Archive for the ‘Events’ Category
Disaster Research Response Workshop: Enabling Public Health Research During Disasters will be held June 12-13, 2014, at the National Institutes of Health (NIH) campus in Bethesda, MD. There is no registration cost. This workshop will examine strategies and partnerships for methodologically and ethically sound public health and medical research during future emergencies. Discussions will include issues with obtaining informed consent, obtaining approval from Institutional Review Boards, coordinating research efforts with emergency response, and ensuring timely collection of data. The workshop is a collaboration of the NIH Disaster Research Response Project, the IOM Forum on Medical and Public Health Preparedness for Catastrophic Events, the HHS Office of the Assistant Secretary for Preparedness and Response, and the Centers for Disease Control and Prevention.
The NIH Disaster Research Response Project is a pilot project led by the National Institute of Environmental Health Sciences (NIEHS) and supported by the National Library of Medicine (NLM), aimed at developing ready-to-go research data collection tools and a network of trained research responders. The project’s goal is to make it as easy as possible for researchers to begin collecting health and other data following a major disaster. The focus is on data collection tools and protocols, the creation of networks of health experts also trained as research responders, and integration of the effort into federal response plans for future disasters. Although initially focused on environmental health issues, the hope is this project will be a model for timely collection of data supporting a range of medical and public health research.
As part of this project, NIEHS recently held a tabletop exercise in Long Beach, CA, to test how a “research response” might work and what would be expected of researchers choosing to be trained research responders, i.e. first on the scene to begin collecting data once it is safe and reasonable to do so. The article “Tsunami exercise helps prepare research community for disaster response” describes the exercise and there is also a video. The “Disaster Lit” section of the Resource Guide for Disaster Medicine and Public Health (from NLM) now includes records for research tools, such as online surveys and interview scripts, to aid researchers in quickly selecting appropriate measures.
The National Library of Medicine has announced that Georgia Regents University (GRU) will serve as the host organization for the NLM-sponsored biomedical informatics course. The NLM Biomedical Informatics Course, now entering its 22nd year, offers participants a week-long immersive experience in biomedical informatics taught by experts in the field. The course was previously held at the Marine Biological Laboratory (MBL) in Woods Hole, MA, with Cathy Norton, MLS, as the MBL principal investigator. NLM plans to take the skills shaped over the past two decades at MBL to its new colleagues at GRU. The first course organized at Georgia Regents University will be held September 14-20, 2014, followed by an additional session April 12-18, 2015. The course will be held at a conference center at the Brasstown Resort in Young Harris, GA, at no cost to participants.
Application to the course is open to anyone, but space is limited. Preference will be given to American applicants who demonstrate, through a brief application letter, that they have the significant need for an understanding of the informatics solutions that are available to address their biomedical research, practice and education challenges and that, through their official position, they are significant “change agents” who can influence the adoption of best practices in their own environment and expand the influence of the course to others through teaching or by example. The application deadline is July 7.
The course, co-directed by James J. Cimino, MD, Chief, Laboratory for Informatics Development at the National Library of Medicine and the NIH Clinical Center, and NLM Director Donald Lindberg, MD, will guide participants through topics including biomedical informatics methods, clinical informatics, big data and imaging, genomics, consumer health informatics, mathematical modeling, and telemedicine and telehealth. The co-principal investigators from GRU are Brenda L. Seago, MLS, MA, PhD, Professor and Director of Libraries, and Kathy J. Davies, MLS, Chair, Research and Education Services, Robert B. Greenblatt, MD Library.
Terrence Sejnowski, PhD, will give the 2014 Joseph Leiter NLM/Medical Library Association (MLA) Lecture, “The BRAIN Initiative: Connecting the Dots,” on Thursday, June 12, 2014, at 10:00 am PDT at the National Library of Medicine. The lecture will be recorded and broadcast live on the Web. Dr. Sejnowski is a pioneer in computational neuroscience and his goal is to understand the principles that link brain to behavior. His laboratory uses both experimental and modeling techniques to study the biophysical properties of synapses and neurons and the population dynamics of large networks of neurons. New computational models and new analytical tools have been developed to understand how the brain represents the world and how new representations are formed through learning algorithms for changing the synaptic strengths of connections between neurons. By studying how the resulting computer simulations can perform operations that resemble the activities of the hippocampus, Dr. Sejnowski hopes to gain new knowledge of how the human brain is capable of learning and storing memories. This knowledge ultimately may provide medical specialists with critical clues to combating Alzheimer’s disease and other disorders that rob people of the critical ability to remember faces, names, places and events.
