The National Network of Libraries of Medicine (NNLM), Southeastern/Atlantic Region (SEA) is extending an invitation for network members to join and participate in the Public Libraries Program Advisory Committee (PAC).
The Public Libraries PAC will work cooperatively with April Wright, NNLM All of Us Community Engagement Coordinator, in planning and carrying out committee work. Members are volunteers who not only possess expert knowledge of public libraries but also share an interest and passion to act as conduits of information within their institution and to support health information outreach to the community.
The responsibility of PAC includes:
- Advise NNLM staff on the need for and relative priority of education within the program area.
- Assist with program evaluation.
- Ensure that programming is aligned with local needs.
- Evaluate All of Us Community Engagement or other Public Library Outreach award applications.
The PAC will meet a few times a year via web conferencing software. NNLM SEA will select up to 7 members to participate in this PAC. If you would like to nominate yourself or a colleague as a member, please email April Wright at firstname.lastname@example.org. The deadline to apply is Tuesday October 9, 2018.
The National Library of Medicine’s ToxTutor has added new content and topics:
Section 3 (Toxic Effects):
- “Microbiome” topic added
Section 5 (Toxicity Testing Methods):
- Additional “Finding Information about Alternatives to Animal Testing” content
- Microphysiological Systems as used in “tissue chip” and “Organs-on-chips” models added
- “Human-on-a-Chip” content added
- Induced Pluripotent Stem Cells (iPSCs) as an emerging approach added
- Combining “chips” AND iPSCs information topic added
Section 6 (Risk Assessment):
- Adverse Outcome Pathways (AOPs) content added
- “What to Consider when Reading about a New Exposure Study” topic added
Section 7 (Exposure Standards and Guidelines):
- Food Safety in the European Union topic added
Section 15 Intuitive Toxicology and Risk Communication
Section 16 Environmental Toxicology, Environmental Health, and One Health
ToxTutor is a self-paced tutorial covering key principles of toxicology for users of the National Library of Medicine (NLM) chemical and toxicology databases. While a knowledge of anatomy and physiology is not required for viewing ToxTutor, the Introduction to the Human Body from the National Cancer Institute provides a good introduction to the topic.
This course is approved for 3 contact hours for California Registered Environmental Health Specialists (REHSs) and National Environmental Health Association’s (NEHA) REHS/RSs. To take the tutorial and receive a certificate, please register and complete the tutorial through our free learning management system.
The National Network of Libraries of Medicine is composed of 8 regions. Each week, other regions post some great blog stories that we’d like to share with our region! Here are some highlights from last week:
Native Voices: An Exercise in History; Collaboration and Fun: This blog shares information about their traveling exhibit that “explores the interconnectedness of wellness, illness and cultural life for Native Americans, Alaska Natives and Native Hawaiians.”
Words Matter: This blog highlights some of the stigmas and stereotypes that prevent those with addiction issues from seeking or receiving proper medical treatment.
Register Now for New NLM Webinar Series Beginning September 6! Learn more about this 5 week interactive series that “will focus on the roles and products of the NLM related to applied medical informatics, particularly as applied to electronic health records (EHRs) systems and clinical research.”
Health sciences librarians are invited to apply for the online course, Biomedical and Health Research Data Management Training for Librarians, offered by the NNLM Training Office (NTO). The course is a free, 7-week online class with engaging lessons, practical activities and a final project. The course runs October 15 – December 14, 2018.
The goal of this course is to provide an introduction to data issues and policies in support of developing and implementing or enhancing research data management training and services at your institution. This material is essential for decision-making and implementation of these programs, particularly instructional and reference services. Course topics include an overview of data management, choosing appropriate metadata descriptors or taxonomies for a dataset, addressing privacy and security issues with data, and creating data management plans.
Applications are due September 20, 2018.
Additional details and the online application are available here.
For questions, please contact the NNLM Training Office
Name: Tina Viglucci
Title: Hispanic Services Director
Education: MSIS University at Albany, SUNY
How did you become interested in focusing on Health and Wellness?
Through collaborations with partners in our community including the two major hospitals in the area, Presence St. Joseph and Advocate Sherman. They are leading efforts to bring together organizations to actively engage our Latino community in being aware of health related issues including nutrition information and diabetes prevention and treatment.
Why is health literacy important in your community?
We all lead incredibly busy lives and focus our attention on jobs, errands, what needs to be done to survive each day. Yet we know being proactive about our health is essential, so we must look for ways to provide information in relevant, engaging and accessible ways.
What’s the impact that you hope to make in your community?
To prevent disease and promote physical and mental health for ourselves and our children.
