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NIH’s All of Us Research Program Partners with NNLM to Reach Target Communities Through Local Public Libraries

PSR Newsletter - Wed, 2017-11-29 11:45
diverse group of people with the All of Us Research Program logo and tagline, “The future of health begins with you.

The NIH All of Us Research Program and the National Library of Medicine (NLM) have teamed up to raise awareness about the program, a landmark effort to advance precision medicine. Through this collaboration, the National Network of Libraries of Medicine (NNLM) has received a $4.5 million award to support community engagement efforts by public libraries across the United States and to improve participant access. According to Eric Dishman, director of the All of Us Research Program: “We want to reach participants where they are. For many people in the country, including those with limited internet access, one of those places is the local library. We’re excited to work with the National Library of Medicine to make more people aware of All of Us and the opportunity to take part.”

The partnership is a three-year pilot program, running through April, 2020. Program objectives include:

  • To increase the capacity of public library staff to improve health literacy.
  • To equip public libraries with information about the All of Us Research Program to share with their local communities.
  • To assess the potential impact of libraries on participant enrollment and retention.
  • To highlight public libraries as a technology resource that participants can use to engage with the program, particularly those in underserved communities affected by the digital divide.
  • To establish an online platform for education and training about All of Us and precision medicine, with resources for members of the public, health professionals, librarians and researchers.
  • To help identify best practices in messaging and outreach that lead to increased public interest and engagement in the program.

The All of Us Research Program aims to build one of the largest, most diverse datasets of its kind for health research, with one million or more volunteers nationwide who will sign up to share their information over time. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the biological, behavioral and environmental factors that influence health and disease. Their findings may lead to more individualized health care approaches in the future.

Amanda J. Wilson, head of NLM’s National Network Coordinating Office (NNCO), and Dara Richardson-Heron, M.D., chief engagement officer of the All of Us Research Program, will lead the new partnership. Each NNLM region’s funding includes one FTE for an All of Us Point of Contact. Kelli Ham, formerly NNLM PSR Consumer Health Librarian, will fill the role in the Pacific Southwest Region. Her new title will be Community Engagement Librarian. Over the course of the pilot program, Kelli will focus her outreach efforts on various designated target geographic areas in the region, beginning with Sacramento, CA.

The All of Us Research Program is currently in beta testing. To learn more, sign up to receive updates. Precision Medicine Initiative, All of Usthe All of Us logo, and “The Future of Health Begins with You” are service marks of the U.S. Department of Health and Human Services.

Categories: PSR, RML Blogs

Search PubMed with 2018 MeSH!

PSR News - Wed, 2017-11-29 11:45

NLM’s end-of-year activities are now complete, and daily MEDLINE updates to PubMed have resumed. MEDLINE/PubMed may be searched using 2018 MeSH vocabulary. For details on data changes, visit MEDLINE Data Changes — 2018. PubMed/MEDLINE citations and the MeSH translation tables have been updated to reflect 2018 MeSH with full searching functionality for Supplementary Concept Record (SCR) data and mapping in place. Citations newly indexed with 2018 MeSH since November 13 are now available for searching in PubMed.

Other pertinent articles:

Categories: PSR, RML Blogs

NLM Announces 2018 Michael E. DeBakey Fellows in the History of Medicine

PSR News - Tue, 2017-11-28 18:10

The National Library of Medicine has announced the 2018 recipients of the Michael E. DeBakey Fellowship in the History of Medicine:

Divyansh Agarwal, MS
MD/PhD Trainee, Perelman School of Medicine
University of Pennsylvania
Research Project: The DeBakey Method for Today’s Aspiring Surgeon-Scientist

Susan Crawford, PhD
Professor and Director Emeritus
Biomedical Communications Center
Washington University School of Medicine
Research Project: Biomedical Communication: The Evolution of a Paradigm

Alyssa F. Gabay
Undergraduate, Senior, Class of 2018
History Honors Program
University of Maryland, College Park
Research Project: Understanding Dr. DeBakey’s Development and Implementation of His Aneurysm Repair Methods and External Ventricular Assist Devices

Sanders Marble, PhD
Senior Historian
U.S. Army Center of History and Heritage
Research Project: Uncovering Michael DeBakey’s War Years

Over the course of the next year, these fellows will undertake their research projects onsite in the History of Medicine Division of the Library, primarily in the Michael E. DeBakey papers which reflect the vast range of subjects from Michael E. DeBakey’s professional career—from surgery to health care policy, medical libraries and expanding access to medical information, medical technology to medical ethics, military medicine to veteran health, humanitarianism to international diplomacy in the medical arena. The Library’s Michael E. DeBakey papers contain correspondence, administrative records, diaries, transcripts, publications, speeches, conference and awards material, subject files, photographs, and audiovisual media, which reflect the vast expanse of Dr. DeBakey’s life, achievements, and interests as a world-renowned medical statesman, innovator, and champion of humanitarianism and life-long learning. The NLM Michael E. DeBakey Fellowship in the History of Medicine is made possible through a generous gift from The DeBakey Medical Foundation. The NLM is authorized to accept donations in support of its mission.

