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April is National Minority Health Month

Typically most people think of minorities in regards to race or ethnicity.  However, minorities can also include sexual identity, age, geographic location, disability, gender and socioeconomics.  For many, being part of one or more of these categories often contributes to health disparities. According to Healthy People 2020, “To better understand the context of disparities, it is important to understand more about the U.S. population. ” In 2008, the U.S. population was estimated at 304 million.

  • In 2008, approximately 33 percent, or more than 100 million persons, identified themselves as belonging to a racial or ethnic minority population.
  • In 2008, 51 percent, or 154 million, were women.
  • In 2008, approximately 12 percent, or 36 million people not living in nursing homes or other residential care facilities, had a disability.
  • In 2008, an estimated 70.5 million persons lived in rural areas (23 percent of the population), while roughly 233.5 million lived in urban areas (77 percent).
  • In 2002, an estimated 4 percent of the U.S. population aged 18 to 44 years identified themselves as lesbian, gay, bisexual, or transgender.

Progress has been made to close the gap in health disparities but the work needs to continue to narrow the gap so that everyone has equal opportunities for better health whether it is accessing and understanding health insurance, health literacy, having preventative care available, or open communication between patients and clinicians. Read more »

Betsy L. Humphreys named Acting Director of the National Library of Medicine

Betsy L. Humphreys was appointed the National Library of Medicine’s (NLM) Acting Director effective April 1, 2015, following the retirement of Dr. Donald A.B. Lindberg. NLM is one of the 27 Institutes and Centers that comprise the National Institutes of Health. Humphreys has served as NLM’s deputy director since 2005, sharing responsibility with the Director for overall program development, program evaluation, policy formulation, direction and coordination of all Library activities. As Deputy Director of the Library, Humphreys also coordinated NLM’s extensive activities related to health data standards, serving as US Member and founding Chair of the General Assembly of the International Health Terminology Standards Organisation. She has contributed to the development of NIH and HHS policy on a range of matters, including health information technology, public access to research results, clinical trial registration and results reporting.

Humphreys, who joined the NLM in 1973, previously led the NLM’s Library Operations Division and directed the Unified Medical Language System (UMLS) project, which produces knowledge sources to support advanced processing, retrieval, and integration of information from disparate electronic information sources.

Ms. Humphreys is an elected member of the Institute of Medicine of the National Academy of Sciences, a Fellow of the American College of Medical Informatics, and a Fellow of the Medical Library Association. She is the recipient of a number of awards, including the Morris F. Collen Award of Excellence from the American College of Medical Informatics, considered the highest honor in the field of medical informatics, the Marcia C. Noyes Award, which is the Medical Library Association’s highest honor, and the first Cornerstone Award conferred by the Association of Academic Health Sciences Libraries.

She received a B.A. from Smith College, where she was elected to Phi Beta Kappa, and an M.L.S. from the University of Maryland, College Park. (Source: http://www.nlm.nih.gov/news/humphreys_acting_director.html)
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Upcoming PNR Rendezvous April 15 on 508 Compliance

508 Compliance: Creating Accessible Documents” will be presented by Patricia Devine, NN/LM PNR Network Outreach Coordinator; and Madelena Romansic, NN/LM PNR Program Assistant.

April 15, 2015 at 1 PM Pacific (noon Alaska 2 PM Mountain)

What is Section 508? For federally funded websites and other electronic resources, including the NN/LM PNR and its funded projects, Section 508 of the U.S. Rehabilitation Act was enacted to eliminate barriers in information technology for people with disabilities. This session will focus on ways to make PowerPoint and Word documents 508 compliant so they can be accessed equally.

To attend go to http://webmeeting.nih.gov/rendezvous and login as a Guest, using your own name.  Once logged into the web meeting, a pop-up box allows you to put in your phone number and the program will call you. If this does not happen, just call the 800 number and use the participant code that appears in the Notes box on the screen.

If you are unable to tune in live, we invite you to view a recording of the webcast, posted to the Rendezvous website later.

The PNR Rendezvous webcast sessions are eligible for 1 hour of Medical Library Association continuing education (MLA CE) for attending the webcast and completing a brief online evaluation form at the end of the webcast.

As part of our Federal agency services regarding electronic and information technology resources being accessible to people with disabilities, closed captioning is available on this and future PNR Rendezvous webcasts.

 

Upcoming data webinars: April 14, 22, and 23

Make Data Count: Measuring Data Use and Reach (NSF), April 14, 9:00 AM Pacific

Registration is now open for the third event in the DataONE Webinar Series (www.dataone.org/webinars) focused on open science, the role of the data lifecycle, and achieving innovative science through shared data and ground-breaking tools. There will be a panel presentation by Jennifer Lin, Martin Fenner, Matt Jones & John Kratz from the Public Library of Science, DataONE and the California Digital Library.  The webinar is focused on the outcome of a recent collaborative NSF grant and is titled: “Make Data Count: Measuring Data Use and Reach”. Register at: www.dataone.org/upcoming-webinar.  (Free.)