What is your favorite health-related program or outreach that you’ve done?
The 6-week workshops we held with Presence St. Joseph Hospital to help reduce obesity in children were particularly informative and enjoyable. Children participated in cooking and exercise activities while their parents learned about nutrition and healthy eating habits. They all came together at the end of each program to eat what the kids had prepared and talk about what they experienced and learned. The kids received chefs hats at the end and the parents took home binders with all the week’s lessons and recipes. Everyone had a great time!
SEASide Webinar: Why Library Partners are Critical to the All of Us Research Program – Sep 27, 2018 – 1 PM ET
Pre-Register: Pre-registration for this free webinar is strongly encouraged, but not required. Visit our registration page to sign up!
Presenter: April Wright, All of Us Community Engagement Coordinator, NNLM SEA
Abstract: Why are libraries essential to building a comprehensive educational experience for participants in the All of Us Research program? What can your library do to support this initiative?
The NIH All of Us Research Program endeavors to build a databank of genetic information from at least 1 million participants from diverse backgrounds who will share their health data over a period of 10 years with the goal of discovering individualized treatments for and diagnoses of diseases. The All of Us Research Program has partnered with the National Library of Medicine and NNLM to help public libraries in supporting the health information needs of their users by providing health information training for public library staff, funding and other resources to support health programming and activities, and connections to medical libraries and other NNLM members in their area.
Join April Wright, NNLM SEA All of Us Community Engagement Coordinator, to: learn about the All of Us Community Engagement Network, All of Us resources available, and discover how you and your library can be engaged with this national initiative and bring healthy outcomes to your community.
Upon completion of the SEAside Webinar, each participant will receive 1.0 contact hour of continuing education credit award by the Medical Library Association. Participants will receive a code to which they will enter in medlib-ed.
To Join the Training Session
- Website: https://nih.webex.com
- Session number: 622 414 939
- Session password: nnlm
To Join the Training Session (Quick Jump)
- Go to: https://nih.webex.com/nih/k2/j.php?MTID=t5101da8d47b353b5301dffa40ca6310a
2. Enter your name and email address (or registration ID).
3. Enter the session password: nnlm
4. Click “Join Now”.
5. Follow the instructions that appear on your screen.
To Join the Session by Phone Only
- To receive a call back, provide your phone number when you join the training session, or call the number below and enter the access code.
- Call-in toll number (US/Canada):1-650-479-3208
- Global call-in numbers
- Access code: 622 414 939
PubMed Labs is a responsive Web site that can generate different display options depending on a user’s device size, e.g., mobile phones. Mobile device users that access PubMed Labs will soon notice a slightly updated homepage and logo. Additionally, the “What is PubMed Labs?” question will be replaced by “What’s new for PubMed Mobile?” The production PubMed Mobile ad to PubMed Labs will also be modified to encourage users to try the new PubMed Labs mobile design.
PubMed Labs is under active development and new features and functionality are regularly added. Please note the absence of a PubMed feature in PubMed Labs does not mean it is planned for elimination. To submit comments, questions, or concerns, use the Labs Feedback button. For further details, visit the NLM Technical Bulletin.
September is National Preparedness Month (NPM), a reminder to prepare ourselves and our families now and throughout the year. This year’s theme focuses on planning: Disasters Happen. Prepare Now. Learn How. Each week of NPM focuses on a specific aspect of the overarching theme, to help individuals, families, communities and organizations consider how they plan and prepare for disasters, and offer opportunities to learn and become involved.
The theme for this week of National Preparedness Month is Learn Life Saving Skills.
The first person on the scene is the first responder, even if they are not a professional. Don’t find yourself unprepared for this role! There are several ways to learn basic lifesaving skills:
- First Aid Training (American Red Cross)
- You are the Help Until the Help Arrives (Federal Emergency Management Agency (FEMA))
- Stop the Bleed (Department of Homeland Security (DHS))
- Community Emergency Response Teams (CERT) (FEMA)
Are you already a trained medical responder? Take a look at resources for first aid and other live-saving skills in Disaster Lit®. You may be able to earn continuing education (CE) credit while renewing your skills.
What other kinds of lifesaving skills can make a difference in disasters? Protect your home and your family by learning:
- how to mitigate your home against flood damage, or protect against the impacts of earthquakes.
- how to turn off utilities like natural gas in your home.
- how to keep your home safe from cooking, heating & electrical fires.
Is your organization looking to get involved in spreading awareness during NPM, or developing a community program around preparedness? Check out ready.gov for graphics, videos, related web resources, and a plethora of social media content for NPM, in addition to their large selection of toolkits, and even resources for teaching kids about disaster preparedness.
