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Dragonfly Spring 2003 -- Volume 34, Number 2

Focus on Funding. Part III: Empowering Parents of Children with Special Health Care Needs

By Gail Kouame
Consumer Health Coordinator, NN/LM PNR

This is the third in a series of articles highlighting five projects in the Pacific Northwest Region emphasizing "Access to Electronic Health Information." The projects received funding from the National Library of Medicine (NLM) with a maximum award of $40,000. For further information about funding opportunities, visit our web site at: http://nnlm.gov/pnr/funding/.

Empowering Parents of Children with Special Health Care Needs

The lead agency for this project is the Center for Children with Special Needs at Children's Hospital and Regional Medical Center in Seattle, Washington. Children with special health care needs are those with chronic physical, developmental, behavioral or emotional conditions that require health services beyond those required by children generally.

The purpose of this project is to train parents of children with special health care needs to advance their skills and abilities in using the Internet to seek health information and resources. Parents of these children continually express the need for current, reliable information and to understand and be informed about resources locally, nationally, and internationally that will assist them in providing care, advocating for their children, and monitoring emerging health care research. In partnership with the Washington State Fathers Network and Washington State Parent to Parent Support Programs, and community public libraries, the Center for Children with Special Needs will develop a skills-based train-the-trainer curriculum with parent input that will provide the basis for the Internet training on accessing health information and resources.

The overall goal of the project is to train parents of children with special health care needs to advance their skills and abilities in using the Internet to seek health information and resources. In order to accomplish this goal, project partners will:

• Develop Internet training curriculum for train-the-trainer sessions with target audience members involved in the design process.
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• Deliver two English and one Spanish six-hour train-the-trainer sessions for parent coordinators who will attend the workshops with community-based public librarians. The public librarians and parent coordinators will serve as a continuing resource in each region at the conclusion of the project.
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• Facilitate and support parent coordinator delivery of 10 community-based training sessions to share the skills and resources with parents of Children with Special Health Care Needs.

To learn more about the partnering agencies in this project, please visit their web pages:

Center for Children with Special Health Needs - http://www.cshcn.org/

Washington State Fathers Network - http://www.fathersnetwork.org/707.html

Washington State Parent to Parent Support Programs- http://www.arcwa.org/parent2parent.htm

• Part I. Access to Wellness Project
• Part II. Computer Health Literacy for Seniors in Northern Idaho
• Part IV. Online Access to Reviewed Health Education Materials

Dragonfly, Spring 2003- Volume 34 Number 2
(posted on PNRNews on May 12, 2003)

This publication is funded in whole with Federal funds from the National Library of Medicine, National Institutes of Health, under Contract No. N01-LM-1-3516.

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NN/LM | UW HSL | NN/LM PNR | Contact us: nnlm@u.washington.edu | Revised: June 26, 2003

URL: http://nnlm.gov/pnr/news/200304/childrens.html