Categories: PSR, RML Blogs

NLM Resources in Multiple Languages for World AIDS Day

PSR News - Tue, 2017-11-28 15:46

For World AIDS Day on December 1st, share educational materials in multiple languages about HIV/AIDS prevention, testing, treatment, and living with the condition. HealthReach, a resource created by the National Library of Medicine that offers reliable health information in many languages and formats, includes multilingual HIV/AIDS patient materials. Vist the eight-part HIV/AIDS 101 training series, which includes handouts, video, and audio in four languages (English, Chinese, Korean, and Spanish). In addition, explore the following HIV/AIDS patient education materials:

  • What is HIV? – HIV/AIDS 101 – This one-page handout with accompanying video and audio recording educates people about human immunodeficiency virus (HIV), which is the virus that can lead to acquired immunodeficiency syndrome, or AIDS.
  • I have HIV. Does that mean I have AIDS? – HIV/AIDS 101 – This one-page handout with accompanying video and audio recording educates people about the difference between human immunodeficiency virus (HIV) and acquired immunodeficiency syndrome (AIDS), which is the late stage of HIV infection.
  • Find Support – Newly diagnosed with HIV – This one-page handout with accompanying video and audio recording educates people who are newly diagnosed with HIV about ways to find support through emotional and physical issues.
  • What does a positive HIV test result mean? – HIV testing – This one-page handout with accompanying video and audio recording educates people about what happens if an HIV test result is positive.
  • HIV – Low risk sexual behaviors – Sexual risks – This two-page handout with accompanying video and audio recording educates people about sexual behaviors that carry low risk for spreading HIV.
Categories: PSR, RML Blogs

November 2017 Midday at the Oasis Webinar Recording Now Available!

PSR News - Wed, 2017-11-22 13:09

On November 15, NNLM PSR presented Health Aging: Promoting Healthy Living in Older Adults through Quality Health Information for the Midday at the Oasis monthly webinar with speakers, Stephanie Dailey and Olivia Kent from the National Institute of Aging (NIA); and Andrew Plumer from the Reference and Web Services Section at the National of Library of Medicine. The webinar focused on seniors and their use and access to quality health information. Resources from NIA were highlighted as well as NLM’s MedlinePlus. You can view the webinar by visiting our Midday at the Oasis page or by clicking on the YouTube video player below.

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Note: To switch to full screen, click on the full screen icon in the bottom corner of the video player. To exit the full screen, press Esc on your keyboard or click on the Full screen icon again. If you have problems viewing full screen videos, make sure you have the most up-to-date version of Adobe Flash Player.

Categories: PSR, RML Blogs

NLM Recruiting for 2018-19 Associate Fellowship Program!

PSR News - Tue, 2017-11-21 14:26

The National Library of Medicine (NLM) is accepting applications for its 2018-19 Associate Fellowship program, a one-year training program designed for recent library science graduates (within the past two years) and early-career librarians. All U.S. and Canadian citizens who will have earned a MLS or equivalent degree in library/information science from an ALA-accredited school by August 2018 are eligible to apply. Priority is given to U.S. citizens. Applications and additional information are available on the NLM web site. The application deadline is January 26, 2018. Up to five candidates will be selected for the program.

The September through August program is a one-year residency program (with an optional second year) for recent library science graduates interested in a career in health sciences librarianship, offering a formal curriculum with exposure to library operations, research and development, intramural and extramural research, development and lifecycle of the NLM web-based products and services and the extensive outreach and education program reaching consumers, special populations, health professionals and librarians. In the second half of the year, Associate Fellows have the opportunity to choose projects based on real-world problems proposed by library divisions and work with librarians and library staff. The program is located at the National Library of Medicine on the campus of the National Institutes of Health in Bethesda, MD.