Recently the Centers for Disease Control and Prevention (CDC) has reported the dramatic increase of sexually transmitted diseases in the U.S. In fact, for the fourth year in a row the numbers have continued to rise. Among the rise, specific sexually transmitted diseases include:
- gonorrhea has been diagnosed in 555,608 cases in preliminary 2017 data (an increase of 67% from 2013)
- syphilis has been diagnosed in 30,644 cases (an increase of 76% from 2013)
- chlamydia was reported with more than 1.7 million cases in 2017
These three diseases can be treated with antibiotics but gonorrhea has become antibiotic resistant over the years with only one antibiotic remaining effective, ceftriaxone. Many cases go undiagnosed or untreated which can lead to even more cases, infertility, stillbirths, and an increase in HIV.
Though a number of factors contribute to this increase of STDs , stigma can be a big factor. Sexual issues, especially sexual diseases, often carry the added issues of embarrassment, stigma, and privacy concerns. This is especially true in smaller towns and rural areas where social networks and fewer healthcare options can make confidentiality difficult. An NPR story highlights the difficulty public health officials face in Clackamas County Oregon.
Libraries, especially public libraries, can start the conversation by providing information on social media, brochures, and web links. If available, collaborating with local health professionals and public health, and community agencies can provide additional support.
Here are some freely available and authoritative resources you or your patrons may find helpful as they seek treatment and additional information regarding STDs.
- MedlinePlus health topic page on sexually transmitted diseases which links to specific diseases
- CDC Sexually Transmitted Diseases web page lists specific condition with fact sheets, statistics, and other information but a list of fact sheets (including other languages) is available for easier navigation
- For teens, the KidsHealth.org teen page provides information about STDs and other sexual health topics as does girlshealth.gov
- The Office on Women’s Health website provides information with answers to a variety of questions individuals may have about STDs, including a fact sheet
This week’s theme for National Preparedness Month is Learn Life-Saving Skills. The first person on the scene is the first responder, even if they are not a professional. There are several ways to learn basic lifesaving skills:
- First Aid Training (American Red Cross)
- You are the Help Until the Help Arrives (Federal Emergency Management Agency (FEMA))
- Stop the Bleed (Department of Homeland Security (DHS))
- Community Emergency Response Teams (CERT) (FEMA)
If you are already a trained medical responder, check out resources for first aid and other live-saving skills in Disaster Lit® to earn continuing education (CE) credit while renewing your skills.
Disasters Happen. Prepare Now. Learn How.
As the likelihood that Hurricane Florence will strike somewhere along the East Coast increases, residents are encouraged to make preparations ahead of a potential landfall. Our list of disaster information can help before and after a storm or other weather emergency.
We encourage you to visit the following pages from the NLM Disaster Information Management Research Center (DIMRC). You can embed the content from both of these pages on your own Website by accessing the Health and Human Services (HHS) Content Syndication Storefront. When we update any of these pages, your pages will be automatically updated as well.
- Hurricanes: Health Information Guide
- Hurricanes: Health Information Guide – Embed Content
- Floods: Health Information Guide
- Floods: Health Information Guide – Embed Content
- Coping with Disasters, Violence, and Traumatic Events: Health Information Guide
- DIMRC: Disaster Lit Search: Resources on Power Outages
- DIMRC: Disaster Lit Search: Disaster Lit Search: Resources on Power Outages (includes Spanish translations)
- Hurricane Topic Page (en español)
- Floods Topic Page (en español )
- Coping with Disasters (en español)
Federal Agency Resources
- Office of Assistant Secretary of Preparedness and Response (ASPR) Storms of 2018
- Substance Abuse and Mental Health Services Administration (SAMHSA) Disaster Distress Helpline
- Public Health Emergency (ASPR): 2018 Hurricane Preparedness
- Topic Collection: Utility Failures (e.g. blackouts, potable water) Technical Resources, Assistance Center, and Information Exchange (TRACIE), Office of the Assistant Secretary for Preparedness and Response, U.S. Department of Health and Human Services
- HHS emPOWER Map 3.0 gives every public health official, emergency manager, hospital, first responder, electric company, and community member the power to discover the electricity-dependent Medicare population in their state, territory, county, and ZIP Code
- NOAA: 2018 Hurricane Tracker
Agencies and Organizations
- FEMA Twitter list https://twitter.com/FEMAlive/lists/happening-now
- NLM_DIMRC Twitter list https://twitter.com/NLM_DIMRC/lists/hurricane-florence
- Gas Buddy Fuel Availability & Station Outages
- Fulcrum Community is a no-cost, short term crowdsourced data collection solution for qualified humanitarian projects. Disaster relief, damage assessments, environmental protection, and other similar projects are all reviewed and approved on a case-by-case basis.
