Archive for the ‘Non-NLM Resources’ Category
Check out the November issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research. In this issue:
- Preventing Type 2 Diabetes: Steps Toward a Healthier Life
People with diabetes have a problem with blood sugar. Their blood sugar, or blood glucose, can climb too high. Having high levels of sugar in your blood can cause a lot of trouble. Diabetes raises your risk for heart disease, blindness, amputations, and other serious issues. But the most common type of diabetes, called type 2 diabetes, can be prevented or delayed if you know what steps to take.
- Parkinson’s Disease: Understanding a Complicated Condition
We rely on our brains for every movement we make, whether writing, walking, talking, or even sleeping. But a serious brain disorder like Parkinson’s disease can rob a person of the ability to do everyday tasks that many of us take for granted. There’s no cure, but treatment can help. And researchers continue to seek new understanding to improve medical care.
- Progress Toward a Bird Flu Vaccine
An experimental bird flu vaccine triggered a powerful immune response in more than half of the volunteers who received it. The approach might lead to better vaccines against a variety of flu viruses.
- Participating in Alzheimer’s Research
Alzheimer’s disease is a brain disorder that slowly destroys memory and thinking skills. Eventually, affected people can’t perform even simple tasks. There’s no cure, but researchers are now testing new ways to diagnose, treat, or even prevent Alzheimer’s disease.
- Featured Website: Safe to Sleep
Sudden infant death syndrome (SIDS) is the leading cause of death among infants between 1 month and 1 year of age. Find out how you can reduce your baby’s risk of SIDS and other sleep-related causes of infant death.
NIH News in Health is available online in both HTML and PDF formats. Print copies are available free of charge for offices, clinics, community centers, and libraries within the U.S. Visit the NIH News in Health Facebook page to suggest topics you’d like to see covered, or share what you find helpful about the newsletter!
A recent AEA365 Evaluation Tip-a-Day featured a review and several hot tips for Padlet, a freely available web-based bulletin board system. The hot tips include the use of Padlet as an anonymous brainstorming activity in response to a question or idea, and as a backchannel for students or conference attendees to share resources and raise questions for future discussion. Padlet’s bulletin board configuration settings are intuitive and easy to use with various backgrounds and freeform, tabular, or grid note arrangement display on the bulletin board. Free Padlet accounts can be created by either signing up directly or by linking to an existing Google or Facebook account. Padlet includes many privacy options that are clearly explained, including “Private” mode, requiring the use of a password for you and those you invite to participate to access the Padlet, and “Public” mode to view, write or moderate. A new update feature includes a variety of ways to share Padlet data, ranging from choosing the icon for six different social media channels to downloading data as a PDF or Excel/CSV file for analysis. For a trial run of this resource, visit the NN/LM Outreach Evaluation Resource Center’s Padlet about the OERC Evaluation Series booklets and leave your input! Posts will be moderated on the Padlet before they display publicly.
The Centers for Disease Control and Prevention (CDC) has a freely available ‘how to’ resource Introduction to Program Evaluation for Public Health Programs: A Self Study Guide. Examples of public and community health programs that can be considered for program evaluation include direct service interventions, community-based mobilization efforts, research initiatives into issues such as health disparities, advocacy work, and training programs. The guide is available online or as a PDF document that consists of a six-step process (from Engaging Stakeholders to Ensure Use of Evaluation Findings), a helpful Glossary of program evaluation terminology, and Resources for additional publications, toolkits, and more to support public and community health program evaluation work. A related CDC guide A Framework for Program Evaluation is one of several resources featured in the Evaluation Planning section of the NN/LM OERC Tools and Resources for Evaluation web page.
From Coverage to Care (C2C) is an initiative from the Centers for Medicare & Medicaid Services (CMS) designed to help people with new health coverage understand their benefits and connect to primary care and the preventive services that are right for them. C2C resources, available in both English and Spanish, are now available to download and print.
Available resources include:
- A Roadmap to Better Care and a Healthier You (Una Guía para Un Mejor Cuidado y Una Vida Más Saludable) that includes 8 steps to explain what health coverage is, and how to use it to get needed care.
- Consumer tools including a sample insurance card and a sample explanation of benefits.
- An 11-part video series that helps explain the information covered in the Roadmap.