The Associate Fellowship provides knowledge and skills in project work ranging from:

  • Data analysis of programs and services such as extramural grants, indexed journal articles, controlled vocabularies, datasets, and customer inquiries.
  • Creation of online tutorials and educational awareness videos.
  • Social media outreach.
  • And more, including legislative tracking, web site enhancement, disaster information outreach studies, and review of next generation discovery interfaces.

The Associate Fellowship financial support includes:

  • Annual stipend of $54,972.
  • Additional funding to support purchase of group health insurance.
  • Up to $1,500 in relocation support.
  • Full support for attendance at local and national conferences.

For questions, contact Kathel Dunn, Associate Fellowship Program Coordinator.

Categories: PSR, RML Blogs

NLM 2018 Cataloging and Metadata News

PSR News - Tue, 2017-11-21 14:07

The National Library of Medicine (NLM) adopted the 2018 MeSH vocabulary for cataloging on November 20, 2017. Accordingly, MeSH subject headings in LocatorPlus were changed to reflect the 2018 MeSH vocabulary as of that date. When year-end processing activities are completed later in November, the NLM Catalog database and translation tables will be updated to reflect 2018 MeSH. Until then, there will be a hiatus in the addition of new and edited bibliographic records to the NLM Catalog.

The Winter version of the NLM Classification, to be published in mid-to-late-January 2018, will encompass changes resulting from new and changed MeSH terms for 2018 as well as additional minor updates to the index. The main index terms will continue to link to 2017 MeSH until the Winter 2018 edition is published in January 2018. An NLM Classification number appears in many terms in the MeSH Browser and is supplied annually by the NLM Cataloging and Metadata Section (CaMMS) when the MeSH term points to a single classification number in the Classification Index. These class numbers are current as of the Winter 2017 edition of the NLM Classification. They will be updated with the publication of the 2018 Winter edition in January 2018.

Generally, vocabulary changes in NLM bibliographic records for books, serials, and other materials were implemented as they were applied for citations in MEDLINE. For additional information, refer to MEDLINE Data Changes—2018. The Expression of Concern publication type is the only new 2018 Descriptor that cannot be used for cataloging. Six new geographic descriptors were added. Most of these place names already have Table G notations in the NLM Classification. The rest will be added with the 2018 Winter edition of the NLM Classification.

Categories: PSR, RML Blogs

Report on the Systematic Review Workshop: The Nuts and Bolts for Librarians at the University of Pittsburgh

PSR Newsletter - Mon, 2017-11-20 15:25

by Sue Espe, BBA, MLIS, AHIP
Health Science Librarian
Merril W. Brown Health Sciences Library
Banner Health – University Medical Center
Phoenix, AZ 

It is with much gratitude to the National Network Libraries of Medicine Pacific Southwest Region for providing Professional Development Award funds for me to attend the Systematic Review Workshop: The Nuts and Bolts for Librarians, on November 13 – 15, 2017, at the University of Pittsburgh. As librarians receive increasing requests to perform systematic reviews, demand for this very popular semiannual workshop has grown and seats to attend it quickly fill. This year marks the 10th year that the workshop has been taught, which attests to its strong content. About a dozen librarians with varying levels of knowledge attended this session.

Instructors Charlie Wessel, Mary Lou Klem, Barbara Folb, Andrea Ketchum and Rose Turner are experts in this area and have thoughtfully created the workshop to generously share what they have learned through the years. They each reviewed standards, recommended key resources to search, outlined the steps to be performed and emphasized the importance of being a co-investigator. Initially, the fundamentals of study design and relationship of systematic reviews were highlighted. An emphasis was made on the importance of being a co-investigator as a member of the systematic review committee, being involved from the start, not simply as a side collaborator who only performs the search. Being a co-investigator, rather than a collaborator, allows for a much deeper understanding of the project and its objectives as well as providing influential guidance. The importance of thorough reference interview sessions with the principal investigator and committee was elaborated upon through illustrative examples. At the end of the interview process, librarians should have an extensive knowledge of the project scope, including an understanding of the protocol, defining terminology, and an exhaustive list of search terms.

Learning how to harvest terms, applying them in an orderly array and incorporating them into a search strategy was taught. Having easily interoperable and transferable searches between databases is necessary. Being methodical is beneficial for follow-up, reproducibility and writing the methodology. Explanations were provided for key databases that are essential to search, along with appropriate grey literature sources. The impact and handling of bias, duplication, and documentation was discussed. Throughout the workshop, hands-on group exercises enabled attendees to collaborate with each other to determine search terms and create search strings in a logical manner. With clearly written instructions and templates to follow, the groups were able to achieve performance of what was taught. Links to essential related websites, agencies, studies and guidelines about systematic reviews were included in course materials. Useful forms, checklists, templates and charts were also included.

