Archive for the ‘Non-NLM Resources’ Category
The Centers for Disease Control and Prevention (CDC) has announced the release of a new CDC Blast Injury mobile application, which may be downloaded for free from the iTunes store. The program is designed to assist in the response and clinical management of injuries resulting from terrorist bombings and other mass casualty explosive events. The application provides clear, concise, up-to-date medical and healthcare systems information to assist healthcare providers and public health professionals in the preparation, response, and management of injuries resulting from terrorist bombing events. CDC is hosting a Google+ Hangout on Monday, June 30, at 8:30 AM PDT to discuss this new tool.
Check out the June issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research. In this issue:
- Managing Asthma: Learn To Breathe Easier
Most people have little trouble climbing a flight of stairs or taking a brisk walk, but these simple activities can be tough for someone with asthma. Although there’s no cure, you can breathe easier by knowing how to keep the condition under control.
- Patient’s Own Cells Helped Fight Cancer
An experimental therapy developed at NIH used a patient’s own immune system to attack and shrink her tumors. With further research, this type of immunotherapy might be used to treat many common cancers.
- Videos and Eye Health Resources for Kids
Ever wonder how optical illusions work? Are you curious about colorblindness? Do you have an inquisitive mind? Curiosity is a key ingredient to becoming a scientist.
- Featured Website: Know Stroke
Trouble walking, weakness on one side, trouble seeing, trouble speaking. Get to know these warning signs of stroke so you can get fast medical attention, which is key to successful recovery. This site has educational videos, brochures, and other materials to help you learn more about stroke.
NIH News in Health is available online in both HTML and PDF formats. Print copies are available free of charge for offices, clinics, community centers, and libraries within the U.S. Visit the NIH News in Health Facebook page to suggest topics you’d like to see covered, or share what you find helpful about the newsletter!
The Interagency Pain Research Portfolio (IPRP), a database that provides information about pain research and training activities supported by the federal government, has been launched by six federal agencies. Pain is a symptom of many disorders; chronic pain can present as a disease in of itself. The economic cost of pain is estimated to be hundreds of billions of dollars annually in lost wages and productivity.
Users of the database easily can search over 1,200 research projects in a multi-tiered system. In Tier 1, grants are organized as basic, translational (research that can be applied to diseases), or clinical research projects. In Tier 2, grants are sorted among 29 scientific topic areas related to pain, such as biobehavioral and psychosocial mechanisms, chronic overlapping conditions, and neurobiological mechanisms. The Tier 2 categories are also organized into nine research themes: pain mechanisms, basic to clinical, disparities, training and education, tools and instruments, risk factors and causes, surveillance and human trials, overlapping conditions, and use of services, treatments, and interventions.
The database was developed by NIH staff and members of the Interagency Pain Research Coordinating Committee (IPRCC). The IPRCC is a federal advisory committee formed to increase understanding of pain and improve treatment strategies by expanding pain research efforts and encouraging collaboration across the government. Four of the agencies that played a role in developing the IPRP are part of the U.S. Department of Health and Human Services: the National Institutes of Health, the Agency for Healthcare Research and Quality, the Centers for Disease Control and Prevention, and the Food and Drug Administration. The other two agencies are the Department of Veterans Affairs and the Department of Defense.
For public sector and nonprofit organizations, social media can be a cost effective way to engage with users and supporters. However, social media is not without its cost, particularly in terms of staff time. So organizations have an interest in assessing the value of their social media activities.
One great resource for social media evaluation is Paine’s book, Measure What Matters. The book contains detailed guidance for evaluating social media use by different types of organizations. A great supplement to Paine’s book is The Nonprofit Social Media Decision Guide, by Idealware, which has worksheets that will help plan social media strategies and implement recommendations in Measure What Matters.
Below are the key elements of Paine’s evaluation framework:
- Begin with a solid social media plan that identifies specific goals and objectives. As with any project, you need a plan for social media that links strategies to the organizational mission and includes objectives with targets and key performance indicators. Objectives for social media in the public sector often belong in one of two categories: helping users find information they need; or building user awareness, engagement, or loyalty. (The Nonprofit Social Media Decision Guide provides a list of potential objectives on page 52.)
- Define your target audience: Organizations often have many stakeholder groups, so it’s important to identify the groups most attuned to social media. On page 54 of The Nonprofit Social Media Decision Guide, there is a worksheet for narrowing down stakeholder audiences to those most receptive to social media activities.
