NIH's New Rare Disease Information Center

The NIH Office of Rare Diseases has announced a new Genetic and Rare Disease Information Center. A rare disease is defined as one that has a prevalence of less than 200,000 affected individuals in the USA. More information is available on the Center's web site at http://rarediseases.info.nih.gov including definitions, a list of rare diseases, patient support groups, patient travel and lodging, and research and clinical trials. Also available on the web site is contact information for Information Center staff who will respond to inquiries from the general public, health care professionals, and researchers.

MEDLINEplus also has information on Rare Diseases, including a link to the Office of Rare Diseases and to information on orphan drugs from the Food and Drug Administration. - JKK

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