The U.S. Department of Health and Human Services (HHS) has issued a Notice of Proposed Rule Making (NPRM) to revise the Common Rule for the protection of human participants in research. It is now posted on the Federal Register’s public inspection website and will appear on Tuesday, September 8, in the printed version of the Federal Register for a 90-day public comment period. The major reforms propose to: 1) calibrate oversight to level of risk; 2) enhance respect for research participants; 3) facilitate broad participation in research; 4) increase privacy and security safeguards for research with biospecimens and data; 5) simplify consent documents; and 6) streamline IRB review. All interested stakeholders are encouraged to review the proposed revisions and make comments.
Archive for the ‘Consumer Health’ Category
The Centers for Medicare & Medicaid Services (CMS) has awarded $67 million in three-year Marketplace Navigator grant funding to assist consumers in signing up for Affordable Care Act coverage in 2016. With Marketplace Open Enrollment set to begin on November 1, 2015, the grant awards will support outreach efforts designed to connect people with local help as they enroll in a health plan that fits their budget and best meets their family’s needs, and seek to understand the coverage options and financial assistance available at HealthCare.gov. Awards were made to 100 organizations located in 34 states that operate Federally Facilitated Marketplaces, State Partnership Marketplaces, and supported State-Based Marketplaces.
Navigators and assisters are trained specialists who provide consumers in their communities with in-person help, answering their questions about their health insurance and financial assistance options and assisting them as they complete their application. Navigators and assisters are knowledgeable about the range of health plans available on HealthCare.gov as well as other public health insurance programs offered in their state, including Medicaid and the Children’s Health Insurance Program (CHIP). In addition to Navigators, Marketplaces make other resources available to consumers to help them access Marketplace coverage, such as certified application counselors, non-navigator assistance personnel (also known as in-person assisters), and agents and brokers. A list of HHS Navigator awardees, as well as more information about Navigators and other Marketplace resources is available by visiting the CMS web site.
The Exhibition Program at the National Library of Medicine has announced its newest traveling exhibition, Confronting Violence: Improving Women’s Lives, that is now available for six-week booking periods. The exhibition explores the story of nurses and activists who during the late 20th century worked with passion and persistence to reform a medical profession that overwhelmingly failed to acknowledge violence against women as a serious health issue. Beginning in the late 1970s, nurses were in the vanguard as they pushed the larger medical community to identify victims, adequately respond to their needs, and work towards the prevention of domestic violence. To book this exhibition or learn more about other available traveling exhibitions, visit the NLM Exhibition Program web site.
The online adaptation of the exhibit incorporates a Digital Gallery of videos about domestic violence from the NLM’s collection. Education resources are also featured in the online exhibition, including K-12 lesson plans, a higher education module; an online activity and a robust selection of resources including K-12 suggested readings. In addition, the web feature, Related Resources at NLM, includes a selection of published articles on domestic violence and forensic nursing available through PubMed Central.
The 2015 Association of Health Care Journalists (AHCJ)-National Library of Medicine (NLM) Fellows class features nine reporters and editors representing diverse media backgrounds. Now in its seventh year, the program brings journalists selected by AHCJ to NLM for four days of training to better use some of NLM’s health information resources, such as PubMed, PubMed Health, Genetics Home Reference, TOXMAP, ClinicalTrials.gov, and MedlinePlus. This year’s Fellows class will be at NLM September 28-October 1. The 2015 AHCJ-NLM Fellows also will receive briefings about health care issues, such as the adoption of electronic health records by patients and health care providers, as well as consumer health resources provided by the National Cancer Institute. For the second year, the Fellows will meet with the Patient Centered Outcomes Research Institute to learn more about comparative clinical effectiveness research.
The 2015 AHCJ-NLM Fellows are:
- Parker Brown, staff writer, MedPage Today
- Kay Colby, health producer, WVIZ/PBS, WCPN/NPR, ideastream
- Andrea King Collier, independent journalist, Lansing, MI
- Alison Fitzgerald, correspondent, National Public Radio
- Lisa Gillespie, reporter, Kaiser Health News
- Marlene Harris-Taylor, medical editor/health writer, The Toledo (Ohio) Blade
- Matthew Perrone, health reporter, Associated Press
- Rebecca Shannonhouse, editor in chief, Bottom Line/Health
- Alexander Smith, health/science reporter, KCUR-Kansas City / Heartland Health Monitor
The Summer 2015 issue of NIH MedlinePlus the Magazine features topics including living with anxiety disorders, sports and concussion, healthcare communication, adult vaccinations, sleep disorders, and animal-assisted therapy for patients undergoing treatment at NIH Clinical Center. The cover features Doug Flutie, the Hall of Fame, Heisman Trophy winning quarterback at Boston College and former star quarterback in the National, Canadian, and U.S. football leagues. He discusses concussions and brain trauma associated with sports like football, soccer, cycling, and others.