To learn when new resources become available, sign up for notifications through the Minority Health listserv. From Coverage to Care materials are also available through the order page.
October is both Canadian Library Month and National Medical Librarians Month, making it an ideal time to celebrate and promote the value of our work! It is an excellent time to launch the HSICT’s (Health Science Information Consortium of Toronto) Library Value Toolkit. This resource is the creation of the HSICT Task Force on Evaluating Library Services. Task Force members, from a cross section of HSICT member libraries, distilled and organized the information in the toolkit which includes tools, examples, recommendations, as well as samples and strategies from various work settings.
An innovative and compelling approach to creating qualitative data visualizations with illustrations is provided by Fresh Spectrum. The process begins by taking a long narrative such as a focus group transcription, and chunking it into a few paragraphs per concept with a unique illustration for each one. One option is to use your organization’s existing images or Creative Commons-licensed images for illustrating concepts. The next step for the visualization uses the images with brief captions as an online data dashboard, where visitors can click on the captioned image of interest to them to access the more detailed narrative. One example describes how to do this within a WordPress portfolio blog template, or a simpler strategy of creating HTML anchor links to each individual section within a longer text, which then leads to the longer narrative.
The NN/LM Outreach Evaluation Resource Center (OERC) has more resources available from the Reporting and Visualizing tab of the OERC Tools and Resources for Evaluation Guide.
The American Evaluation Association (AEA) sponsors a Potent Presentations Initiative (p2i) that has a stated purpose of helping evaluators improve their presentation skills, both within a conference setting and as part of individual practice. P2i challenges evaluators to hone in on three concepts: Their message, their design, and their delivery.
There are a wealth of handouts available as PDF files, Word documents, and Powerpoint presentations available from the p2i tools website that sometimes include AEA conference specifications in addition to many great messaging, designing and delivery principles. For an example of each principle be sure to check out the Presentation Preparation Checklist, How to Design a Research Poster, and the Delivery Glue Handout.
The NN/LM Outreach Evaluation Resource Center (OERC) has developed the new webinar Evaluation 2.0: Trends, New Ideas, Cool Tools,” which debuted on August 21 as one of the NN/LM Greater Midwest Region’s monthly Lake Effect webinars. The new webinar presents emerging trends in evaluation practice that emphasize stakeholder interaction and social engagement. It also covers popular tools and methods that allow you to draw others into the evaluation process and raise the visibility of your program or services. A recording of the one-hour session is available for viewing.
The National Institutes of Health (NIH) has issued a Request for Information (RFI) seeking comments and ideas to inform the creation of an NIH Standards Information Resource (NSIR) that would collect, organize, and make available to the public trusted, systematically organized, and curated information about data-related standards. This resource would focus on those standards that are widely used in biomedical research and related activities. The main purpose of the NSIR would be to help a variety of biomedical users such as researchers, clinicians, data curators, and informaticians, among others, identify and choose data-related standards that are best suited to their needs.
NIH seeks responses to the RFI from biomedical researchers, librarians and information scientists, bioinformaticians, publishers, and other interested individuals. All responses must be submitted electronically to BD2K_NSIR_RFI@mail.nih.gov by September 30, 2014. Please include the Notice number NOT-CA-14-053 in the subject line. Responses to this RFI Notice are voluntary. The submitted information will be reviewed by the NIH staff. Submitted information will be considered confidential.
Genomic research advances our understanding of factors that influence health and disease, and sharing genomic data provides opportunities to accelerate that research through the power of combining large and information-rich datasets. To promote sharing of human and non-human genomic data and to provide appropriate protections for research involving human data, the National Institutes of Health (NIH) issued the Genomic Data Sharing (GDS) Policy on August 27, 2014. The GDS Policy takes effect for grant applications with due dates on or after January 25, 2015, for contracts submitted on or after January 25, 2015, and for intramural research projects generating genomic data on or after January 25, 2015. NIH has also issued a press release regarding the GDS Policy. A publication describing the use and impact of the NIH database for Genotypes and Phenotypes (dbGaP) data under the Policy for Sharing of Data Obtained in NIH Supported or Conducted Genome-Wide Association Studies, from 2007 through 2013, has been published in Nature Genetics.