- PlugShare Charging Stations for electric cars
Finally, visit the NNLM SEA Page of Disaster Information Resources for Alerts and Feeds, State and National Specific Resources, Multilingual and Evacuation Resources, and more!
Updates: September 13, 2018
- The HHS has declared a Public Health Emergency for North and South Carolina: September 11, 2018: Determination that a Public Health Emergency Exists in North Carolina and South Carolina as the Result of Hurricane Florence
- In addition to that, the HHS renewed the determination of a public health emergency in the US Virgin Islands as a result of Maria: September 11, 2018: Renewal of Determination that a Public Health Emergency Exists in the Territory of the U.S. Virgin Islands as a Result of Hurricane Maria
- PHE declaration for Virginia HHS Secretary Azar Declares Public Health Emergency in Virginia Due to Hurricane Florence
Update September 16, 2018
- ALA, library community work to support Hurricane Florence recovery efforts
- Columbia NCDP map for Florence with weather, storm path, demographic data, and more
- ASPR TRACIE collection on healthcare facility evacuation/sheltering
Hotlines for dialysis patients from KCER:
Would you like to have the NNLM SEA provide a CE at your organization’s 2019 conference? Below is a list of courses available. Most sessions can be presented in person or webinar. Please feel free to reach out to the coordinator to discuss details.
Ashley Cuffia | 410-706-3102 | email@example.com
- Grants and Proposal Writing
- Will Duct Tape Cure My Warts? Examining Complementary and Alternative Medicine
- Combatting Information Fatigue: Health Information Resources for Veterans
- Beyond an Apple a Day: Providing Consumer Health Information at Your Library
- Class in Development: CyberHealth: Protecting Yourself in a Digital World
Aimee Gogan | 410-706-4673 | firstname.lastname@example.org
- Measuring What Matters to Stakeholders
- From Problem to Prevention: Evidence-Based Public Health
- Improving the Health, Safety, and Well-being of LGBT Populations
- Classes in Development and Revision: Infographics for Librarians | Dazzling Data Visualization (Spring 2019)
Additional classes may be available. Please review the NNLM Class Descriptions and discuss the class with Ashley or Aimee for more information. We look forward to working with you!
See something of interest? Please share our postings with colleagues in your institutions!Spotlight
Funding Available: NNLM MAR has funding available for two grants of $19,000. Libraries, community-based organizations, schools, health care providers, and other organizations that provide health programming or services within PA, NY, NJ or DE are eligible to apply. Applications are due October 5, 2018, and award funds must be spent by April 30, 2019. Details.
September is National Preparedness Month. Disasters Happen. Prepare Now. Learn How. This week: Make and Practice Your Plan.National Network of Libraries of Medicine News
Connect with MAR: MAR coordinators would love the chance to speak with you in person about your projects, and opportunities for potential partnership! Review our schedule of upcoming conferences and workshops where you can meet and greet with our staff.
Native Voices: An Exercise in History; Collaboration and Fun – Midwest Matters, from GMR
Suicide Prevention Awareness Day, Week, and Month – Blogadillo, News from SCR
New on YouTube: Health Statistics on the Web, August 24, 2018NLM/NIH News
How much does it cost to keep data? – NLM Musings from the Mezzanine, Innovations in Health Information from the Director of the U.S. National Library of Medicine
- 3D Action Film Stars Cancer Cell as the Villain
- Researchers Elucidate Role of Stress Gene in Chronic Pain
– NIH Director’s Blog
Finding Hope: A Woman’s Place is in the Lab – Circulating Now, from the Historical Collections of the National Library of Medicine
Wash, Rinse, Dry—and Fold in Learning – NLM in Focus, a Look Inside the U.S. National Library of Medicine
2018 Recovery Month Toolkit: Each September, SAMHSA sponsors National Recovery Month to increase awareness and understanding of mental and substance use disorders, and to celebrate individuals living in recovery. The Toolkit and PSAs can be used to organize events, issue proclamations, and increase public awareness. Learn more about Recovery Month 2018 and how you can get involved.
NIH News in Health: Check out the September 2018 issue of NIH News in Health, featuring, “Breathe Easier: Dealing with Bad Air Quality,” and, “Smelling Sickness: Body Odor May Be Sign of Disease”. Other topics include preventing lead exposure, weight loss to help knee arthritis, kidney disease studies, and safe disposal of prescription drugs.NLM and NNLM Educational Opportunities
All are webinars, unless noted. Please note that the class registration system requires obtaining an NNLM account prior to registration. Learn how to register for classes from the NTO.
