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Archive for the ‘Non-NLM Resources’ Category

NIH Big Data to Knowledge Initiative Announces Funding Opportunity

The NIH Big Data to Knowledge (BD2K) initiative has released a Funding Opportunity Announcement (FOA) to support a U24 resource award for Development of an NIH BD2K Data Discovery Index Coordination Consortium. The purpose of this FOA is to create a consortium to begin development of an NIH Data Discovery Index (DDI) to allow discovery, access, and citation of biomedical data. Letters of intent to apply are due by February 6, 2014, and completed applications are due by March 6, 2014. Budgets are limited to $2,000,000 in direct costs per year but must reflect the actual needs of the proposed project. The maximum project period is three years.

As part of the NIH Big Data to Knowledge (BD2K) initiative, the DDI seeks to fulfill the recommendation from the Data and Informatics Working Group (DIWG) Report to the Advisory Council to the Director to “Promote Data Sharing Through Central and Federated Catalogues.” The awardee in response to this FOA will constitute a DDI Coordination Consortium (DDICC, U24) to conduct outreach, fund small pilot projects, manage communication with stakeholders, constitute and coordinate Task Forces to study relevant questions related to access, discoverability, citation for all biomedical data and assure community engagement in the development, testing, and validation of an NIH DDI. Part of this effort will be to assemble a user interface (website) through which the results of development and testing of models for an NIH DDI may be communicated.

New AHRQ Tool to Assess Patient Education Materials!

The Agency for Healthcare Research and Quality (AHRQ) has just released a new tool to help professionals choose more understandable and actionable materials; the Patient Education Materials Assessment Tool (PEMAT). Patient educational materials, such as brochures, medical instructions, and audiovisual aids, are often complex and lack clear information about what the patient should do. AHRQ’s PEMAT and User’s Guide provides a systematic method to evaluate and compare the understandability and actionability of patient education materials. By selecting health materials that score better on the PEMAT, you can be more confident that people of varying levels of health literacy will be able to process and explain key messages, and identify what they can do based on the information presented.

Additional tools for improving health literacy are available from AHRQ’s website, including:

December 2013 Issue of NIH News in Health is Now Available!

Illustration of human silhouettes, of different sizes and shapes, atop a background of the DNA double-helix.Check out the December issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research:

Personalized Medicine: Matching Treatments to Your Genes
You’re one of a kind. Wouldn’t it be nice if treatments and preventive care could be designed just for you, matched to your unique set of genes?

A Burning Issue: Handling Household Burns
Accidental burns can occur just about anywhere in your home, and they’re not always caused by fire. Take steps to prevent household burns, and learn how to treat them properly to avoid lasting problems.

Health Capsules:

NIH News in Health is available online in both HTML and PDF formats. Print copies are available free of charge for offices, clinics, community centers, and libraries within the U.S.

Visit the NIH News in Health Facebook page to suggest topics you’d like to see covered, or share what you find helpful about the newsletter!

New England Collaborative Data Management Curriculum Website Now Available!

The New England Collaborative Data Management Curriculum (NECDMC) offers openly available materials that librarians can use to teach research data management (RDM) best practices to students in the sciences, health sciences, and engineering fields, at the undergraduate and graduate levels. The materials in the curriculum are openly available, with lecture notes and slide presentations that librarians teaching RDM can customize for their particular audiences. The curriculum also has a database of real life research cases that can be integrated into the curriculum to address discipline specific data management topics. The project has been led by the Lamar Soutter Library at the University of Massachusetts Medical School with funding from the National Network of Libraries of Medicine, New England Region.

The Lamar Soutter Library developed the Frameworks for a Data Management Curriculum with Worcester Polytechnic Institute in 2011. Over the past year the Soutter Library has partnered with librarians from Tufts University, University of Massachusetts Amherst, Northeastern University, and the Marine Biological Laboratory and Woods Hole Oceanographic Institute, to fully develop the curriculum’s lecture content, readings, activities, and slide presentations.

Some libraries will be piloting the curriculum at their institutions and conducting evaluations with students of the learning modules. If you are teaching or plan to teach RDM, you are invited to pilot the NECDMC. For more information about being a pilot partner, please contact Donna Kafel.