With minimal knowledge about systematic reviews and no expertise in the performance of systematic reviews, but a great deal of proficiency in medical librarianship, this workshop allowed me to build upon my strengths and grasp all aspects of the process. Attending the workshop strengthened my confidence as well as provided me assurance that I would be following established and legitimate methods when working with researchers, physicians and nurses to fulfill systematic reviews. Overall, this workshop was one of the most informative and practical courses that I have attended. I highly recommend this workshop and encourage anyone who has an interest in learning about the systematic review process, standards, and practice tips, to make arrangements to attend. The instructors have expert knowledge, insightful practice stories and sage guidance to share. There is a standing list of prospective attendees and seats fill quickly, so it is important to make inquires early and start planning now to attend the next workshop in April, 2018!

Categories: PSR, RML Blogs

NLM Resources for Family Caregivers

PSR News - Mon, 2017-11-20 14:55

November is National Family Caregivers Month, and the National Library of Medicine offers resources to support family caregivers through information on MedlinePlus and through multilingual information for family caregivers on HealthReach. HealthReach provides materials for caregivers (documents, video, and audio) in multiple languages related to home care and caregivers, including:

  • For the Caregiver (11 languages): This three-page handout educates people who take care of a loved one with cancer at home about managing their role as caregiver. It provides recommendations for ways caregivers can manage stress and take care of themselves, ask family and friends for help, and communicate with the loved one who has cancer about expectations and limits.
  • Home Care Instructions After Surgery (12 languages): This eight-page illustrated handout provides common instructions for home care for people recovering from surgery. It clarifies that patients should follow any instructions given to them by their doctor or nurse that are based on their specific needs. It outlines what to do and what not to do for the first 24 hours after surgery. The document contains guidelines and helpful tips for home care, discussing medicines, activity, diet and bowel movement, and incision care.
  • Using a Medicine Spoon or Dropper (3 languages): This six-page illustrated handout educates parents and caregivers about how to use a medicine spoon or dropper to measure liquid medicine for children and adults.
Categories: PSR, RML Blogs

El Virus Del Zika Webinar

PSR News - Thu, 2017-11-16 14:23
The California Department of Public Health, in collaboration with the Health Initiative of the Americas of UC Berkeley, invites you to participate in Zika Virus Webinar that will provide information on:
  • The transmission of the Zika Virus
  • How to prevent the virus
  • What to do if you plan to travel to places with Zika
  • Who should be tested for Zika
  • Where to find educational resources about Zika for the community
The free webinar is conducted in Spanish! Please share this information with your Spanish speaking clientele! Fecha: 5 de diciembre del 2017 Hora: 10:00 am (hora de California) Duracion: 1 hora Idioma: Español Gratuito ¡Regístrese Ahora!
Categories: PSR, RML Blogs

2018 Medical Subject Headings (MeSH) Available for Download!

PSR News - Thu, 2017-11-16 13:52

The National Library of Medicine is currently conducting its annual maintenance process known as Year-End Processing (YEP) for 2018. The MeSH Browser currently points to the 2018 MeSH vocabulary with a link to the 2017 MeSH vocabulary. The Browser contains MeSH heading records that may include Scope Notes, Annotations, Entry Terms, History Notes, Allowable Qualifiers (Subheadings), Previous Indexing, and other information. It also includes Subheading records and Supplementary Concept Records (SCRs) for substances and diseases that are not MeSH headings. You can download 2018 MeSH from links on the MeSH homepage. The PubMed MeSH database and translation tables will be updated to reflect 2018 MeSH by the end of November when YEP activities are complete and the newly maintained MEDLINE data are available in PubMed.

This year 113 MeSH headings were either changed or deleted and replaced with more up-to-date terminology. During YEP, NLM updates MeSH headings on MEDLINE citations. 471 new MeSH Headings, plus three new Publication Types, were added to MeSH in 2018. A complete list of the new 2018 MeSH headings is available in PDF format, see New Headings with Scope Notes, Annotations and Tree Locations. Three new Publication Types are available for 2018. Two of the new Publications Types are types of clinical trials. In order to improve indexing consistency and efficiency and to make MEDLINE searching easier and more straightforward, the subheading /contraindications was deleted, and three new MeSH headings were created to replace it.

For details on these and many other updates, visit the NLM Technical Bulletin.