Dr. Sejnowski is an Investigator with the Howard Hughes Medical Institute and holds the Francis Crick Chair at The Salk Institute for Biological Studies. He is also a Professor of Biology at the University of California, San Diego, where he is co-director of the Institute for Neural Computation and co-director of the Temporal Dynamics of Learning Center. He has published over 400 scientific papers and 12 books, including The Computational Brain, with Patricia Churchland. He is a member of the Institute of Medicine, National Academy of Sciences, and the National Academy of Engineering, one of only 13 living persons to be a member of all 3 national academies. Dr. Sejnowski was instrumental in shaping the BRAIN Initiative that was announced from the White House on April 2, 2013, and serves on the Advisory Committee to the Director of NIH for the BRAIN Initiative.
On May 14, 2014, the Board of Regents of the National Library of Medicine (NLM), the Friends of the NLM, and the Medical Library Association are co-sponsoring a symposium The National Library of Medicine, 1984-2014: Voyaging to the Future, to be held at the Natcher Center on the NIH campus in Bethesda, MD. The purpose of the symposium is to review the influence of NLM’s long range planning over the past 30 years; to reflect on key factors that contributed to successes and setbacks; and to consider opportunities for the future, all as background for the next NLM long range planning effort, to commence in 2015. The symposium is free, but registration is required. A preliminary program is also available. The symposium will be available for remote simultaneous viewing and also archived for future viewing.
In conjunction with this event, NLM is collecting written recollections and images reflecting the Library’s impacts over the last 30 years, as well as ideas for future opportunities and directions. Anyone who has advised and worked with/for NLM and/or benefited from its programs and services is encouraged to submit contributions to a moderated blog. Comments will be accepted throughout the year.
Enrollment is now available for the Health Literacy Leadership Institute, June 9-13, 2014, offered through the Health Communication Program at Tufts University School of Medicine in Boston, MA. This one-week Institute is designed for professionals committed to improving the health literacy of healthcare providers and the public. Those working in health literacy and students interested in pursuing careers in health literacy are encouraged to attend.
Participants learn from faculty and guest instructors highly regarded for their pioneering work in medical education, adult literacy, and program evaluation. Peer learning and the sharing of research and best practice are central to the Institute’s educational approach. During the course of the week, participants work on a health literacy project of their choice resulting in a final product that is current, comprehensive, informed by research, and reflective of best practice.
On April 8, 2014, the inaugural cohort of National Digital Stewardship Residents will present a symposium entitled Emerging Trends in Digital Stewardship at the National Library of Medicine (NLM), on the NIH campus in Bethesda, MD. The symposium will consist of panel presentations on topics including preserving social media and collaborative workspaces, open government and open data, and digital strategies for public and non-profit institutions. It will also feature a demonstration of BitCurator, an environment of digital forensics tools designed to help collecting institutions manage born-digital materials, developed by the School of Information and Library Science at the University of North Carolina, Chapel Hill (SILS), and the Maryland Institute for Technology in the Humanities (MITH). The symposium is free and open to the public. Pre-registration is encouraged.
The National Digital Stewardship Residency (NDSR) is an initiative of the Library of Congress (LC) and Institute of Museum and Library Services (IMLS), to “provide a robust, hands-on learning experience to complement graduate-level training and education.” The inaugural cohort began their residency at Washington, DC area libraries, museums, and cultural institutions in September 2013. Ten residents are embedded in institutions around the area, each completing a project related to an aspect of digital preservation and stewardship. The NDSR program aims to “serve the American people by developing the next generation of stewards to collect, manage, preserve, and make accessible our digital assets.” NLM serves as a host institution for the National Digital Stewardship Residency, and since September has worked with its NDSR Resident Maureen Harlow to develop a thematic Web archive collection. This project builds on a pilot Web archive collection completed by NLM and featured in The Signal blog of the Library of Congress, in October 2012.
March 2-8, 2014, is Patient Safety Awareness Week, established by the National Patient Safety Foundation (NPSF), which supports “Creating a world where patients and those who care for them are free from harm.” The National Library of Medicine (NLM) supports the work to keep patients and healthcare providers free from harm by making available quality health information. Following is information from the NLM MedlinePlus Patient Safety health topic Web page that describes actions patients can take:
You can help prevent medical errors by being an active member of your health care team. Research shows that patients who are more involved with their care tend to get better results. To reduce the risk of medical errors, you can:
- Ask questions if you have doubts or concerns. Take a relative or friend to your doctor appointment to help you ask questions and understand answers.
- Make sure you understand what will happen if you need surgery.
- Tell your health care provider(s) about all the medicines you take, including over-the-counter drugs and dietary supplements. Tell them if you have any allergies or bad reactions to anesthesia. Make sure you know how to take your medications correctly.
- Get a second opinion about treatment options.
- Keep a copy of your own health history.
Registration is still open for the WebJunction Health Happens in Libraries: Health Information Resources for Library Staff webinar. Alan Carr and Kelli Ham of the NN/LM Pacific Southwest Region will discuss their collaborative efforts with public libraries regarding the Affordable Care Act and other popular health information topics. They will be joined by Milly C. Lugo-Rios from Santa Ana Public Library, and together share strategies for strengthening your own library’s health information services, to improve the health literacy of your community. The webinar will be held on January 22, 2014 from 11:00 AM – 12:00 PM PST.