- Pick your metrics: Metrics such as views, followers, and measures of engagement with online content will help monitor your reach. Conversions, defined as the actions you want your social media followers to complete, might include becoming members of your organization or actively recommending your organization to colleagues or friends.
- Identify a source for benchmarks. Benchmarks provide a basis for comparison to assess progress. Organizations often use their own histories as benchmarks, comparing progress against baseline measures. You also may have access to data from a competing or peer organization that you can use for comparison.
- Pick a measurement tool: Paine’s book describes different measurement methods for evaluating social media, such as content analysis, web analytics, or surveys.
For more information, check out the resources mentioned in this blog post:
- Katie Delahaye Paine, Measure What Matters: Online Tools For Understanding Customers, Social Media, Engagement, and Key Relationships. Hoboken, NJ: John Wiley & Sons, Inc, 2011.
- Idealware. The Nonprofit Social Media Decision Guide, 2013.
The National Library of Medicine (NLM) has a deep interest in the publishing models used by scientific journals, from the viewpoints of practical and efficient use of titles that are indexed for MEDLINE, and the clear and accurate preservation of the scientific literature for use by future generations. Now you have the opportunity to participate in the development of a National Information Standards Organization (NISO) Recommended Practice that provides guidance on the presentation and identification of electronic journals!
PIE-J: The Presentation & Identification of E-Journals, a NISO (National Information Standards Organization) Recommended Practice, was published just over a year ago, having been approved on March 25, 2013. In just over 12 months, the full Recommended Practice document has received well over 4500 downloads, while two PIE-J brochures have received a total of more than 2000 downloads. All three documents can be accessed from the PIE-J website. This level of download activity suggests that PIE-J is meeting a need, and it is essential that librarians, publishers, and other e-journal providers be aware of its existence. The PIE-J Standing Committee, co-chaired by Sally Glasser (Hofstra University) and Ed Cilurso (Taylor & Francis), is charged with responding to specific questions about the Recommended Practice, gathering comments for a full review of the Recommended Practice document, and promoting PIE-J.
If you have written to publishers or providers about PIE-J, the Standing Committee would like to hear from you, whether the result was positive or negative. Likewise, the Committee would greatly appreciate hearing from publishers and providers who have made changes to their websites based on PIE-J and user feedback, intend to make changes based on PIE-J during a future website redesign, or feel that the recommended practices are not feasible. Please write the Committee with the subject “PIE-J feedback.” Standing Committee members have been busy making the rounds at various conferences and meetings. Next up are NASIG (May 1-4, Fort Worth, TX), the Society of Scholarly Publishers (SSP) conference (May 28-30, Boston), and ALA Annual (June 28-July 1, Las Vegas). If you plan to attend any of these conferences, please look out for NISO’s PIE-J presentations! Also, on Monday, May 12, 2014, at 12 PM PDT co-chairs Sally Glasser and Ed Cilurso will be speaking about PIE-J at NISO’s monthly Open Teleconference.
The Standing Committee recently posted a template to the PIE-J website for librarians wishing to contact publishers and providers with concerns about the presentation of e-journals on their websites. The template includes suggested wording but is completely customizable. If you (or your users) have experienced an access or display issue that is due to the way in which e-journals are presented online, use the template to let publishers and providers know how PIE-J can help. Regina Reynolds, who was on the original PIE-J Working Group and has continued on the Standing Committee, recently published the freely accessible article, “PIE-J: Presentation and Identification of E-Journals: What’s the Point?” in Insights: the UKSG Journal, vol. 26, no. 3 (Nov. 2013). The article provides an excellent overview of PIE-J.
Representatives of the US National Library of Medicine (NLM) and the Wellcome Trust recently signed a memorandum of understanding to work together to make thousands of complete back issues of historically-significant biomedical journals freely available online. The terms of the MOU include a donation of £750,000 ($1.2 million) to the NLM that will support coordination of the three-year project to scan original materials from NLM’s collection at the article level, and Wellcome’s work to secure copyright clearances and permissions for electronic deposit from publishers. NLM will undertake conservation of the original material to ensure its preservation for future generations. Key journals charting the development of modern medicine over the last 150 years will be digitized in their entirety and made available on the National Institutes of Health life sciences repository PubMed Central (PMC) and its European counterpart, Europe PMC. The project builds on the Medical Journal Backfiles Digitization Project (2004-2010) and will contribute substantially to the current PMC archive of over 3 million articles from medical journals.