October/November Issue of NIH News in Health is Now Available!

Illustration of a woman talking with her doctor.Check out the October/November issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research. In this edition:

Understanding Breast Cancer: Early Detection, Improved Treatments Save Lives
More women are beating breast cancer these days, in part because of improved treatments and screening. When abnormal tissue or cancer is found in its early stages, it may be easier to treat.

Protect Yourself Against HPV: Block This Cancer-Causing Virus
More than half of all sexually active people get a genital infection with the human papillomavirus (HPV) at some point. Fortunately, vaccines are available to protect against the most harmful forms of HPV.

Health Capsules:

NIH News in Health is available online in both HTML and PDF formats. Print copies are available free of charge for offices, clinics, community centers, and libraries within the U.S.

WebJunction Seeks Stories to Share for “Health Happens in Libraries” Project!

WebJunction has announced an updated Health Happens in Libraries area of their website. Please visit the project page and spread the word about the updated Resources section, where you will find:

  • Resources produced as part of WebJunction’s work to support libraries in their efforts to provide eHealth services to their communities
  • Official Affordable Care Act (ACA) resources for all states
  • Examples of resources created by libraries to respond to patron ACA and eHealth inquiries
  • FAQs

Health information support happens in libraries every day, and you are encouraged to submit stories or perspectives to share your library’s role in supporting community health and wellness by contacting content@webjunction.org. Here are a few questions to address:

  • What programs or resources does your library provide to support health and wellness in your community? How do patrons and/or community partners benefit from these services?
  • In what ways has your library been involved in supporting patrons with ACA application and enrollment activities? What are you learning from responding to this new information need?

Share your experiences with colleagues in the field!

HHS Launches Second Video Game on Disaster Planning!

The Office of the National Coordinator for Health Information Technology’s (ONC) Office of the Chief Privacy Officer (OCPO) has released its second web-based security training module, CyberSecure: Your Medical Practice. This latest game focuses on disaster planning, data backup and recovery, and other elements of contingency planning. Contingency planning helps providers and staff prepare for power outages, floods, fires, or weather related events such as hurricanes or tornadoes. These events can damage patient health information or make it unavailable. Planning for these events can help ensure that patient health information is protected and that patient information can be accessed when the disaster is over. This training module uses a game format that requires users to respond to privacy and security challenges often faced in a typical small medical practice. Users choosing the right response earn points and see their virtual medical practices flourish. But users making the wrong security decisions can hurt their virtual practices.

October is National Cyber Security Awareness Month, and is an opportunity for ONC to remind providers about the need to create contingency plans to assure a safe and secure cyber environment. Contingency Planning is also required by the HIPAA Security Rule.

Boots on the Ground: ACA Outreach and Enrollment Efforts in California!

NN/LM PSR Consumer Health & Technology Coordinator Kelli Ham attended an event hosted by the California Pan-Ethnic Health Network (CPEHN) on October 15, 2013, for stakeholders involved with the Affordable Care Act. The four-hour session was titled A New Era of Coverage: Maximizing Participation in the ACA and was held at the California Endowment in Los Angeles. Attendees included county agencies, certified enrollment counselors, outreach and education grantee organizations, health plans, and insurance companies.

The session was well worth attending! I was able to hear first-hand about ‘boots on the ground’ efforts to educate California residents about the new health insurance law and to help them sign up for accounts, learn about their options, and enroll in a health insurance plan. In addition, we all participated in a group activity in the afternoon which was a very productive exercise; groups responded to questions and brainstormed ideas for outreach to “hard-to-reach” communities, such as immigrants, limited-English proficient, homeless/re-entry populations, and low wage/part-time workers. Groups discussed the barriers and strategies for reaching the population and enrolling them in health coverage. Potential partner organizations and agencies were also identified.