The White House Initiative on Asian Americans and Pacific Islanders is continuing their Google+ Hangout Series on the Health Insurance Marketplace in Chinese (Mandarin). Almost one in seven Chinese Americans lacks health insurance and Chinese Americans are also among the highest limited English proficient populations in the nation. During the Hangout, there will be a live question and answer period with Mandarin-speaking representatives from the U.S. Department of Health and Human Services. They will respond to questions and provide information on how to obtain health care coverage through the new Marketplace. The Chinese language Hangout will take place on January 23, 2014 from 12:00 – 1:00 PM PST.
Tribalhealthcare.org provides consumer education materials and training tools for community representatives, to support American Indians and Alaska Natives in understanding their rights and opportunities associated with health care reform. The archived webinar of Health Insurance Marketplace for American Indians and Alaska Natives provides basic information to Tribal Leaders, Tribal Health staff, and Urban Indian Clinic staff about the new insurance options available to individuals and families through the Health Insurance Marketplace, including the special provisions and unique opportunities for American Indians.
The Kaiser Family Foundation continues to develop robust resources related to health care reform. Their comprehensive list of frequently asked questions may be useful to library staff and patrons alike, and includes a search feature. The For Consumers section contains information useful for patrons, including a series of one-page papers explaining how the Affordable Care Act will affect different groups of people.
For the latest ACA news, training events, and resources for librarians, keep an eye on the NN/LM PSR ACA LibGuide! Updated regularly, it contains both national and state-specific information on ACA resources.
The Institute for Research Design in Librarianship is a great opportunity for an academic librarian who is interested in conducting research. Research and evaluation are not necessarily identical, although they do employ many of the same methods and are closely related. This Institute is open to academic librarians from all over the country. If your proposal is accepted, your attendance at the Institute will be paid for, as will your travel, lodging, and food expenses. Proposals are due by February 1, 2014. Details are available at the Institute’s Prepare Your Proposal web site. Applicants accepted to the program will be notified by March 1, 2014. The Institute is particularly interested in applicants who have identified a real-world research question and/or opportunity.
The William H. Hannon Library has received a three-year grant from the Institute for Museum and Library Services (IMLS) to offer a nine-day continuing education opportunity for academic and research librarians. Each year 21 librarians will receive instruction in research design and a full year of support to complete a research project at their home institutions. The summer Institute for Research Design in Librarianship (IRDL) is supplemented with pre-institute learning activities and a personal learning network that provides ongoing mentoring. The institutes will be held on the campus of Loyola Marymount University in Los Angeles.
November 2013 marks 25 years that the National Center for Biotechnology Information (NCBI) has been providing access to biomedical and genomic information to advance science and health. Established in 1988 as a division of the National Library of Medicine (NLM) at the National Institutes of Health (NIH), NCBI has grown into a leading source for public biomedical databases, software tools for analyzing molecular and genomic data, and research in computational biology. NCBI’s resources rank among the most heavily used government web sites in the United States, with approximately 3 million users every day.
In recognition of NCBI’s achievements, an awards and recognition program was held November 1 on the NIH campus in Bethesda, Maryland. At that event Tony Hey, PhD, Vice President of Microsoft Research, presented NCBI Director David Lipman, MD, with the Jim Gray eScience Award. Named for Jim Gray, a technical fellow for Microsoft Research and an A.M. Turing Award winner who disappeared at sea in 2007, the annual award recognizes researchers who have made outstanding contributions to the field of data-intensive computing and made “science easier for scientists,” according to Microsoft.
Gray was very familiar with the work of NCBI. He was a member of the NLM Board of Regents in 2006 and met a number of times with Dr. Lipman, NCBI Information Engineering Branch Chief Jim Ostell, PhD, and other staff to discuss issues such as organization of and access to biomedical literature and data. His interest in NCBI’s work is evidenced by his final lecture, in January 2007, in which he highlighted the importance of NCBI/NLM biomedical literature databases like PubMed and PubMed Central, genomic databases such as GenBank, and NCBI’s Entrez system for searching across these and many other databases. An edited version of Gray’s lecture can be read in The Fourth Paradigm, available on Microsoft Research’s web site.
The NCBI awards program also featured presentations by Sir Richard Roberts, PhD, chief scientific officer of New England Biolabs, who provided the keynote address, entitled “A personal recollection of GenBank and NCBI.” NLM Director Donald A.B. Lindberg, MD, recounted the planning process that led to the formation of NCBI, and NIH Deputy Director for Intramural Research Michael M. Gottesman, MD, provided introductory remarks for the awards ceremony. Dr. Lipman closed the event by recognizing the dedicated and hard-working staff of NCBI who have enabled the progress that has transpired over the last 25 years.