All of Us
To celebrate the one-year anniversary of the launch of the NIH All of Us Research Program, the All of Us Speaker Series is hosting the 90-minute session From Data to Discoveries: Creating a Research Program for All of Us on Monday, May 6, 8:00-9:30 AM PDT. The free event is open to the public and will be hosted on the NIH Facebook page, featuring presentations from NIH Director Dr. Francis Collins, All of Us Research Program Director Eric Dishman, National Institute on Drug Abuse Director Dr. Nora Volkow, and other colleagues.
Please join the All of Us Research Program for the next event in their Speaker Series, “From Data to Discoveries: Creating a Research Program for All of Us. ” As the All of Us Research Program marks its first year working to build the largest, most diverse research programs of its kind, this symposium will address what it takes to create an engaged participant community and its potential for scientific impact.
When: Monday, May 6 from 10:00-11:30 AM ET
Where: In person or on Facebook Live (details below)
What: Speakers include: Dr. Francis Collins, National Institutes of Health; Eric Dishman, All of Us Research Program; Dr. Nora Volkow, National Institute on Drug Abuse; Ana Pavón, All of Us Participant Ambassador; Dr. Robert A. Winn, University of Illinois at Chicago; Deven McGraw, Ciitizen; Dr. Elizabeth Cohn, Hunter-Bellevue School of Nursing; and David Glazer, Verily.
Do you live in the D.C., Maryland, or Virginia area? Join the symposium in person at:
The National Institutes of Health (NIH)
Clinical Center, Building 10
Bring your ID and arrive early to give yourself time to find the auditorium. Go to NIH’s Visitor Information page for maps and more information.
Can’t join this next event in the Speaker Series in person? No problem! The symposium will also be hosted on Facebook Live where you can tune in to the event and leave your questions. If you miss it, an archive of the event will be available. RSVP today!
For more information, visit joinallofus.org/conversations.
Are you attending the Medical Library Association conference beginning next week? If you are, consider attending Advancing Health Equity through Evidence-Based Public Health: How to Find the Evidence, a continuing education session presented by our Health Professionals Outreach Specialist, Derek Johnson and Elaina Vitale, Academic Coordinator for the NNLM Middle Atlantic Region. There’s still room available in the session, and it’s not too late to register!
Be sure to stop by poster sessions presented by our team, Is Learning Actually Happening? Investigating Course Outcomes Beyond Traditional Evaluation, presented by Rachel Gatewood and Bobbi Newman, and Stand Up for Health: Health and Wellness Services for Your Community, presented by Bobbi Newman, Carolyn Martin, Consumer Health Coordinator for the NNLM Pacific Northwest Region and Margot Malachowski, Education and Outreach Coordinator for the New England Region. Also, check out a couple of presentations on projects funded by our office: A Health Sciences Library Empowering Community Health, presented by Tiffany Grant, Sharon Purtee, and Don Jason from the University of Cincinnati and Health Literacy of Refugee Populations, presented by Margaret Zimmerman from the University of Iowa School of Library and Information Science.
Stop by the National Library of Medicine booth in the exhibit hall, where you will have the opportunity to talk with our staff about the NNLM All of Us National Program, an activity led by Britt Thomas, our Community Engagement Center manager. Check out the promotional video Britt created about this opportunity!
While you’re networking at the meeting, look for our staff, including Sam Watson, Jacqueline Leskovec, Derek Johnson, Bobbi Newman, Darlene Kaskie, Linda Walton, and myself. Have something you’d like to chat about? Reach out to us in advance and set up a meeting at MLA with one of our team members.
Because mental health conditions, such as depression or anxiety, are real, common and treatable, the National Institute of Mental Health (NIMH)(link is external) recognizes the importance of scientific research to advance medical breakthroughs. To help raise awareness, May is recognized by the National Health Observances as Mental Health Month(link is external).
The NNLM Reading Club has a new Reading Guide for Mental Health Month. In this guide, you will find a variety of trustworthy resources and program ideas to support health education and reduce the stigma often associated with mental health disorders. Select one of the NNLM Reading Club selected books, share the information, and start the conversation.
It’s hard to believe, but this time last year the All of Us Research Program launched across the country. All of Us would like to invite you to the program’s one-year commemoration of national launch. The National Institutes of Health is hosting a symposium, “From Data to Discoveries: Creating a Research Program for All of Us.” Featured speakers include NIH Director Francis S. Collins, M.D., Ph.D., All of Us Research Program Director Eric Dishman, and National Institute on Drug Abuse Director Nora D. Volkow, M.D. See the entire agenda here.