The results of this activity were enlightening; while each group suggested standard approaches, many ideas were proposed that would work well for outreach from the NN/LM standpoint. For instance, our group chose ‘Young Immigrants’ as our target population. Some of the barriers identified for this group were the distrust of government agencies, immigration status and fear of deportation, lack of perceived need for health insurance (young invincibles), and language difficulties. Strategies for reaching this population included the use of social media, mobile apps, tables at street fairs, outreach at clubs, ads on public transportation (bus, Metro), adult schools, and ESL classes. Word of mouth is also powerful, so recruiting young people from this group is another strategy. Possible partnering organizations would be non-profits that deal with undocumented young people who came to the U.S. as children, other legal organizations, local clinics, and Planned Parenthood, to name a few.

Since the Covered California website had only been up and running for a few weeks, few statistics were available. According to one of the presenters, the website had over 987,000 unique visits during the first week. Combining telephone contacts and the web site, there were over 43,000 applications and over 16,000 household applications were completed. More statistics will be released in the near future.

Anyone who is interested in attending local workshops or presentations can see announcements on the Covered California Twitter feed, @coveredca, or view news and upcoming events at the Covered California News Center page. Libraries might be interested in hosting a program with outreach and education counselors; the best way to find local grantee organizations is to download the updated PDF file Outreach and Education Grant Program Award Recipients, dated August 20, 2013. Also, library patrons might be interested in applying by phone rather than the website. According to Covered California, it takes less than an hour to enroll in a Covered California health plan by phone. Service centers are open weekdays 8 a.m. – 8 p.m. and Saturdays 8 a.m. – 6 p.m, available at 800-300-1506.

Registration Now Open for “Teaching Research Data Management with the New England Collaborative Data Management Curriculum”

Registration is now available for the full-day workshop, Teaching Research Data Management with the New England Collaborative Data Management Curriculum, that will be held on Friday, November 8, at the Beechwood Hotel, 367 Plantation St., Worcester, MA. This is a “train the trainer” class, intended for librarians who will be teaching best practices in research data management to science, health science, and/or engineering students and faculty. During the workshop, Elaine Martin, Andrew Creamer, and Donna Kafel will be demonstrating the components of the New England Collaborative Data Management Curriculum and discussing ways that the curriculum materials can be used and customized.

Registrants for the workshop must attend a prerequisite webinar, Best Practices for Teaching Research Data Management and Consulting on Data Management Plans in New England, that will be held on Thursday, October 31, from 9-10 AM PDT. The webinar will be archived so that anyone unable to attend the live session may view it prior to the November 8 class. The number of attendees for the in-person workshop will be limited to 40. Registration for the workshop is on a first-come, first-serve basis. The fee for the workshop is $35 (no refunds will be issued). The webinar is free, but registration is required to attend the live session on 10/31.

New ACA Resources Available on WebJunction!

WebJunction recently updated its website to help library staff connect patrons to available resources and community experts that can provide assistance:

Local Help

  • The Centers for Medicare and Medicaid Services (CMS) has soft launched LocalHelp.healthcare.gov, where individuals or organizations can enter their geographic location to identify local ACA consumer assistance destinations in their area. Local consumer assisters, including Navigators, Certified Application counselors, etc., can provide personal help in applying for healthcare coverage through the ACA. This resource is also available in Spanish. CMS has also made English and Spanish widgets available for those that may be interested in hosting this resource as a widget on their website.
  • Please be advised that, according to CMS, many consumer assistance organizations are still completing the training and certification process. The database will be regularly updated to add new locations as they become available, so check back frequently. Please also note that states operating independent health insurance marketplaces may have more details about customer support networks at their state’s individual marketplace site. Unsure what type of marketplace is operating in your state? Visit the Get State Information page on HealthCare.gov to determine your state’s approach and access the most relevant source for local marketplace information.

Printed Publications and Forms

  • If your state is participating in the Federally-facilitated Marketplace, the Centers for Medicare and Medicaid Services (CMS) has an online ordering system for print materials. Libraries are welcome to request these print materials from CMS, however, it is important to note that quantities are limited and stock is constantly changing. You will need to create an account to be able to view and order materials. Once you have an account, search on the keyword “marketplace” to see the available publications.
  • In the near future, CMS expects to add an option to order and/or download print versions of the Federal Application form (not available until open enrollment begins on October 1). While print forms will be an option, applicants are strongly encouraged to apply online because they will see real-time eligibility and available health insurance options.