The magazine also includes remarks by NIH Director Francis S. Collins on the retirement of Donald A.B. Lindberg as Director of the National Library of Medicine. Dr. Lindberg created programs that changed fundamentally the way biomedical information is collected, shared, and analyzed. He introduced numerous landmark projects, such as free Internet access to MEDLINE via PubMed, MedlinePlus for the general public, the Visible Human Project, ClinicalTrials.gov, the Unified Medical Language System, and many more.
NIH MedlinePlus the Magazine is the free, trusted consumer guide to the vast array of authoritative online health and medical information at MedlinePlus. Published four times a year, the magazine showcases the National Institutes of Health’s (NIH) latest medical research and healthcare information. NIH MedlinePlus the Magazine is freely available as a print subscription, e-mail alerts, and online.
AIDSinfo has announced the release of the 8th edition of the AIDSinfo Glossary of HIV/AIDS-Related Terms and a redesign of the corresponding glossary app! This update features the addition of images and infographics highlighting select glossary terms. With definitions for more than 700 HIV/AIDS-related terms in English and Spanish, the glossary—whether online, in print, or as an app—offers a comprehensive guide to the vocabulary of HIV.
The free glossary app, available for iOS and Android devices, has been redesigned with an updated look and feel. The app includes several new features that make it easy to save frequently referenced terms and share favorite terms on Facebook or Twitter or by e-mail or text. The app also includes an audio feature to hear terms correctly pronounced in English and Spanish and a toggle button to switch between English and Spanish terms and definitions.
Check out the August issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research. In this issue:
- Positive Emotions and Your Health: Developing a Brighter Outlook
Do you tend to look on the sunny side, or do you see a future filled with dark, stormy skies? A growing body of research suggests that having a positive outlook can benefit your physical health. NIH-funded scientists are working to better understand the links between your attitude and your body. They’re finding some evidence that emotional wellness can be improved by developing certain skills.
- All About ALS: Understanding a Devastating Disorder
In the summer of 2014, social media was taken by storm with videos of people pouring ice water on themselves for the Ice Bucket Challenge. The worldwide phenomenon raised awareness—and millions of research dollars—for a fatal disease called ALS.
- Increases in Problem Drinking
Alcohol use disorder is becoming more common, a new study found, but few people seek treatment. The findings highlight the need to better educate people about problem drinking and its treatment. Alcohol use disorder, or AUD, is the clinical term for problem drinking that causes mild to severe harm or distress. Excessive drinking can interfere with work, school, and relationships. It also raises the risk of many ailments, including heart disease, high blood pressure, liver disease, depression, and some cancers.
- Join the Fight Against Superbugs
Can you imagine a world where antibiotics didn’t work anymore? You shouldn’t have to. But over the past few decades, they’ve been losing their punch. Bacterial strains that are resistant to many types of antibiotics are called superbugs. Sadly, our excessive use of antibiotics is partly to blame. A new video from NIH, Fighting Superbugs, can help you learn more about what you can do to help win this battle.
- Featured Website: Genetic and Rare Diseases Information Center
This website provides accurate, up-to-date information about thousands of rare and genetic diseases. Learn about symptoms, treatment options, and current research. Information specialists are available to discuss questions online, by mail, or by phone (888-205-2311) in English or Spanish.
NIH News in Health is available online in both HTML and PDF formats. Print copies are available free of charge for offices, clinics, community centers, and libraries within the U.S. Visit the NIH News in Health Facebook page to suggest topics you’d like to see covered, or share what you find helpful about the newsletter!
New Mobile App Connects HIV Providers, Advocates, and People Living with HIV/AIDS to NLM HIV-Related Websites
HealthHIV, in partnership with the National Library of Medicine (NLM), has announced the launch of the Go2NLM mobile application. Building on its Navigate to Learn More publication, HealthHIV created the Go2NLM app to provide information about and direct access to NLM’s authoritative HIV-related websites to HIV providers, advocates, and people living with HIV/AIDS. The app features dynamic content, including updates about new and highlighted HIV technical assistance and capacity building tools and resources promoted by NLM.
The websites featured on the Go2NLM app are:
- HIV/AIDS Information, NLM Specialized Information Services
Inaugural National Conference on Alzheimer’s Disease in Native American Communities October 15-16 in Scottsdale, AZ
The Banner Alzheimer’s Institute Native American Program will host the first National Native American Conference on Alzheimer’s Disease and Dementia in Native American Communities on Thursday and Friday, October 15-16, at the Scottsdale (AZ) Plaza Resort. Targeting urban and tribal health care and social service professionals, this two-day conference will provide eight plenary and more than 30 concurrent sessions from stellar Native American and dementia specialists from across the U.S. This conference is designed to provide the opportunity to learn best practices in the diagnosis, treatment and care available for Native American families affected by Alzheimer’s disease.
The National Library of Medicine (NLM) Tox Town City neighborhood now has updated graphics with a new photorealistic look. The City, Town, and Southwest scenes are now in HTML 5. Location and chemical information remains the same, but the new graphics allow users to better identify with real-life city locations. Tox Town can be accessed on a variety of personal electronic devices, including iPads, iPad minis, and tablets. Regardless of where you live, check out the updated Tox Town City neighborhood and learn about potential environmental health risks!