This event is free and open to the public or watch it live online
All Americans need access to current, reliable health information, especially as we navigate complex issues like health care, insurance and aging. Public libraries are a go-to resource throughout this journey.
Healthy Community Tools for Public Libraries, a project of the National Network of Libraries of Medicine (NNLM) and the Public Library Association (PLA), brings together a host of resources to help public libraries better serve their patrons’ health needs.
Most recently, PLA has added a nationwide online scheduling tool that allows users to search for free, local healthcare enrollment assistance.
Through this partnership, PLA will launch a new survey intended to measure the effectiveness of public libraries’ consumer health programming in Project Outcome, the association’s free toolkit designed to help public libraries understand and share the impact of essential library services and programs. The survey will be added to Project Outcome in April 2019. “With this new survey, PLA seeks to expand public libraries’ capacity to apply outcome data in decision-making and planning around consumer health programming and services,” remarks PLA President Monique le Conge Ziesenhenne, Ph.D. “We’re thrilled to team up with NNLM on this important project.”
Learn how Project Outcome can help your public library measure the outcomes of its health programs and services during a free webinar on May 16th at 1:00pm. Learn more about the project and register for the webinar here!
The All of Us Journey, a traveling exhibit that teaches visitors about precision medicine and the All of Us Research Program, is visiting St. Louis, Mo., now through April 26.
The Journey Exhibit, along with its Mobile Education and Enrollment Center, will be at A.T. Still University at the National Alliance for Hispanic Health and at two campuses of St. Louis University.
The All of Us Research Program aims to sign up a million or more participants to share their health data in the interest of diversifying biomedical research. The nationwide effort is designed to accelerate research and improve health by considering each individual’s lifestyle, surrounding environment and biology that can impact their health differently than others.
Following is the Journey schedule for the St. Louis area:
National Alliance for Hispanic Health
A.T. Still University
1500 Park and Carroll Street
10 a.m. to 4 p.m.
St. Louis University
1309 Carr Lane Ave.
9 a.m. to 4 p.m.
3614 West Pine Mall Blvd
Across the street from
Busch Student Center
9 a.m. to 4 p.m.
Where will the Journey bus travel to next? Go to https://www.joinallofus.org/en/journey to check out upcoming visits.
The Office of Minority Health and the National Institute of Minority Health and Health Disparities are co-hosting a bilingual Twitter chat about physical activity and good nutrition on Wednesday, April 17th at 2 pm ET. They’ll chat about all things public health, celebrate everything public health has accomplished and talk about where the movement is going.
April 7th-13th, 2019 is National Library Week. The American Library Association’s (ALA) National Library Week theme is simple, but compelling: how libraries equate to building strong communities.
The NLM, located on the NIH campus in Bethesda, MD, was founded in the year 1836 as the Library of the Surgeon General’s Office, the medical literature repository of the U.S. Army Surgeon General. It is the world’s largest biomedical library and has been searched billion of times by millions of people around the world. NLM also founded and funds the National Network of Libraries of Medicine (NNLM).
The historical formation of the NNLM goes back to 1965 when it was called the Regional Medical Library (RML) Program and consisted of 11 regional medical libraries. The RML Program was the manifestation of the 1965 Medical Library Assistance Act, which authorized the NLM to provide grant funding to improve the condition and potential of American medical libraries; among the many grants that came from the Medical Library Assistance Act, a grant for the development of a national systems of regional medical libraries was given to the NLM.
It wasn’t until 1990, that the RML Program became what is known as the NNLM. The current overarching mission of the NNLM is to “provide all U.S. health professional with equal access to biomedical information” and to “improve the public’s access to information to enable them to make informed decisions about their health”.
Last year in 2018, the NNLM and the Public Library Association (PLA) forged a new partnership that increased public library workers’ knowledge and skills related to consumer health services, called the “Promoting Healthy Communities Initiative”. In 2017, the NNLM was honored to be selected as a community partner of the National Institutes of Health (NIH)’s All of Us Research Program which has a mission to accelerate health research and medical breakthroughs enabling individualized prevention, treatment and care. All of Us will partner with one million or more people across the United States to provide the most diverse biomedical data resource in history. All of Us will make this resource available to all researchers, helping them to gain better insights into the biological, environmental, and behavioral factors that—separately and combined—influence health.
PLA has now joined forces with NNLM to promote NIH’s All of Us Research Program. and work together with public libraries to increase “health literacy, address health research inequities, and strengthen community partnerships with health advocates and providers.”