NNLM and NLM classes are free and open to all. Please feel free to share these opportunities!
Getting Started with Information Outreach in Your Community: An Introduction – September 13, 3:00-4:00 PM ET – Sponsored by GMR, this class will provide a background in cultural competence and outreach skills for librarians who want to initiate outreach programs for underserved, underrepresented minority populations in their communities. Topics to be covered include locating community demographics, the importance of developing relationships, the basics of building and developing community-based partnerships, recognition and acceptance of cultural differences, and the importance of cultural competency.
Assessing a Community – By The Numbers with Census Data – September 19, 11:00 AM-12:00 PM ET – Sponsored by SCR, this workshop will train participants on using the most relied-on source for detailed, up-to-date socio-economic statistics covering every community in the nation. This forum is designed for organizations that use data for community analysis, grant writing, needs assessment, and planning. With hands on training, attendees will use census.gov tools to gain a better understanding of the Census terms and geography levels, learn differences between 2010 Census for population numbers/basic characteristics, and American Community Survey for social/economic characteristics such as age, household income, poverty status, disability, transportation and housing.
Accessible Library Customer Service – September 19, 1:00-2:00 PM ET – Sponsored by MAR, this presentation will provide an overview of disability including appropriate terminology, creating an accessible environment, and evaluating library practices for way-finding, emergency preparedness, and web resources. Other topics include budgeting for accessibility, accessible employment, specific service needs, potential partner organizations, and a plethora of tips and resources for future use.
Planning for Disaster: Partnerships Ensure Continuity of Operations – September 20, 1:30-2:30 PM ET – Sponsored by the Disaster Information Management Resource Center (DIMRC), this presentation will describe steps that libraries can take to develop Continuity of Operations plans to deal with the new reality in disaster preparedness. The development and maintenance of real life collaboration between two military libraries, one federal library, and one local hospital library will be explored in the discussion.
Planning, Developing, and Evaluating R Curriculum at the NIH Library – October 12, 2:00-3:00 PM ET – Join MAR for this RDM webinar that will describe a pilot project to evaluate current R training at the NIH Library, and based on an evaluation of the data, revise the library’s R training curriculum. This will include a discussion of the development of a training plan, weekly R check-in sessions, managing documents using Open Science Framework (OSF), and an evaluation of the pilot.
Using Recovery Coaches in Substance Use Disorder Treatment – October 18, 1:00-2:00 PM ET – A Recovery Coach is a person who helps remove the personal and environmental obstacles to recovery, links the newly recovering person to the recovering community and serves as a personal guide and mentor in the management of personal and family recovery. Join NER for this webinar where you will learn what motivational interviewing is and how it aids in the change process and communicates acceptance.
New Classes On-Demand! EvalBasics 1-4 – Looking for more asynchronous learning? Try this four-part series on basic evaluation methods for community and user assessment, project and evaluation planning, and basic data collection and evaluation techniques. This series is especially useful to those who are responsible for designing and implementing evaluation of projects or services. Each class is self-paced, takes approximately one hour to complete, and is worth 1 Medical Library Association CE, so a total of four credits is possible for the entire EvalBasics series.Other Items of Interest
- Research and Instruction Librarian (part-time), Gumberg Library at Duquesne University, Pittsburgh, PA
- Associate Director, Library and Information Services, Thomas Jefferson University, Philadelphia, PA
Year in Review – HHS Blog
Nominate a Research Topic For an AHRQ Evidence Review – To support evidence-based decision-making, AHRQ’s Evidence-based Practice Center (EPC) Program is seeking topic nominations for upcoming evidence reviews. AHRQ’s network of EPCs reviews relevant scientific literature on a wide spectrum of clinical and health services topics. Nominations received by the September 21 deadline will be considered among research projects in fiscal year 2019. Nominations will be reviewed according to selection criteria. Preferred nominations will be those with high potential to impact clinical practice and health outcomes. Email email@example.com for questions.
HealthyNJ to be Retired – The website, HealthyNJ, will be officially retired on September 15, 2018, after almost 20 years of service to New Jersey’s health care consumers and libraries. For quality consumer health information, try MedlinePlus.
MAR Postings is a comprehensive weekly news series authored by the National Network of Libraries of Medicine, Middle Atlantic Region (NNLM MAR)
Welcome to the National Network of Libraries of Medicine (NNLM), Southeastern/Atlantic (SEA) Region’s Weekly Digest. This digest includes upcoming events, online training opportunities, news, and past events.
NNLM News – Top Stories
- Applications Open: Biomedical and Health Research Data Management Training for Librarians – Applications Due Sep 20, 2018
- But Wait, There’s More – Calling All Medical Librarians and Health Literacy Advocates Again!
- Congratulations Julie K Gaines – Recipient of the 2018 Michael E. DeBakey Library Services Outreach Award!
- SEA Insights: NNLM SEA Quarterly Update (September 25, 2 PM ET)
Upcoming Online Training Opportunities*
Webinars September 10 – 14
- NTO: PubMed for Librarians – Automatic Term Mapping (ATM) (September 12, 2:00-3:30 PM ET)
- NER: Dietary Supplement Label Database: Advanced Search and Data Download (September 13, 2 PM ET)
- GMR: Getting Started with Information Outreach in Your Community: An Introduction (September 13, 2 PM ET)
National Institutes of Health (NIH), National Library of Medicine (NLM), and National Center for Biotechnology Information (NCBI) News
- NIH News in Health – September Edition Available
- NIH News Release: Clinical Trial Testing Topical Cream Plus Influenza Vaccine in Progress
- NIH News Release: NIH Grants Will Spur Innovation in Under-Resourced States
- The NIH Director: 3D Action Film Stars Cancer Cell as the Villain
- The NIH Director: Researchers Elucidate Role of Stress Gene in Chronic Pain
- Funding Announcement: NLM Research Grants in Biomedical Informatics and Data Science (Earliest Submission Date September 5, 2018)
- Funding Announcement: NLM Information Resource Grants to Reduce Health Disparities (Earliest Submission Date: Sep 22, 2018)
- Fellowship Announcement: NLM Welcomes Applications to Its Michael E. DeBakey Fellowship in the History of Medicine for 2019 (Apply by September 28)
NLM Technical Bulletin
- RxNorm Aligns with International Drug Models by Adding New Attributes
- RxNorm Adds USP Compendial Nomenclature Data Source
- RxNorm September 2018 Release
- September 2018 SNOMED CT US Edition Available for Download
- CORE Problem List Subset of SNOMED CT Available for Download
- NLM Webinar Series: Clinical Information, Librarians, and the NLM: From Health Data Standards to Better Health
- NCBI Minute: Release Plan for NCBI API Keys (Sep 12, 12-12:30 PM ET)
- Improved Search Now Available Across NCBI Databases
- Circulating Now: Finding Hope: A Women’s Place is in the Lab
- NLM in Focus: Wash, Rinse, Dry – and Fold in Learning
- Musings on the Mezzanine: How Much Does it Cost to Keep Data?
- 2018 IFLA Trend Report Update
- Google Dataset Search (beta) Available
- HHS: Surgeon General’s Year in Review
Focus on All of Us/Precision Medicine
- Beckers Hospital Review: NIH Unveils Online Research Hub for All of Us Precision Medicine Project
- All of Us Research Hub
- All of Us September 2018 Newsletter
NNLM SEA Communications
* Notes on NNLM Training Opportunities
- All sessions listed are sponsored by a specific regional or national office, but open to all.
- Webinars are scheduled for 1 hour unless otherwise noted.
- The NNLM class registration system requires a free NNLM account prior to registration.
- Visit the NNLM Training Opportunities to register and view a full calendar of training opportunities.
- Please visit the NNLM Acronym Guide to understand the acronyms.
- Refer to this guide to claim MLA CE credit.
- Not all Training Opportunities listed provide MLA CE credit. Please refer to the class page to see if a specific session offers credit.
** Please note that NNLM recordings on YouTube may not have MLA CE Credit available. Please contact the regional office that sponsored the webinar for details.
Founder and President of the Turner Syndrome Global Alliance Kelly Ranallo shared her family’s story and discussed the importance of making precision medicine available to everyone at the Kansas City launch of the All of Us Research Program. Ranallo emphasized how precision medicine can help improve the health for all by taking into account each person’s genetic makeup.
Go to the video of her talk to hear more about her family’s journey.
This past month, we hosted Natalie Roy, co-founder and executive director of AgriSafe Network, a nonprofit organization working to improve the health and safety of farmers and ranchers. The unique health issues faced by communities of agricultural workers across the country make organizations like Natalie’s essential in reaching individuals in those communities.
In her presentation, Natalie described some of the challenges facing these groups, including:
- Lower literacy rates
- Greater work-related risks
- Low income households
- Limited accessibility to information and care
She also spoke about some of the work that AgriSafe is doing to reach these communities, such as:
- Ongoing needs assessment
- Training for rural health professionals
- Partnerships with other agricultural centers, rural research centers, and other nonprofit organizations
So, what is the connection here for all of you? We hope this presentation introduced or re-emphasized the needs of a unique population that might be served by some of your institutions, as well as a unique nonprofit organization that works directly with that population.
Natalie herself mentioned wanting to gain a greater understanding of what libraries do, for example, and encouraged the creation of innovative partnerships between libraries and agricultural centers, particularly in addressing the issue of health literacy and sharing information about free, easy-to-use resources.
In addition to AgriSafe Network, there are a number of institutions Natalie covered in her talk that could serve as potential partners in the field. The US Agricultural Safety and Health Centers, an effort by the National Institute for Occupational Safety and Health (NIOSH) and part of the Centers for Disease Control and Prevention (CDC), are located throughout the country and would be happy to connect with other groups interested in working with agricultural communities. Find your nearest Ag Center online!
Be sure to check out our next SCR CONNECTions webinar, Assessing a Community – By the Numbers with Census Data, scheduled for Wednesday, September 19th at 10am CT / 9am MT!
Native Voices: Native Peoples’ Concepts of Health and Illness is a traveling exhibition that explores the interconnectedness of wellness, illness and cultural life for Native Americans, Alaska Natives and Native Hawaiians. This past summer, The University of Cincinnati had the opportunity to host the exhibit while collaborating with a series of speakers. Here is an overview of the success of the exhibit and their programming, from Associate Director of Donald C. Harrison Health Sciences Library & Henry R. Winkler Center for the History of the Health Professions, Lori Harris:
The University of Cincinnati was honored to be selected as one of the host sites for the Native Voices: Native Peoples’ Concepts of Health and Illness exhibition. With a planning committee that consisted of faculty from the College of Medicine, Department of Biological Sciences, faculty librarians, archivists and various community partners, our goal was to highlight Native American History and Culture as it related to the Cincinnati Ohio region.
Our inaugural event focused specifically on 3-5 year-old children and was held in the University of Cincinnati’s main library – Langsam Library. We hosted 24 children from the Arlitt Child & Family Research & Education Center, which serves preschool children from diverse cultural and socioeconomic backgrounds. The program included dramatic skits that introduced a brief play about the Iroquois legend of the Three Sisters and its corresponding gardening tradition. There were also activity stations and multi-media fun held in our Student Technology Resource Center (STRC).
Video was taken of children in front of a green screen and was then superimposed onto an image of the Great Plains and an American Indian village complete with moving buffalo. The children never once lost interest and each child was presented with a parting gift of the book entitled: D is for Drum: A Native American Alphabet by Debbie and Michael Shoulders and Irving Toddy. There was an accompanying exhibit of Native American children’s books from the University of Cincinnati’s Children’s Collection.
On Thursday, July 26, Dr. Suzanne Singer launched the Native Voices exhibit opening with a keynote presentation. After introductions by Xuemao Wang, Dean, University of Cincinnati Libraries; Philip Diller, MD/PhD, Chair and Fred Lazarus Jr Endowed Professor of Family and Community Medicine; and Bleuzette Marshall, PhD, Vice President for Equity and Inclusion at UC Dr. Singer, an Energy Systems and Thermal Analyst in the Computational Engineering Division at the Lawrence Livermore National Laboratory in Livermore, CA was introduced. Her talk focused on the intersections between land, energy, and health in the Navajo community. Attendees were encouraged to visit the exhibit and enjoy some of the catered hors d’oeuvres after Dr. Singer’s talk. In addition to the Native Voices exhibit, a supplementary poster presentation also ran concurrently with the exhibit and was on display alongside the Native Voices listening stations. The posters were a capstone project from a UC Medical Botany class taught by Theresa M. Culley, Ph.D. and Eric Tepe, Ph.D during spring semester, 2018. The posters examined how Native Americans used indigenous plants to maintain health and hygiene throughout the Ohio Valley.
Throughout the 6-week period the University of Cincinnati Libraries hosted keynote speakers that included professors and historians from the University of Cincinnati and Northern Kentucky University; as well as lecturers from the Lloyd Library and Cincinnati Museum Center.
This experience has given the University of Cincinnati an opportunity to broaden current relationships with local universities and colleges as well assisting us in building new partnerships with some of our local and regional community partners who have an interest in the history and relationship of Native Peoples in the Ohio region.
by April Wright, All of Us Community Engagement Coordinator, NNLM SEA Region
NNLM SEA is excited to welcome Memphis and Nashville public libraries as partners in the All of Us Community Engagement Network!
One of Memphis Public Library’s (MPL) strategic goals is to “reach beyond its walls with creative partnerships that make a difference in people’s lives.” As a library with full service radio and television stations, they offer health information programming and an extensive line-up of diverse community-related programming including book talks, local music, international news, accessible programming, information on legal issues, and policy discussions.
Having received funding from the NNLM All of Us Research Program Community Engagement initiative, Memphis Public Library plans to leverage the well-established Health Information Center (HIC) at the Benjamin J. Hooks Central Library to “build health-centric initiatives at several branch libraries across the city.” This supports MPL’s dual mission to expand its collections while enriching its neighborhood branches. In addition, the project will serve to more deeply connect the Health Information Center with local health organizations and universities and initiatives, such as Healthier Tennessee’s Memphis Healthier Neighborhoods, taking a community-based approach to increasing health literacy.
Another strategic goal aims to push the library from a supporting player to a leader in community conversations. Memphis was the first library to receive funding from the NNLM All of Us Research Program Community Engagement initiative and is certainly taking the lead in building a viable experience for participants in the All of Us Research program and the populations they serve.
In 2017, Nashville Public Library (NPL) won the Gale/Library Journal Library of the Year Award. It boasts such features as the Civil Rights Room, an active program space that promotes understanding, communication, and civil discourse. The library also takes great pride in its tradition of puppetry and presentation of literature-based puppet shows.
Like its Western Tennessee neighbor, Nashville Public Library is no stranger to health and wellness initiatives. Be Well at NPL “aims to provide access to free health and wellness activities, education, and resources in a safe and welcoming environment. In 2017, in partnership with several community organizations, NPL delivered 1,737 health and wellness programs serving 20,549 Nashville residents. Activities include but are not limited to yoga and meditation, aerobic exercise, nutrition education, and mental health counseling. These services, along with the library’s health-related collections, provide support for residents as they pursue active, healthy lifestyles. With funding from NNLM through the All of Us Research Program Community Engagement initiative, NPL aims to build more robust partnerships with local universities, medical libraries, and other organizations. These partnerships will build upon the work of Be Well at NPL and provide training to library staff to promote expertise in health information literacy.
We look forward to seeing the work these library systems will do in the future!
National Suicide Prevention Week will take place September 9th-15th. September 10th is World Suicide Prevention Day and September is National Suicide Month. One way you can raise awareness around the risks of suicide is by joining others around the world as they cycle around the globe to raise awareness that suicide can be prevented. According to the World Suicide Prevention Day website, a person dies every 40 seconds by suicide and there are “many more people who have been bereaved by suicide or have been close to someone who has made an attempt.”
According to the American Foundation for Suicide Prevention, “one of the risks for suicide is social isolation, and there’s scientific evidence for reducing suicide risk by making sure we connect with one another”. This is fitting, considering this year’s theme: The Power of Connection. Other risk factors a person might exhibit is:
- Talking about killing themselves
- Being a burden to others
- Giving away prized possessions
- Sleeping too much or too little
- Withdrawing from activities and/or loss of interest
For more assistance and further resources, see the National Suicide Prevention Lifeline and SAMHSA (The Substance Abuse and Mental Health Services Administration). Begin actions to promote healing and remember to:
- Keep them Safe
- Be There
- Help Them Stay Connected
- Follow Up
Registration is available for a new National Library of Medicine five-week interactive webinar series, Clinical Information, Librarians and the NLM: From Health Data Standards to Better Health. Sessions will focus on the roles and products of the NLM related to applied medical informatics, particularly as applied to electronic health records (EHRs) systems and clinical research. The series is specially designed for health sciences librarians and other health information specialists seeking to serve more active roles in their health IT team and better support clinical researchers.
Dates and times will be Thursdays at 9:00 AM PDT, beginning September 6. Webinars will consist of brief presentations, activities, and Q&A and will run about 30 minutes. The first session of the series will touch on terminology standards, including the Unified Medical Language System (UMLS) and its vocabularies (including ICD-10, SNOMED CT, RxNorm, and LOINC), and tools such as the Value Set Authority Center (VSAC) and the Common Data Elements (CDE). Overall goals of the series are for participants to be able to:
- Use the jargon associated with health IT to be able to communicate effectively with IT staff and administrators.
- Name relevant health data standards and describe how they are used.
- Describe NLM products and services that enrich and inform EHRs and other health data systems.
- Identify roles for librarians on the health IT team and in the research process.