Categories: PSR, RML Blogs

NLM Resources for American Diabetes Month

PSR News - Wed, 2017-11-15 16:19

November is American Diabetes Month, to raise awareness about a condition that impacts one in 10 Americans. MedlinePlus describes some of the serious health problems caused by diabetes, such as damage to your eyeskidneys, and nervesheart disease, stroke, and even the need to remove a limb. The National Library of Medicine offers a number of web resources to provide tailored health information about diabetes for special populations, such as parents, Native Americans, and individuals who speak languages other than English:

  • Parents: If a child has been diagnosed with diabetes, parents can check the MedlinePlus page Diabetes in Children and Teens for links to information on diagnosis, treatment, living with diabetes, related issues, statistics, clinical trials, how to find an expert, and more.
  • Native Americans and Alaska Natives: The Diabetes page on the American Indian and Alaska Native Health portal offers resources for treatment and prevention of diabetes in Native American communities and personal stories of Native Americans living with diabetes.
  • Information in Multiple Languages: Search HealthReach for patient resources in multiple languages and formats (document, audio, or video) related to diabetes, such as the three-page handout “Diabetes” in 13 languages or the brochure “Diabetes and Your Feet” in 4 languages. Also check the Spanish-language version of MedlinePlus for information and resources about diabetes.
Categories: PSR, RML Blogs

Updates for NLM’s Multi-Cultural Resources for Health Information Page!

PSR News - Wed, 2017-11-08 13:53

The National Library of Medicine’s Multi-Cultural Resources for Health Information page offers reliable links to help health professionals learn how to serve culturally diverse populations. In addition to topics such as cultural competency, health literacy, limited English proficiency, data related to minority health and health disparities, and health resources in multiple languages, new sections and resources were recently added to the page, including:

  • Addiction and Substance Use Disorder Resources (under Health Resources in Multiple Languages) – Multilingual consumer health information related to addiction and substance use disorders.
  • American Sign Language (ASL) Resources (under Health Resources in Multiple Languages) – Find videos in American Sign Language (ASL) providing reliable health information.
  • Searches in OMHRC Catalog and PubMed – Find search results on topics like health literacy and cultural competency from HHS Office of Minority Health Resource Center (OMHRC) Catalog (a database of publications related to minority health) and PubMed.
Categories: PSR, RML Blogs

NLM Issues Updated Guidance on Data Deposit and Linking in PMC

PSR News - Tue, 2017-11-07 14:01

In response to the growing interest in the availability of data associated with articles, PubMed Central (PMC) is reviewing current practices around data and seeking feedback on how to best serve the data needs of the research community. As part of these efforts, the PMC policy statement on supplementary data was recently updated to more clearly articulate the requirement that any supplementary data (images, tables, video, or other documents / files) that are associated with an article must be deposited in PMC with an article. The search filter “has suppdata[filter]” can be used in PMC to discover records with associated supplementary data files.

In addition to providing supplementary data with an article, NLM is also encouraging journals and authors to make research data available in a public repository and to include the relevant data citation(s) in the paper. Guidance for PMC data providers on tagging data citations is available in the Tagging Guidelines. This guidance is based on the JATS4R recommendations on data citations.

Starting October 2017, the NIH Manuscript Submission (NIHMS) system will also accept deposits of small datasets accompanying deposits of funded author manuscripts for inclusion of PMC. Guidance for authors is available in the NIHMS FAQ. To submit suggestions on future directions in data for PMC to consider, please visit pubmedcentral@ncbi.nlm.nih.gov.

Categories: PSR, RML Blogs

October 2017 Midday at the Oasis Webinar Recording Now Available!

PSR News - Mon, 2017-11-06 16:29

On October 18, NNLM PSR presented How Librarians and Information Professionals can make a difference in combating Predatory Publishers for the Midday at the Oasis monthly webinar. In the webinar, the speakers, Dr. Mark Langdorf, Editor-In-Chief, Western Journal of Emergency Medicine: Integrating Emergency Care with Population Health and Linda Murphy, Health Science Librarian, discussed the growing concerns of open access publishing and what actions librarians and information professionals can take in combating predatory publishers. You can view the webinar by visiting our Midday at the Oasis page or by clicking on the YouTube video player below.

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Note: To switch to full screen, click on the full screen icon in the bottom corner of the video player. To exit the full screen, press Esc on your keyboard or click on the Full screen icon again. If you have problems viewing full screen videos, make sure you have the most up-to-date version of Adobe Flash Player.

Categories: PSR, RML Blogs

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