As you may know, it’s “Love Data Week”! Formerly “Love Your Data Week”, this is the third year of this international data extravaganza, which seeks to “raise awareness and build a community to engage on topics related to research data management, sharing, preservation, reuse, and library-based research data services.” The theme this year is “Data Stories”, which leads to the important question, “How DO you tell a story with data anyway?”
There are many sites that will help you get started on this quest; here, here and here are some good ones. But, the main prerequisite is to KNOW YOUR DATA. You can’t tell a great story about someone else’s vacation, right? Similarly, to tell a good story with your data, you need to know where it comes from and how it was gathered, what question it’s meant to answer, and how it may lead you astray (if your random sample only comes from people with landlines, you may have a LEETLE bias).
Once you know your data, LOOK FOR CONNECTIONS (like the girl in the picture!). Does a certain pattern seem to emerge if you look at two variables in conjunction with each other? Does one item seem to predict another? How does the data compare with other reports you can find in journals or online or among reports from colleagues? Remember, the data don’t necessarily need to be quantitative; qualitative and other types of data can tell stories too!
Then, once the connections start to emerge, SHARE YOUR LOVE! There are so many great tools to help you make the story take a shape that allows others to read/absorb it! For example, Tableau has a public version that is free, Excel actually has quite a bit of capability for even sophisticated visualization, and some free online infographic platforms such as Piktochart can be very user friendly.
Be sure to check out the “Love Data Week” site, and some of the links below as well. And let us know if you have ideas for how we can help you tell better stories!
–“Best Starts for Kids” Data Storytelling webinar
–NIH LibGuide on Scientific Communication and Data Storytelling (with slides and handout!)
Photo credit: Diane Hammerton on Flickr
In April 2018, NLM will start limiting the length of PubMed custom filters to 4,000 characters, and asterisks (*) for truncation will no longer be allowed in these filters. The limitation of this My NCBI feature is being introduced to address resource-intensive demands on the system and to continue providing a rapid response time for all PubMed users. Custom filters appear on the right sidebar menu in PubMed and are configured in My NCBI.
Users of custom filters in PubMed that contain more than 4,000 characters and/or an asterisk (*) for truncation can prepare for this change now by updating the custom filters. For any search(es) affected by this change, click on the gear icon and edit the search so that it contains fewer than 4,000 characters and no asterisks. After the new rules are implemented, custom filters that exceed 4,000 characters and/or include an asterisk (*) will be disabled. Custom filters that do not exceed 4,000 characters or include any asterisks (*) will not be affected. An alternative is to create a My NCBI saved search to use in place of a filter. For further details and graphic illustrations, visit the NLM Technical Bulletin.
Wednesday, February 28, 2018 at 1pm MT/2pm CT
Discover NLM Resources and More series
Dive into heart health resources from the National Institutes of Health with Annette Parde-Maass, NNLM MCR Education and Outreach Coordinator. She will focus on resources from the National Institute on Aging (NIA) and the National Heart, Lung, and Blood Institute (NHLBI) and how they can help you and the people you serve. She’ll provide an overview of each site, demonstrate some sample searches, and show you where to find educational and outreach materials, including multilingual or multicultural pieces and orders for hard copies. She’ll also give you time to search the sites yourself and share findings with others.
Wednesday, February 21, 2018 at 10am MT/11am CT
Breezing Along with the RML series
According to the National Association of Social Workers, cultural competence is “a congruent set of behaviors, attitudes, and policies that enable a person or group to work effectively in cross-cultural situations.” This webinar will provide an introduction to cultural competence, discuss why it is important and how it applies to the work of information professionals.
Guest Speaker: Shaundra Walker, PhD, Interim Library Director of the Ina Dillard Russell Library at Georgia College
The National Institutes of Health has released Your Healthiest Self: Wellness Toolkits, featuring science-based health tips in five different areas: Your Surroundings; Your Feelings; Your Body; Your Relationships; and Your Disease Defense. Each area has checklists of tips to print for yourself or share with others. The wellness toolkits link to dozens of NIH resources, fact sheets, and articles for more information.
Guest post by Alan Lampson, Lead, Frymoyer Community Health Resource Center, University of Vermont Medical Center
On June 21, NNLM NER kicked off a 4-part Community of Interest (COI) class on Community Health Engagement with an introductory session. We discussed what a COI is – a community of people who share a common interest or passion. We then defined what the purpose of this COI is – to provide a group learning experience in community assessment, outcomes-based planning, and data collection. The program was led by Margot Malachowski, Education and Outreach Coordinator for the National Network of Libraries of Medicine, New England Region.
Session One: Community Health Engagement
- Review COI definition
- Share your project ideas
- Describe community health engagement process, including “do you need IRB approval?”
- Q & A.
At this initial meeting there were presentations on three different types of projects. The first presentation was from Gayle Finkelstein of the University of Vermont Medical Center and the Northern New England Poison Control Center. Gayle talked about a population-based project, her poison prevention work with immigrants and new Americans. The second presentation was by Susan Halpin from NNLM and highlighted a problem-based project, the opioid abused epidemic. This project was called the Learning Curve and was an NNLM funded project. The third presentation was an idea for a technology-based project on Patient Generated Data by Margot. This was followed by a presentation on the guidelines for IRB approval of projects.
Session Two: Community Assessment
- Taking Inventory
- Example: Outreach to Boston-area Youth
- Evidence-Based Outreach
- What are your concerns?
In this webinar, Margot presented information on the whys and whats of community assessments. Margot discussed the process of taking inventory in outreach planning.
Margot then demonstrated each of the steps using a project for Outreach to Boston-area Youth. We reviewed sources for community assessment data, including government data sets, organizations such as the Pew Research Center as well as hospital community needs assessments (CHNAs).
Session Three: Outcomes-based Planning
- Checking in
- Innovation-Decision Process
- Logic Models
- Reality Check
- Process Evaluation
- Q & A
Session 3 began with a discussion on the Innovation-Decision Process.
Stage One: Knowledge – Community becomes aware of it
Stage Two: Persuasion – Community actively seeks information about it
Stage Three: Decision – Community decides to experiment with it
Stage Four: Implementation – Community uses it
Stage Five: Confirmation – Community becomes committed users
(Outreach Evaluation Resource Center, Planning and Evaluating Health Information Outreach Projects, Booklets One-Two-Three. Available for download at: https://nnlm.gov/neo/professional-development/guides)
We also explored logic models, a method to plan projects by identifying desired outcomes (short, medium and long term) what activities would lead to these outcomes and then what inputs or resources would be needed to carry out those activities. Logic models have the benefit of making it more likely that desired outcomes are measurable.
Session Four: Preparing Your Pitch with Data
- What’s in a Proposal?
- Examples of Eye-Catching Data
- Infographics Tools (Eugenia)
- Q & A
This session reviewed the components of a proposal and the presentation of data in both the proposal phase and the results phase. During this session Sharon Hawkes, Director of the Nahant (MA) Public Library, shared her needs assessment of her community. Eugenia Liu from the University of New Hampshire gave a demonstration on using Piktochart to present information. Piktochart is a free web based application that allows users to create infographics.
Session 4 is available to watch by going to this link.
If you would like to view earlier sessions or have any other questions please contact Margot Malachowski at Margot.Malachowski@umassmed.edu
This webinar series was a great opportunity to learn about the process of developing a community health project and hear ideas from other participants. Thank you to Margot Malachowski for presenting this series. For those of us who work in consumer health it is always important to look outside our organizations, assess the needs of the community, and plan projects to meet those needs.
For those who are ready to take their idea to the next phase Margot will be teaching “Grants and Proposal Writing”, February 15th at 2:00 PM. Registration link.
Happy Love Data Week! This year’s theme is data stories. Formally known as Love Your Data Week, this social media event has been going on since 2016 when a group of enterprising research data specialists decided it would be a great way to raise awareness about research data management. Over the past two years, Love Data Week has grown to include participants in Europe, Asia, and Australia, and shows no sign of slowing down. The event is marked by Tweets, Facebook posts, Blog posts, webinars and live events, and this year’s theme is the broadest yet. Data stories is envisioned as an entry point for conversations about how data is being uses to shape the world around us. Sub-topics include stories about data, telling stories with data, connected conversations, and we are data.
If you or your organization would like to participate in Love Data Week, you will find a wealth of information on the website. Send your data a valentine and get involved!
MetaMap is a highly configurable program developed by Dr. Alan (Lan) Aronson at the National Library of Medicine to map biomedical text to the UMLS Metathesaurus or, equivalently, to discover Metathesaurus concepts referred to in text. MetaMap uses a knowledge-intensive approach based on symbolic, natural-language processing (NLP) and computational-linguistic techniques. Besides being applied for both IR and data-mining applications, MetaMap is one of the foundations of NLM’s Medical Text Indexer (MTI), which is being used for both semiautomatic and fully automatic indexing of biomedical literature at NLM.
See something of interest? Please share our postings with colleagues in your institutions!Spotlight
NNLM is offering stipends of up to $500 to support travel and lodging for the Health Information for Public Librarians Symposium at the MLA Annual meeting in Atlanta, GA. First come, first serve! Learn more about eligibility and instructions on how to apply.
Member Highlights: Central Library of Rochester & Monroe County, Rochester, NY – Learn about the ongoing outreach efforts of Central Library as they strive to eliminate resource barriers in their community. Is your organization working on a similar project? Tell us about it! NNLM MAR is always interested in learning about health outreach activities that are happening in Pennsylvania, New York, New Jersey and Delaware.National Network of Libraries of Medicine News
All NNLM MAR funding opportunities are currently closed. In March, we will announce opportunities to apply for projects starting May 15, 2018. Now is the perfect time to start meeting with potential partners and consulting with NNLM MAR staff on health information outreach ideas. Contact us to set up a consultation.
NNLM is partnering with the Public Library Association (PLA) to present a full-day preconference in conjunction with PLA 2018 in Philadelphia, PA. This preconference will review core competencies of providing health and wellness services, coach you through understanding your community’s needs, and explore how to create fun and informative health-related programming for different age groups and special populations. Details.
Promoting Healthy Communities: as part of our joint consumer health initiative with the Public Library Association, we are encouraging network members to submit a brief write-up about their health and wellness programs to ALA’s Programming Librarian website, so that others may benefit from your success! Learn more about this opportunity.
Renew your membership today! If you have not yet verified that your organization’s record is up-to-date, see our recent blog post about the benefits of renewal and NNLM Membership. Are you having trouble creating an NNLM account? If you have received an error message such as, “email address already in use,” contact us for assistance.
Love Data Week and Endangered Data Week in February – SEA Currents
New on YouTube: Moving from Data to Health Equity Action: County Health Rankings and Roadmaps, January 10, 2018NLM/NIH News
The Office of Minority Health and the American Heart Association will be hosting a Twitter chat on February 14, focusing on African American heart health. Follow #LoveYourHeartChat from 2-3 PM ET and join the conversation!
Reflections on Patient- and Family-Centered Care – NLM Musings from the Mezzanine, Innovations in Health Information from the Director of the U.S. National Library of Medicine
- Creative Minds: Building Better Computational Models of Common Disease
- Sequencing Human Genome with Pocket-Sized “Nanopore” Device
– NIH Director’s Blog
An Anatomical Essay on the Movement of the Heart – Circulating Now, from the Historical Collections of the National Library of Medicine
Medication Reference Terminology (MED-RT) Webinars Available Now – NLM Technical Bulletin, Your Source for the Latest Searching Information
Check out the February 2018 issue of NIH News in Health, featuring, “The Power of Pets: Health Benefits of Human-Animal Interactions,” and, “The Problem That Piles Up: When Hoarding Is a Disorder.” Other topics for February include unexplained cases of allergic reactions linked to red meat, how to find a cancer doctor, and bullying prevention.NLM and NNLM Educational Opportunities
All are webinars, unless noted. Please note that the class registration system requires obtaining an NNLM account prior to registration. Learn how to register for classes from the NTO.
NNLM and NLM classes are free and open to all. Please feel free to share these opportunities!
Insider’s Guide to Accessing NLM Data: Welcome to E-utilities for PubMed – February 13, 1:00-2:00 PM ET – Join NLM for this introductory webinar designed to teach you more powerful and flexible ways of accessing NLM data, starting with the Application Programming Interfaces (APIs) for PubMed and other NCBI databases. This class will start with the very basics of APIs, before showing you how to get started using the E-utilities API to search and retrieve records from PubMed. The class will also showcase some specific tools and utilities that information specialists can use to work with E-utilities, helping to prepare you for subsequent Insider’s Guide classes. Participants will finish by looking at some practical examples of E-utilities in the real world.
Shared Decision Making: Patient Empowerment – February 28, 2:00-3:00 PM ET – Sponsored by MAR, this presentation will address patient empowerment by introducing attendees to consumer shared decision making (SDM) tools, including the historical background of SDM, examples of various types of decision support tools, and their functionality. Learn about free, easy-to-read, health information resources and SDM tools, and tips and techniques for implementing this workflow in your organization.
Using Data to Guide and Evaluate Responses to the Opioid Crisis: Rhode Island’s Drug Overdose Dashboard – March 1, 1:00-2:00 PM ET – The rapidly evolving nature of the nation’s overdose epidemic necessitates the dissemination of timely information to inform effective public health responses. Unfortunately, many overdose surveillance systems suffer from delays in reporting and other logistical challenges. Sponsored by NER, this webinar will provide an overview of Rhode Island’s drug overdose information and surveillance “dashboard.” Participants will learn how the timely analysis and public dissemination of data is being used to guide and evaluate policy and public health response to the overdose crisis in Rhode Island.
Insider’s Guide to Accessing NLM Data: EDirect for PubMed – March 5-22, 2018 – This series of interactive workshops from NLM will introduce new users to the basics of using EDirect to access exactly the PubMed data you need, in the format you need. Over the course of five 90-minute sessions (plus an optional “office hours”), students will learn how to use EDirect commands in a Unix environment to access PubMed, design custom output formats, create basic data pipelines to get data quickly and efficiently, and develop simple strategies for solving real-world PubMed data-gathering challenges. No prior Unix knowledge is required; novice users are welcome!
Cool Creative Communications: Dazzling Data Visualization – March 5-April 8, 2018 – Sponsored by SEA, this asynchronous online class covers concepts of visually representing data and proven tools that are effective in making data understood at a glance. Students will increase their knowledge on data visualization concepts and a variety of data visualization applications.
Improving the Health, Safety and Well-being of LGBT Populations: Part 1 – March 7, 2:00-3:00 PM ET – LGBT individuals face many barriers in accessing healthcare, including discrimination, lack of access, misunderstanding, and fear. Join MAR for this webinar that will help participants gain a better understanding of the health information needs of the LGBT community. This class will examine the benefits of LGBT-focused cultural competency for the health care team, identify electronic, print, and other resources for building quality LGBT collections and reference materials, offer ideas for outreach strategies to the LGBT community, and identify inter-professional opportunities for librarians.Other Items of Interest
- Access & Discovery Faculty Librarian, Gumberg Library at Duquesne University, Pittsburgh, PA
- Executive Director, NNLM Southeastern Atlantic Region, University of Maryland, Baltimore, MD
The Institute of Museum and Library Services (IMLS) Presents a New Strategic Plan for 2018-2022: Vision Will Focus on Advancing Museums, Libraries, and Their Communities
Communicating About Opioids in Appalachia: Open and honest communication about community-level opioid use is one part of finding solutions, according to a new report issued by the Appalachian Regional Commission (ARC) and the Centers for Disease Control and Prevention (CDC). The report shares findings from interviews and focus groups in 12 largely rural states of the ARC region conducted by Oak Ridge Associated Universities. Stigma, experienced even years after recovery from opioid use, was reported as a common challenge among interview subjects along with lack of options for treatment. But the researchers were also able to uncover hidden challenges unique to these communities, including an expectation of privacy that keeps neighbors and friends from intervening; lack of opportunity, especially for younger people; and misunderstandings about prevention efforts and the risk of prescription medication for pain. The report outlines successful strategies for communicating about opioid use with messages that specifically target individuals suffering from addiction, family and caregivers, and the broader community.
MAR Postings is a comprehensive weekly news series authored by the National Network of Libraries of Medicine, Middle Atlantic Region (NNLM MAR)
Welcome to the National Network of Libraries of Medicine (NNLM), Southeastern/Atlantic (SEA) Region’s Weekly Digest. This digest includes upcoming events, online training opportunities, news, and past events.
Top Items of Interest
- Feeling Sappy about Dale Prince
- Job Posting: Executive Director, Southeastern Atlantic Regional Medical Library (Apply by March 2, 2018)
National Network of Libraries of Medicine (NNLM) News
- SEA Pilot Project: Join our Consumer Health Information Specialization (CHIS) Facebook Group
- NTO: PubMed Commons to Be Discontinued
- MLA, PLA, NNLM Symposium: Health Information for Public Librarians – Registration and travel stipends available for Public Librarians. (May 22 – 23, 2018)
Upcoming Online Training Opportunities*
Online Asynchronous Moodle Course
- Cool Creative Communications: Dazzling Data Visualization (March 5 – April 8)
Webinars: February 12-16
- SCR: Preparing for the Worst: Best Practices for Emergency Preparedness (February 14, 10:00 AM CT / 11:00 AM ET)
- NTO: PubMed for Librarians: Customization with My NCBI (February 14, 1:00 – 2:30 PM ET)
- NER: Grants and Proposal Writing (February 15, 2:00 PM ET)
- GMR: Getting Started with Information Outreach in Your Community: An Introduction (February 16, 10:00 AM CT/11:00 AM ET)
Webinars: February 19-23
- MCR: Cultural Competence for Information Professionals (February 21, 11:00 AM CT/12:00 PM ET)
- SCR: Healthy Aging: Connecting Older Adults to Health Information (February 22, 10:00 AM – 12:00 PM CT/11:00 AM ET – 1:00 PM ET)
- GMR: Tales & Travel Memories: Literacy-focused Programming for People with Dementia (February 21, 1:00 PM CT/2:00 PM ET
- PNR: Hope From Our Grandmothers: Decolonizing Data through Stories of Resilience (February 21, 1:00 PM PT/4:00 PM ET)
Webinars: February 26 – March 2
- MAR: Shared Decision Making: Patient Empowerment (February 28, 2:00 PM ET)
- MCR: Heart Health (February 28, 2:00 PM CT/3:00 PM ET)
On-Demand Asynchronous Online Moodle Courses
- SEA: Keeping Up with PubMed (Available to enroll until April 1st with completion by April 30, 2018)
- SEA: Chemicals, Drugs, Genetics: Searching PubMed and Beyond
- GMR: Online Resources to Support Evidence-Based Practice on Population Health: An Introduction to MedlinePlus, PubMed, and HSRProj
In addition to the webinars listed, the NNLM Public Health Coordination Office provides webinars for subscribers to the Digital Library. Visit the NPHCO Calendar for training opportunities available.
Recordings Available on YouTube**
- Disrupting Diversity Narratives: Introducing Critical Conversations in Libraries | Beyond the SEA Webinar Series
- Genetics Home Reference | NNLM Resource Picks Webinar Series
- MeSH Changes and PubMed Searching
- An Update on the Cost Impact Research Project | Breezing Along with the RML Webinar Series
National Institutes of Health (NIH), National Library of Medicine (NLM), and National Center for Biotechnology Information (NCBI) News
- NIH News in Health – February 2018 Issue Available
- NIH Director’s Blog: Creative Minds: Building Better Computational Models of Common Disease
- BBC News: The Extraordinary Healing Powers of Music (Dr. Collins Speaks to BBC News about the Therapeutic Potential of Music)
- Sequencing Human Genome with Pocket-Sized “Nanopore” Device
- NIH Webcast: A Conversation about Graphic Medicine, Presented by Dr. Patti Brennan, Director NLM, NIH (March 1, 2:00 PM – 3:30 PM ET)
NLM Technical Bulletin
- NLM Webinar: Insider’s Guide to Accessing NLM Data – Welcome to E-Utilities for PubMed on February 13, 2018
- NLM Webinar Series: Insider’s Guide to Accessing NLM Data: EDirect for PubMed Starts on March 5, 2018
- Medication Reference Terminology (MED-RT) Webinars Available Now
- RxNorm February 2018 Release Available
- Medical Subject Headings Webinars: 2018 Highlights and PubMed Searching (Recordings Available)
- PubMed Commons to Be Discontinued
- New API Keys for the E-utilities
- North Carolina Research Triangle Hackathon (March 12-14, 2018)
Focus on Data
- Visme: How to Transform Boring and Dry Reports with Data Visualization
- Medium: Python Basics for Data Science
- SEA: Love Data Week and Endangered Data Week in February
Focus on Precision Medicine
- All of Us Research Program Seeks Input on Research Priorities (Deadline for Submitting is February 23)
- US News & World Report: What Does Personalized Medicine Really Mean?
- All of Us Research Program Announces Funding Opportunity for Community Partners (Application Due Date March 24)
Focus on Substance Use Disorder
- NIHCM Foundation: The Opioid Crisis: Understanding Pain and Preventing Opioid Misuse (February 13, 1 PM ET)
- SAMHSA: Clinical Guidance for Treating Pregnant and Parenting Women with Opioid Use Disorder and Their Infants
- Substance Abuse Librarians & Information Specialists: Resources for Alcohol, Tobacco, and Other Drug Information
- Circulating Now: An Anatomical Essay on the Movement of the Heart
- NLM in Focus: Want to Do More with PubMed?
- NLM Musings from the Mezzanine: Reflections on Patient- and Family-Centered Care
- APTR: Clinical Prevention & Population Health Curriculum Framework
NNLM SEA Communications
* Notes on NNLM Training Opportunities
- All sessions listed below are sponsored by a specific regional or national office, but open to all.
- Webinars are scheduled for 1 hour unless otherwise noted.
- The NNLM class registration system requires a free NNLM accountprior to registration.
- Visit the NNLM Training Opportunitiesto register and view a full calendar of training opportunities.
- Please visit the NNLM Acronym Guideto understand the acronyms.
- Refer to this guide to claim MLA CE credit.
As part of our ongoing partnership with the Public Library Association(PLA) and supplemental funding from the National Network of Libraries of Medicine (NNLM), our office has developed a new course on health information for public library staff. In developing this course, we partnered with OCLC WebJunction and the College of Education at the University of Iowa to incorporate feedback from participants and best practices for online learning. Stand Up for Health: Health and Wellness Services for Your Community is a 12 credit continuing education (CE) credit course, delivered both online and in-person.Online
Beginning March 5th, Bobbi Newman of GMR and Carolyn Martin from PNR will lead the first cohort of public library staff through the new course. This cohort is part of the supplemental project itself, and will provide feedback which we will use to make final updates to the course. The class will be asynchronous and run for four weeks. Public library staff who are interested in enrolling in this cohort can apply by filling out an online form.
Due to high interest in the course, we will be offering it again April 23rd-May 20th. Registration for that class will be through the NNLM courses website and will open March 5th.In-Person
The in-person course will be taught as a PLA pre-conference. Attendees will be required to do 2 hours of pre-course work, attend the eight-hour in-person session, and complete a 2-hour take-home assignment in order to receive their 12 CE credits. Registration is still open!
Stay tuned for more in-person opportunities!Consumer Health Information Specialization
All public library staff who complete either the online or in-person version will receive the Consumer Health Information Specialization (CHIS) certificate from the Medical Library Association (MLA) compliments of NNLM!
On January 1, 2018, NLM’s fee for filling an interlibrary loan request changed from $9.00 to $12.00. This long overdue price increase will help keep NLM’s ILL service a national leader and ensure that NLM can continue to deliver efficient service and maintain a fast turnaround time to complete incoming requests. In light of this change, NLM asks libraries to increase their Maximum Cost to at least $12 before routing requests to NLM.
Love Data Week is February 12th – 16th and Endangered Data Week is February 26th – March 2nd. Data Weeks provide opportunities for researchers, scholars, data professionals, and the community to share stories about the data that shape our lives. Data Weeks encourage us to stop and think about the data that we use, manage, and create both professionally and in our everyday lives.
What is Love Data Week?
Love Data Week is February 12 – 16, 2018. Similar to Open Access Week, the purpose of Love Data Week is to raise awareness and build a community to engage on topics related to research data management, sharing, preservation, reuse, and library-based research data services. We are encouraged to share practical tips, resources, and stories to help researchers at any stage in their career use good data practices.
Topics covered are considered entry points to broad conversations about how data is being used to shape the world around us. This year the topics selected are:
- Stories about data – Lessons learned about our own failures and successes in dealing with data.
- Telling stories with data – How data is being used in creative and compelling ways to tell a clear story, whether to raise awareness, change behavior, or organize and action?
- Connected conversations – There are lots of conversations about the challenges, potential, and strategies of working with data in various silos. How can we begin to facilitate conversations between communities that have similar challenges, but not interact in daily work?
- We are data – Explore the personal, ethical, and practical implications of living in a culture that utilizes our every digital move.
What is Endangered Data Week?
Endangered Data Week (February 26 – March 2, 2018) is a new, collaborative effort, coordinated across campuses, nonprofits, libraries, citizen science initiatives, and cultural heritage institutions, to shed light on public datasets that are in danger of being deleted, repressed, mishandled, or lost. The week’s events can promote care for endangered collections by: publicizing the availability of datasets; increasing critical engagement with them, including through visualization and analysis; and by encouraging political activism for open data policies and the fostering of data skills through workshops on curation, documentation and discovery, improved access, and preservation.
A number of suggested activities are available in support of Endangered Data Week. Possible ideas include:
- Subject-specific workshops or presentations using endangered datasets
- Lectures or roundtables on issues of transparency, policy, or critical data literacy
- Workshop/hackathon on organizing, reformatting, or visualizing endangered data
- DataRescue events
- Letter writing/advocacy campaigns
- Data curation workshops or training
- Data Expeditions
- Workshops on ways to use archived websites for research
- Web scraping/web archiving workshops
- Data storytelling events, using tools like these, from DataRefuge
Are you celebrating Love Data Week or Endangered Data Week at your institution? What activities are you doing in support of these initiatives? Because we love data, we want to hear about your activities and lessons learned. If you’d like to share what your institution did during those weeks, please e-mail Tony Nguyen.
With February being African American History Month, we wanted to focus our blog posts on health issues unique or more likely to impact African Americans. One of these diseases is sickle cell anemia and this trait can be found in about 1 in 13 African American births.
MedlinePlus defines sickle cell anemia as “a disease in which your body produces abnormally shaped red blood cells. The cells are shaped like a crescent or sickle. They don’t last as long as normal, round red blood cells. This leads to anemia. The sickle cells also get stuck in blood vessels, blocking blood flow. This can cause pain and organ damage.”
Sickle cell disease (SCD) is present at birth and the National Heart, Lung, and Blood Institute states “every state in the United States, the District of Columbia, and the U.S. territories requires that all newborn babies receive screening for SCD. When a child has SCD, parents are notified before the child has symptoms.” If symptoms do occur, it is usually not until 5 or 6 months of age.
The CDC estimates:
- SCD affects approximately 100,000 Americans.
- SCD occurs among about 1 out of every 365 Black or African-American births.
- SCD occurs among about 1 out of every 16,300 Hispanic-American births.
- About 1 in 13 Black or African-American babies is born with sickle cell trait (SCT).
The National Network of Libraries of Medicine (NNLM) is offering stipends of up to $500 to support travel and lodging to attend the Health Information for Public Librarians Symposium taking place at this year’s Medical Library Association Annual Meeting in Atlanta, GA. The Symposium will take place on May 22nd and 23rd.
Stipends are offered on a first-come, first-serve basis with an emphasis on equal distribution across the nation. You must be working in a US-based public library and have an interest or role in providing health information to the public in order to qualify. For accepted applications, registration to the symposium will also be fully funded in addition to the $500.
Attendees will learn about the All of Us Research Program, what others are doing to engage the public in health information, available resources for providing health information to patrons, and more. There will also be opportunities to network with other public and health librarians from across the country.
Apply for a stipend online using our online application form. For first consideration, please apply by March 1, 2018. If you have any questions about the symposium or concerns about sufficient funding, please contact Veronica Leigh Milliner (Community Engagement Coordinator – NNLM MAR) at VLM38@pitt.edu.
The archived recording of the January 31 session for the NNLM collaborative webinar series, NNLM Resource Picks, is available. The topic was Genetics Home Reference, presented by Stephanie Morrison, MPH, Team Coordinator for Genetic Home Reference at the National Library of Medicine. View the webinar by clicking on the YouTube video player below.
Note: To switch to full screen, click on the full screen icon in the bottom corner of the video player. To exit the full screen, press Esc on your keyboard or click on the Full screen icon again. If you have problems viewing full screen videos, make sure you have the most up-to-date version of Adobe Flash Player.
NNLM PSR Mini-Award Highlights for “Harry Potter’s World: Renaissance Science, Magic & Medicine” Traveling Exhibition
by Alison Clement, MLIS, AHIP
Community Health Librarian
Marshall Community Health Library
Cameron Park, CA
I never thought I would see the day when my library staff and I would be greeting patrons wearing witch’s hats, but this year it actually happened! The Marshall Community Health Library in Cameron Park, CA, was magically transformed during the month of July when we hosted the NLM traveling exhibition, Harry Potter’s World: Renaissance Science, Magic & Medicine. Our library was an appreciative recipient of a NNLM PSR 2017 Mini-Award to fund activities related to and supporting the NLM History of Medicine exhibition.
The Marshall Community Health Library, part of Marshall Medical Center, is a consumer health library that has been serving the public and the healthcare community since 1997. Hosting the exhibition was the perfect way to celebrate the 20th anniversary of our library’s opening, as well as 20 years of Harry Potter. The exhibition was simple and quick to put together with the aid of the instructions, both printed with illustrations, and online, including video.
We wanted to use the exhibition and celebration as an opportunity to reach out to those in our community who were not yet aware of our health information resources. We made use of the NLM exhibition’s templates for flyers and trading cards. The medical center’s Marketing Department assisted with publicity, including local papers and social media. The hospital’s catering section crafted a Harry Potter-decorated 20th anniversary cake for our celebration’s visitors on the opening day of the exhibition. We had 20th anniversary bookmarks available with our library’s contact information for visitors to take for future reference. Throughout the library, book and DVD resources were on display on tables to add an interactive element to the exhibition–for example, reproductions of old herbal manuscripts, and books on the history of medicine.Attendees at the Harry Potter’s World NLM Traveling Exhibit
Our library shares a catalog with the El Dorado County public libraries, and we fully utilized this partnership to publicize and decorate the event. One of the local public libraries lent us some wonderful costumes and décor to liven up our special activity days. Thanks to this great loan, we had Hogwarts banners suspended from the ceiling, owls (fake ones!) perched on the bookshelves, a life-size figure of Professor Snape, an Azkaban “Wanted” photo booth, Gryffindor capes for our speakers to wear, and an assortment of witch hats for our library staff. Our hearts go out to El Dorado Hills Library for the use of these decorations!
The first two days of the exhibition were very exciting, with demonstrations and speakers. We hosted the local wildlife rescue organization, which brought three of their live owl “ambassadors” and gave a talk about owls. An emeritus professor of philosophy presented a talk on sacred geometry and alchemical wisdom. Outside our library’s front door, we had a “Potions Class” taught by an expert in the history of pharmacy, who demonstrated some “olde” remedies, including small explosions and dry ice effects that the children loved. A naturopathic practitioner/herbalist spoke to the visitors about herbology and medieval herbal medicine, and a display of 30 medicinal herbs–all labeled–fresh from the librarian’s herb garden helped to illustrate and educate.
Library volunteers were on hand to help visitors with some interactive activities. Children could have a Hogwarts acceptance letter made with their name on it. Young and old alike enjoyed reaching into a real Hogwarts Sorting Hat to see “Which House Chooses You!” with a few giveaways for the lucky few who pulled out a special magical ticket. In addition to the exhibition-related activities, we featured a special MedlinePlus & PubMed display, with brochures and staff on hand to demonstrate the use of these databases. 75% of the visitors to the exhibition and events were first-time library visitors, so our goal of reaching newcomers was satisfyingly met, with both young and older visitors, and some medical center staff. We hope that the exhibition and 20th anniversary celebration opened the door for many to a magical world of information!
Our Consumer Health Coordinator, Debbie Montenegro, went on a trip that was out of this world. In Part 1, she highlights her visit to our partners at the Moody Medical Library at UTMB Galveston, specifically to see the Charles A. Berry, M.D. History of Space Medicine Collections. Here is a recap of the visit:
First of all, I want to thank the staff at Moody Medical Library for the invitation. Robert Marlin, Archivist and Kelly Caldwell, Library Manager were very welcoming. The History of Space Medicine Collections holds a variety of primary source materials that date to the early 1950s, donated by astronauts, medical doctors, and others associated with the space program.
Among these is Dr. Thornton; a physicist, doctor, and astronaut who worked on SMEAT (Skylab Medical Experiments Altitude Test) and on Skylab. He is an inventor and holds more than 60 patents, and invented medical apparatuses such as a treadmill for space. He was the first to document the shift and loss of fluid changes in the body, height changes, and muscle loss in space flight. It is still being researched today. Dr. Hubertus Strughold coined the term “Space Medicine” and is also known as the “Father of Space Medicine”. Dr. Charles Berry held an instrumental role in the selection of the original seven astronauts. As the NASA Flight Surgeon, he was responsible for sending 42 individuals into space over the course of 30 missions. Dr. Gaume created concept art and wrote on “Life Support Systems for Lunar Base and Lunar Colonization” in 1959.
Other highlights of the collection would be: the original special edition of LIFE magazine that covered the astronauts who went to the moon, a collection of recordings from the Joint US/USSR Working Group on Space Biology and Medicine, and concept art from 1958 and 1959 that showed architectural plans for a house on the moon.
Any researchers, librarians, educators or others interested who want to visit the archives can contact the Moody Medical Library to schedule a visit. Portions of the archives are currently being scanned and uploaded to UTMB Health SHARED, an online community space for Scholarship, Historical Archives, Repository, & Electronic Dissertations. Look for the History of Medicine Collections at https://utmb-ir.tdl.org/utmb-ir/
NNLM MAR is pleased to share successes of health outreach projects and activities in our region. Learn what your amazing colleagues are doing to increase access to quality health information for the communities they serve.Library Resource Outreach Center / Health Central
Homelessness is a public health issue according to the CDC. Central is the daytime shelter for Rochester’s homeless. In response, Central created the Library Resource Outreach Center (LROC) and Health Central (HC); no eligibility standards, no appointments necessary. LROC is a collaboration between the library and human service agencies to assist the homeless, those in danger of becoming homeless, those in need of access to resources including housing, food, clothing, shelter, income, case management, legal assistance, or employment. HC provides screenings, referrals to free clinics, flu vaccines, and dental care. Both strive to eliminate or lessen barriers to other services.
To complete this project, the Central Library of Rochester & Monroe County partnered with Rochester Regional Health Care, the University of Rochester School of Medicine, Person Centered Housing Options, MC Collaborative, the Volunteer Legal Services Project, as well as volunteers and student interns from a variety of local colleges and universities who are studying social work or public health.
Want to learn more about this project? Visit the Central Library of Rochester & Monroe County website, read the featured article, “Homeless find warmth, dental care at Central Library” from the Democrat & Chronicle, Part of the USA Today Network, or Contact Jennifer Byrnes, Division Head of Science & History at the Central Library via email: email@example.com or telephone: (585) 428-8102.
This month’s spotlight brings us to the far eastern reach of the GMR, the state of Ohio. Say hello to Judy Wiener, who has been a GMR outreach librarian since…well, let’s find out more about her in her own words. Thanks, Judy, for all you do in support of the NNLM mission.
Name: Judith A. Wiener, MA, MLIS
Title: Associate Director and Assistant Director, Collections and Outreach, The Ohio State University Health Sciences Library
Our five questions:
- How long have you been in the role of an outreach librarian? I have served as an outreach librarian to the GMR at the OSU Health Sciences Library since 2009.
- How did you get involved in outreach? My background is in special collections and public history so the focus of my entire professional career has always had a public outreach component. In 2009, I was asked to extend my outreach responsibilities beyond the special collections department of our library when I accepted the position as Assistant Director for Special Collections and Outreach.
- What is your favorite outreach project that you’ve done so far? I feel most proud of the work we have done to develop a consumer health course for public librarians in Ohio. This year, the program will have an even larger reach when we record a webinar that can be viewed upon demand in the future. I find connecting public librarians to the resources they need to meet the needs of their customers extremely rewarding.
- What outreach activity do you hope to do in the future? We are currently working with our colleagues across the OSU Library System to develop outreach programming to help support the information needs of those deeply impacted by the opioid crisis. We are at the beginning phase of developing a needs assessment plan but hope we can pull together resources and programs that will help those on the frontline of this issue in our state.
- What is the one thing you wished you had known before you got started in outreach? I wish I knew how much support was available as an outreach librarian. At first, I was not aware of all of the resources and help available from colleagues and from the GMR office and it was overwhelming! I felt like I was drinking out of a firehose. In time I have learned that everyone is willing to help and to collaborate in order to make outreach programming a success.