Abstract:  California Digital Libraries, PLOS, and DataONE are partners in Make Data Count (http://articlemetrics.github.io/MDC/), an NSF-funded project to design and develop metrics that track and measure data use, i.e. “data-level metrics” (DLMs). DLMs are a multi-dimensional suite of indicators, measuring the broad range of activity surrounding the reach and use of data as a research output. In the webinar, we will discuss the findings from Phase 1 in which we gathered information about the needs of researchers– how do they want to get credit for the data they produce? What do they want to know about how their data is used? What do they want to know about others’ data to evaluate quality? We connected with the community to determine requirements and understand use cases for the data-level metrics prototype. We will also demo the latest from our working prototype and share the initial results (usage, citations, scholarly references and mentions, social media, etc.) collected on datasets from DataONE member repositories. This webinar will be recorded and made available for viewing later the same day. A Q&A forum will also be available to attendees and later viewers alike. More information on the DataONE WebinarSeries can be found at: www.dataone.org/webinars.

 

The Diversity of Data Management: Practical Approaches for Health Sciences Librarianship (MLA), April 22, 11:00 AM to 12:30 PM Pacific

This webcast is designed to provide health sciences librarians with an introduction to data management, including use of data in the research landscape and the current climate around data management in biomedical research. Three librarians working with data management at their institutions will present case studies and examples of products and services they have implemented, and provide strategies and success stories about what has worked to get data management services up and running at their libraries. Presenters are Lisa Federer, Kevin Read, and Jackie Wirz. For more information seehttps://www.mlanet.org/professional-development-education-online-learning/diversity-data-management-practical-approaches   (Free at host site. Costs vary.)

A free viewing of this webinar will be hosted at the University of Washington Health Sciences Library, Library Teaching Laboratory (LTL) on Wednesday, April 22, 2015, 11:00 AM to 12:30 PM Pacific.

NN/LM PNR Network members may apply for funding to broadcast this webinar at their site. Please let us (NNLM/PNR nnlm@u.washington.edu) know by Monday, April 13, 2015 if you would like to apply to host this webinar at your library.

 

Privacy Principles for the Age of Big Health Data (CDT), April 23, 10:00 AM -11:00 AM Pacific

Data-driven and information-based systems have quickly become the new paradigm for American health care. Health care providers, insurers, pharmaceutical companies, academics, government entities, and also many non-traditional entrants – including patients and consumers of health “wearables” – are applying advanced analytics to large and disparate data sets to gain valuable insights on treatment, safety, efficiency, and public and personal health. These developments offer a wealth of opportunities to increase wellness, but raise serious privacy and security questions. To explore these implications, and to develop concrete proposals for leveraging health big data to benefit individuals and society while respecting individual privacy, CDT has joined with stakeholders and experts to examine these issues from three different perspectives: clinical and administrative data generated by health care providers and payers; health data in commercial context, such as that contributed by consumers using the Internet and other consumer-facing technologies; and health data collected by federal, state, and local governments. CDT’s Deputy Director of Consumer Privacy Project, Michelle DeMooy and Gautam Hans, Policy Counsel and Director of CDT’s San Francisco office, will provide an overview of those findings and recommendations. Speakers:  Michelle De Mooy, Deputy Director of Consumer Privacy Project, CDT and Gautam Hans, Deputy Director of Consumer Privacy Project, CDT. Register at:  http://www.healthdataconsortium.org/programs-webinars   (Free.)

Upcoming Moodle class: Combatting Information Fatigue: Health Information Resources for Veterans

Are you working in the public library or a community organization with a health information aspect?  Do you feel you lack the knowledge to run a health reference service?  Do you offer a patient education service in your hospital library?  The PNR office if offering a series of Moodle classes in the next twelve months on consumer health information.  Starting April 13, Combatting Information Fatigue: Health Information Resources for Veterans – PNR, is the first class offered.  This Moodle class is self-directed with online discussion as well as readings and exercises. This class starts soon and it lasts only three weeks so sign up now.  For more information about this class read below: Read more »

Recording Available: NCBI and the NIH Public Access Policy

On March 5, NCBI hosted a full-to-capacity webinar outlining the NIH Public Access Policy, NIHMS and PubMed Central (PMC) submissions, creating My NCBI accounts, use of My Bibliography to report compliance to eRA Commons, and using SciENcv to create biosketches.  The slides and Q & A are available on the NCBI FTP site (http://1.usa.gov/1BUTIHM). The March 5 recording is available on the NCBI You Tube channel.

A live re-broadcast of the webinar will be held on April 21, 2015.