Part of the project will concentrate on mental health journals, supporting a major archive digitization program also being undertaken by the Wellcome Trust. Journals to be digitized include Mental Health, Mental Hygiene, and the Journal of Psychological Medicine and Mental Pathology. Other journals have been selected for their general relevance, such as the Indian Medical Gazette, the British and Foreign Medico-Chirurgical Review and the Transactions of the Epidemiology Society of London. In addition to images and searchable text, NLM will also create article-level citations for PubMed. Digitization is expected to start in late 2014 and to be completed by 2017. Material will be added to PMC and Europe PMC as it is digitized.
The Wellcome Library is one of the world’s leading libraries of medical history, housing 2.5 million items of extraordinary range and diversity, and a growing collection of contemporary biomedical information resources relating to consumer health, popular science, biomedical ethics and the public understanding of science. The Wellcome Library is part of the Wellcome Trust, a global charitable foundation dedicated to achieving extraordinary improvements in human and animal health. It supports the brightest minds in biomedical research and the medical humanities. The Trust’s breadth of support includes public engagement, education and the application of research to improve health. It is independent of both political and commercial interests.
SurveyMonkey recently launched a mobile app for the iPad and iPhone, providing the ability to create, send, and monitor surveys from a phone or tablet device. The app is free, although you need a SurveyMonkey account to use it. With the new app, there’s no longer a need to rely on a computer to design and manage surveys. The app also allows convenient viewing of data from any location with Internet access. Another notable benefit is that the analytic reports are optimized for mobile devices and are easy to read on small screens. Although there is not yet an Android app, all SurveyMonkey pages and surveys are optimized for any mobile device, so surveys are easy to take regardless of the operating system used.
The National Library of Medicine (NLM) Value Set Authority Center (VSAC), in collaboration with the Office of the National Coordinator for Health Information Technology (ONC) and Centers for Medicare & Medicaid Services (CMS), has published the annual update for the 2014 Eligible Hospital Clinical Quality Measure (CQM) Value Sets. The update includes revised value sets to address deleted and remapped codes in the latest terminology versions, as well as new codes for addressing CQM logic corrections and clarifications. The Centers for Medicare & Medicaid Services (CMS) updates these electronic reporting specifications annually to ensure that the specifications align with current clinical guidelines and terminologies, and that they remain relevant and actionable within the clinical care setting.
The VSAC offers a Downloadable Resource Table, accessible from the Download tab on the VSAC Web page, that provides prepackaged downloads for the most recently updated and released 2014 CQM Value Sets, as well as for previously released versions. Access to the Value Set Authority Center requires a free Unified Medical Language System® Metathesaurus License. NLM also provides the Data Element Catalog that identifies data element names (value set names) required for capture in electronic health record technology certified under the 2014 Edition of the ONC Standards and Certification Criteria. The NLM update of the VSAC coincides with the CMS posting of the official updated 2014 Eligible Hospital Clinical Quality Measures (eCQMs).
The following additional resources are available to help health care providers and vendors navigate the 2014 CQMs:
The American Medical Association has specific recommendations for its authors about questionnaire response rates included in the JAMA Instructions for Authors. One of the guidelines is that survey studies should have sufficient response rates (generally at least 60%) and appropriate characterization of nonresponders to ensure that nonresponse bias does not threaten the validity of the findings. However, response rates to questionnaires have been declining over the past 20 years, as reported by the Pew Research Center in The Problem of Declining Response Rates. Fortunately, suggestions about increasing questionnaire response rates are available in two recent AEA365 blog posts that are open access:
Additional useful advice, such as making questionnaires short, personalizing your mailings, and sending full reminder packs to nonrespondents, is included in this open access article: Sahlqvist S, et al., “Effect of questionnaire length, personalisation and reminder type on response rate to a complex postal survey: randomised controlled trial.” BMC Medical Research Methodology 2011, 11:62.
The current trend in evaluation reporting is toward fewer words and more images. There are a number of companies that offer high-quality, royalty free photographs at minimal cost. Stockfresh, for example, charges as little as $1 per image. However, no-cost is even better than low-cost. Freelancers Union, a nonprofit organization dedicated to assisting freelance workers, recently published a list of the best websites for no-cost images. If you are looking for free images for your presentations or reports, check out their article, which also describes the difference between public domain, royalty-free and Creative Commons-licensed images.