The NNLM is proud of the PLA partnership, a strong reminder of how libraries build strong communities of health through such collaborations and outreach. Happy National Library Week everyone!!! Enjoy being a part of your community and effectively, your medical/health sciences/public library!
The NNLM All of Us Community Engagement Network is pleased to announce its three book selections in support of Mental Health Awareness, a May National Health Observance.
- Everything Here is Beautiful by Mira T Lee
- RX: A Graphic Memoir by Rachel Lindsay
- Gorilla and the Bird by Zack McDermott
To learn more about each of these titles, download book discussion guides, promotional materials and corresponding mental health information or to apply for a free NNLM Reading Club Book kit, visit the NNLM Reading Club Selection Guide: Mental Health.
The NNLM Reading Club Book Kit can be requested and shipped free from a participating National Network of Libraries of Medicine regional office. Applicants must sign up for membership with NNLM in order to receive a kit. A standard NNLM Reading Club Book Kit includes:
- 8 books
- 8 bookmarks
- 8 discussion guides
- 8 NIH MedlinePlus Magazines
- 8 NIH All of Us Research Program brochures
- 8 reading club bags
Libraries and organizations who participated in the previous book club themes of Family Health History and Heart Health can request another free book club kit in this new selection. Kit requests must be received by April 30th. To request a book club kit, complete an application.
April features Minority Health Month, Citizen Science Day, National Prescription Drug Take Back Day and Air Quality Awareness Week.
Libraries can engage their communities in these health-related celebrations with helpful resources and promotional materials offered by the National Network of Libraries of Medicine.
The materials are part of NNLM’s campaign to supply libraries with materials and programming ideas based on noteworthy national health observances like National Immunization Awareness Month in August or Family Health History Day in November. The selection of available materials will be updated monthly as new health observances approach.
Resources and promotional materials for April are available at https://nnlm.gov/all-of-us/national-health-observances#toc-2. Here is a list of the items:Minority Health Month
- Electronic bulletin slides:
- Electronic bulletin slide: Citizen Science Day: Scistarter
- Printer-friendly poster (11″X17″): Because Anyone Can Be A Citizen Scientist(Available for order!)
- Webinar: Citizen Science Day 2019 | Midday at the Oasis (Feb.20, 2019) (link is external)
- Program curriculum:
- Electronic bulletin slides:
Connection, education, participation, and empowerment—these are defining characteristics of strong and healthy communities.
A recent partnership between the National Network Libraries of Medicine (NNLM) and the All of Us Research Program seeks to build and strengthen these characteristics in communities across the U.S. The mission of the NNLM is to “to advance the progress of medicine and improve public health by providing all U.S. health professionals with equal access to biomedical information and improve the public’s access to information to enable them to make informed decisions about their health.”
The All of Us Research Program aims to advance discovery in biomedical research and improve health by providing more precise, individualized treatments for disease. The All of Us Research Program is a clinical trial that seeks the participation of over one million individuals traditionally underrepresented in biomedical research—people of color, women, people of diverse sexual orientations and identities, and people from diverse environments and socioeconomic backgrounds—to make biomedical advancements possible.
The NNLM/All of Us partnership empowers public libraries to educate the public about the All of Us Research Program and connect participants with health information. Through the partnership, libraries are encouraging people to take an active role in their health, by asking questions, learning about data privacy and informed consent, and learning how to find reliable health information. Libraries are also encouraging the public to participate in discussions about research ethics and genetics, and to think critically about these issues when assessing the value of their own contributions, as individual participants, to clinical research, medical advancements, and health of their communities. Libraries empower their communities by listening to their health needs, convening discussions, offering health and wellness programs, and finding answers to their health related questions.
Libraries truly are the foundations of strong and healthy communities through connection, education, participation, and empowerment. The NNLM encourages you to celebrate National Library Week, April 7-13, and discover how libraries are building a strong community.
Because mental health conditions are real, common and treatable, May is recognized as Mental Health Month – as noted on the National Health Observances calendar. To help raise awareness and to find a variety of trustworthy resources and program ideas to help educate and reduce the stigma often associated with mental health disorders, choose one of the NNLM Reading Club’s featured selections. Read the book, share the information, and start the conversation.
The National Network of Libraries of Medicine, Middle Atlantic Region, is here to help with your summer health programming! As partners of the Collaborative Summer Library Program’s A Universe of Stories, we are excited to offer a program-in-a-box that explores DNA and space! This kit is available only to NNLM members in New York, New Jersey, Delaware, and Pennsylvania. Programs in this kit are designed for kids and teens, but can be adapted to any audience.
