogs