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Archive for March, 2014

Resources for Rare Disease Day

On February 28, 2014, the National Institutes of Health observed the seventh annual Rare Disease Day, with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research (ORDR); the NIH Clinical Center; other NIH Institutes and Centers; the Food and Drug Administration’s Office of Orphan Product Development; other Federal Government agencies; the National Organization for Rare Disorders (NORD); and the Genetic Alliance. Rare Disease Day was established to raise awareness with the public about rare diseases, the challenges encountered by those affected, the importance of research to develop diagnostics and treatments, and the impact of these diseases on patients’ lives. (more…)

Training Opportunities: Everything You Always Wanted to Know!

Are you curious about training opportunities? We receive various questions from Network members about where to find training opportunities. Some people are looking for continuing education credits; others are looking to become more knowledgeable about various subjects. Here are a few suggestions: (more…)