The Exploring Genetics with Kids and Teens Kit includes:
- 3 Storytime Books: The Baby Biochemist: DNA, Mousetronaut, and Goodnight Lab: A Scientific Parody
- 1 copy of Promoting Individual and Community Health at the Library
- Lesson plans for modeling DNA with candy and making DNA sequence bracelets.
- Program supplies: pipe cleaners, tooth picks, and beads
- Brochures to connect patrons to reliable sources of health information
- Information about the All of Us Research Program
Each NNLM MAR member organization may order one kit. The deadline to order is April 30, 2019. Kits will be mailed by May 24, 2019.
The staff of the National Network of Libraries of Medicine, Middle Atlantic Region, is hitting the road! Please introduce yourself at any of these meetings. If you would like to schedule a few minutes to speak with us about your projects and partnership opportunities, please contact us.
New Jersey League for Nursing: Health Professions Coordinator Erin Seger will present “Not So Fast Dr. Google: Finding Trusted Health Information Online” at the New Jersey League for Nursing annual conference in Atlantic City, NJ, March 27-28.
Pennsylvania State Academy of Nutrition and Dietetics: Erin Seger will exhibit at the PA State Academy of Nutrition and Dietetics Annual Meeting and Exhibition in Pittsburgh, PA on March 29.
Pennsylvania State System of Higher Education Library Cooperative: Executive Director Kate Flewelling will be the luncheon speaker at the Spring Conference, in Harrisburg, PA on April 1. Her talk is entitled, “But I’m Not a Medical Librarian”: How the National Library of Medicine and National Network of Libraries of Medicine Support You.
Health Sciences Library Association of New Jersey and Philadelphia Chapter of MLA: Academic and Data Services Coordinator Elaina Vitale will present virtual NLM/NNLM Updates to HSLANJ on March 30 and to MLA – Phil on April 5.
Pennsylvania Community and Public Health Conference: All of Us Community Engagement Coordinator Veronica Leigh Milliner will co-present with All of Us Pennsylvania and exhibit in Lancaster, PA on April 2.
Wisconsin Health Literacy Summit: Education and Health Literacy Coordinator Michelle Burda will present “Health Online & National Network of Libraries of Medicine Funding Opportunities” with Caitlyn Mowatt, BS, Health Communications Specialist, Wisconsin Health Literacy in Madison, WI, April 2-3.
New York Emergency Nurses Association: Michelle Burda will exhibit in Saratoga Springs, NY, April 11-12.
Urban Libraries Conference: Michael Balkenhol will attend the Urban Librarians Conference in Brooklyn, NY, on April 12.
Unity 2019: Erin Seger will present “Link Your Community with Quality Health Information: A Skill Building Workshop” at the 20th annual Unity Community Health Worker national conference in Las Vegas, NV, April 14-17.
Special Libraries Association, Pharmaceutical and Health Technology Section: Elaina Vitale will present “From Apples to Oranges: Using Trusted National Library of Medicine Resources to Inform Comparative Effectiveness,” in Philadelphia, PA, April 14-16.
Medical Library Association: Many of our NNLM and NLM colleagues will attend the Medical Library Association conference in Chicago, IL, May 3-8. Congratulations to Elaina Vitale, who will be recognized as a 2019-2020 Rising Star!
- Elaina (MAR) and Derek Johnson (GMR) will co-teach CE502, Advancing Health Equity through Evidence-Based Public Health: How to Find the Evidence on May 4 from 8:00 AM-12:00 PM.
- Elaina will deliver an immersion session, “Elevating Health Equity: Wikipedia-Edit-a-thon” with Aimee Gogan (formerly SEA) and Alicia Lillich (MCR) on May 6 from 2:00-3:30 PM.
- Elaina will co-present a poster, “Collaboration and Innovation: NNLM’s Nationwide Online Wikipedia Edit-a-Thons”
- Kate Flewelling will present a paper, “Distracted in the library: Supporting staff and patrons with ADHD” on May 7 from 4:35-4:50 PM
- Kate, Elaina, and Michelle Burda will be available with other NNLM and NLM staff at the NLM exhibit booth throughout the conference.
Pennsylvania Health Literacy Coalition: Michelle Burda will attend the PA Health Literacy Coalition Annual Meeting, May 14-15 in Harrisburg, PA.
Future Thinking for Health Sciences Librarians: Kate Flewelling will attend Future Thinking For Health Sciences Librarians, sponsored by MLA – Phil, in Philadelphia, PA on May 20.
New Jersey Chapter of the American Academy of Pediatrics: Erin Seger will exhibit on May 22 in Somerset, NJ.
PA Governor’s Advisory Council on Library Development: Kate Flewelling will present on current initiatives to the Pennsylvania Governor’s Advisory Council on Library Development in Carlisle, PA on May 30.
New Jersey Library Association: Michael Balkenhol and Veronica Leigh Milliner will attend NJLA in Atlantic City, NJ, May 29-31. In addition to exhibiting:
- Veronica, Michael and Dr. Elizabeth Cohn from the All of Us New York City Consortium will be providing a pre-conference entitled, “The All of Us Research Program and Public Libraries: New Opportunities for Health Literacy” on May 29 from 2:00-5:00 PM.
- Michael will present, “Health and Wellness 101: Resources, Programs, and More” on May 30 from 11:30 AM-12:20 PM.
American Library Association: Many of our colleagues through NNLM will attend ALA in Washington, DC, June 20-25.
- Lydia Collins, Participant Engagement Lead, and Yamila El-Khayat, Participant Engagement Coordinator, All of Us Research Program Training and Education Center, will co-present, “Transforming Communities through Health Outreach and Programming” on June 24 from 9:00-10:00 AM
- Academic & Data Services Coordinator Elaina Vitale will moderate and co-present “Citizen Science for Libraries” with Alicia Lillich (MCR) and George Strawley (MCR) staff June 24 from 10:30-11:30 AM.
International Society for Technology in Education: Veronica Leigh Milliner will attend ISTE19 in Philadelphia, PA, June 22-26.
If you’re looking for an opportunity to create a community of health environment in your library, promoting the National Health Observances (NHOs) will do just that! The NHOs devote special days, weeks, and months to increase public awareness about important health and wellness issues. Supporting these observances can help educate and encourage healthy behaviors in your community.
The National Network of Libraries of Medicine (NNLM) provides resources for public libraries that align with NHOs throughout the calendar year. Providing programming resources is one way that the NNLM All of Us Community Engagement Network (CEN) supports communities with consumer health information and education in order to increase health literacy and raise awareness of the NIH All of Us Research Program.
If you’re library is interested in supporting these observances, go to the NNLM All of Us CEN website to find helpful guides and resources you can use today!
The National Library of Medicine and the All of Us Research Program (All of Us) are partnering to provide opportunities for NNLM Members to support health literacy programming, be a resource for library staff, and participate in All of Us activities within their communities.
All of Us is based on precision medicine and aims to build one of the largest, most diverse datasets of its kind for health research, with one million or more volunteers nationwide who will sign up to share their information over time. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the biological, behavioral and environmental factors that influence health and disease. Their findings may lead to more individualized health care approaches in the future.
Over the next several months we’ll be highlighting ways you can get involved in the NNLM All of Us Community Engagement Network and learn more about the All of Us Research Program. Today, we’ll be posting two additional articles about some of the services, activities, and resources that the network has to offer. Check them out!
The NNLM All of Us Community Engagement Network also offers funding and programming opportunities for health literacy infinitives for your library. For more information, contact your Regional Medical Library on how to apply.
Visit the NNLM All of Us Community Engagement Network website at nnlm.gov/all-of-us to learn more about the partnership and about how you can get involved! You can also follow us on Twitter, Facebook, and subscribe to the new online newsletter to help you keep track of the latest news with the NNLM All of Us Community Engagement Network.
The NNLM Reading Club is a selection of “ready-to-use” fiction and nonfiction books along with free and downloadable materials designed to help libraries support the health information needs in their communities. Through the fun and intimacy of a book club, readers will discuss health and wellness topics important to them and their loved ones. Libraries can request an NNLM Reading Club Book Kit from a participating National Network of Libraries of Medicine regional office. The book kit contains the following:
- 8 books
- 8 bookmarks
- 8 discussion guides
- 8 NIH MedlinePlus Magazines
- 8 NIH Medline Plus Magazines
- 8 NIH All of Us Research Program
- 8 reading club book bags
If your library is interested in ordering a book kit, Click Here to fill out an easy online form
The Journey, touring education exhibit for the All of Us Research Program is coming to New England this Spring 2019!
The Journey, the All of Us Mobile Education and Enrollment Center is also in need of host sites. For libraries interested in more information on this unique opportunity, contact Catherine Martin, NNLM All of Us Community Engagement Coordinator at Catherine.Martin@umassmed.edu. To listen to a recording of Hailey (ID) Public Library’s experience in hosting the Journey last fall, click here.
May 6 – 12 Bridgeport CT & Middletown CT
May 13 – 19 Danbury CT & Stamford CT
May 20 – 26 Boston MA
May 29 – June 1 Worcester MA